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http://www.npr.org/blogs/health/2014/02/25/282576223/one-last-journey-for-organ-donors-speeds-transplants

Lungs "in a box" Cool article (does show picture of lungs, if you are squeamish) http://www.npr.org/blogs/health/2014/02/07/273174533/lung-in-a-box-keeps-organs-breathing-before-transplants

Did anyone see this the other night with Boomer Esiason and Bryant Gumbal? We don't have HBO and I wish I could have seen the interview. Boomer talked about the Boomer Esiason foundation.

Looking for advice for my 11 year old daughter for a bag that will hold her compressor, bags of nebs, meds and pulmozyme(needs to be cold) When we travel I feel so disorganized and have lots of little bags but I would like to find a nice bag for her so she could manage this stuff herself, for...

I almost titled this for the ladies but some men also have pierced ears. Anyway, my daughter (almost 11) wants to pierce her ears. I keep putting her off, I guess I am more concerned about getting an infection in her ears from it. I know when I was little I got my ears pierced and they did...

So, my 10 year old with CF has not pooped in a few days(I think). She has had a cold; which is not what I am worried about at this point. Yesterday, she woke up and said her stomach was upset and she was tired. She asked to stay home from school(unusual, she loves school)...Anyhow, she said...

So, My child with CF plans on doing cross country for afterschool activity..It will be her 1st year..It is right after school.. She usually does an albuterol neb and vest right after school. Thoughts on having her do her Albuterol inhaler instead and then having her do the running. I am a...

http://files.parsintl.com/eprints/77998.pdf

Getting ready to set up a meeting with my daughter's middle school homeroom teacher. Any advice about what to go over? This year she will be switching classes more often. Last year she had the same teacher for her classes except for stuff like art, gym. music. How do you keep consistency...

My daughter 10 with CF seems very hoarse/lost voice. She recently got over a cold. Any ideas to help? I've given her honey, losenges, mints. We always encourage fluids. She has voice lessons today; think this would help or hurt? She refuses to cancel them.

It seems like whenever she finishes her antibiotics; then next day she gets yet another cold. We went to her CF appointment last week; had 2 days left of her hard core anti. Her PFT's were great. Lungs clear. Fabulous. Picked up a nasal cold at school. :(....Really? She has 2 days of...

http://www.cnn.com/video/data/2.0/video/health/2013/06/06/pkg-carroll-lung-transplant-ruling.cnn.html

My daughter is 10 and a half with CF. She is fairly mature for her age, since she has been dealing with CF since birth; she is a good kid, smart and handles CF with grace. However, she is developing just a slight attitude. I noticed at her last CF appointment(we saw NOT her usual doc), my...

My 10 year old girl with CF does not like to cough up her mucus. She thinks it' gross and makes her want to throw up. She has on very few occasion coughed up stuff for me to see(came up just by force). She will just swallow it. I told her I would get her something special if she coughs...

The past couple weeks my daughter chest area has these marks on it. I thought her VEST was too tight; which it was; I measured her and they shipped out a small adult size for her(she's 10). Now the VEst is big but fits her with out being Very tight. Anyway; she has these marks(they do not...

Fasting result 102 2 hour after drinking the oral glucose blood sugar was 89. THis is our first time this test was done, our daughter is 10. She had been on prednisone twice the previous month (high dose). She is always on inhaled pulmicort as well as nasonex. They are calling her pre...

http://www.cff.org/aboutCFFoundation/NewsEvents/12-19-FDA-Recall-of-Selected-Zicam-Nasal-Gel.cfm

CF services is merging with Walgreens.. Just found out they can not ship to our particular state. I am very aggravated to say the least. So I am transfering out my daughter's scripts to our local drug store for now...I am concerned about her Pulmozyme. Who would you recommend for a pharmacy...

Is this ok to give a CF child for a sore throat? It's not a cough suppressant; just has some numbing ingredient in it. It's a comfort thing. I gave my daughter one; she's home with something brewing...She's almost 10 and never had a cough drop so I figure what's it gonna hurt? I know it's a...

http://youtu.be/uhuRc3c_loM Not sure if this link will work. My 9 year old daughter with CF sang at the school talent show. Just a proud Mom; thought you all would understand.:)