Search results

So I picked up my daughter after school. She says oh I don't feel good today. Started after lunch but she said she didn't want to bother me or go to the nurse because I was at work. She said she was nauseous, had a headache and it hurt to take a deep breath. No fever. Min cough. question is...

Do you take? What brand do you take? I do give fish oil daily to my daughter. In the past I had bought Nordic Naturals. last time I just got what was at the drug store. Thinking of going back to Nordic Naturals...What types do you use?

I went to the pharmacy to refill my daughter's Nasonex and it is on back order until December. Wondering what you all use besides Nasonex for nasal polyps? She does her Nasonex 2 squirts once a day.

I hear this on the radio today. So I thought I'ld post this. I have no affiliation with them. Thought if it could help someone it would be useful. http://www.uhccf.org/apply/learn-more-about-medical-grants/grant-application-criteria/

My son is preparing to apply for college soon. He is sorting out what to write for his college essay. He has decided this year that he wants to focus on science; likely start as a Biology major. He said for his essay he wanted to write about his sister with CF; brainstorming last night. He...

I am looking for a few photos to download for our CF walk. In the past, to promote awareness I would use a photo of my daughter. I think she would prefer a generic photo of a logo from the CF foundation or purple ribbon and I am having trouble finding something. Help?

So we are going on a trip to across the country . Getting ready packing, daughter with CF has a slight cold. Few coughs, did complain of a sore throat this am, went away with drinking fluids. If we were staying home I would not be concerned at all; would just keep an eye on her. But; we will...

We've had our Mobilaire compressor for nebs for 4 years. This morning it would not shut off. The switch on the back would not shut the machine off when switched in the off position. Anyone had this happen before? I unplugged it to shut it off. The motor is completely fine. Shows how well...

Anyone been to Puerto Rico with CF? Are Pharmacys available for meds(like prednisone or antibiotics?) Any concerns to be aware of? TIA

My daughter's teeth are discolored in front especially. Dentist said it was the way the enamel was laid down. Gave her some stuff to rub on her teeth at night to redistribute the enamel...I think it's a combination of things, too many antibiotics, inhaled meds, just having CF in...

Suggestions? Is the Pari Trek good? Looks very affordable.....Any other with longer battery power? The trek last one hour.

Who uses it? what do you think? Is it as effective as a hospital grade compressor? Just curious if it makes life easier and is just as effective...Also how is cleaning it?

Hypothetically, if one got a new job with a different health insurance company would you think they would cover a new VEST? We already have a Hill rom but an Afflovest would be a back-up/travel etc type thing. Thoughts?

Suggestions for this feeling my daughter complained of. Not wheezy(yet). Cough is not bad. Just feels tight in her upper chest. Some sort of virus going around school. I gave her extra albuterol and vest. Usually this turns into a prednisone need; but any ideas to nip this so it settles...

Anyone itemize their medical expenses and have any sample spread sheets for deductions, not covered by health insurance..Looking to try to organize and work on this; especially since my daughter takes lots of OTC meds everyday we pay out of pocket. TIA I did search on this site and the threads...

my daughter recently started menstruating. Her constipation issues have really flared this year. HEr first period was right after a hositalization for GI cleanout. She started complaining again last week she felt bloated and not pooping enough. Tried some stuff at home and called her GI...

http://www.bostonglobe.com/business/2015/01/20/vertex-patient-will-guest-michelle-obama-state-union-address/b2e31G2ZoogyXw2sw3ky0L/story.html

It never fails that this time of year is hard. Too many germs. My daughter had a dry cough last week(I was hoping it would go away, trying to ignore)..She had a routine CF appointment last week. This week she started feeling more yucky, tired increase in cough(really dry and irritated cough...

When you get really excited that Miralax is on sale(that stuff isn't cheap)..I stocked up bought 3 huge bottles of Miralax and realized I had coupons as well; Figure I could't only but Miralax at the drug store so threw in 2 bags of Rold Gold Pretzels and I'm good to go. I always wonder what...

http://www.cff.org/aboutCFFoundation/NewsEvents/12-4-Recall-Probiotic-ABC-Dophilus-Powder.cfm