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looking to stock up on some neb supplies. I tried American Allergy Supply but they only had 3 of the Pari baby neb masks. I would like to order about a dozen. figure if I am going to pay for shipping might as well buy them in bulk. My daughter tends to chew on the bottom of the mask so...

Typically after a cold how long does it take for you or your child to get rid of the leftover gunk? Seems like it becoming more frequent occurance for us. My daughter had a cold over Easter weekend, with a slight temp at first, really stuffy nose and congested head cold. It did not seem to...

http://health.yahoo.net/news/s/nm/u-s-officials-seize-contaminated-ultrasound-gel Yuck

My daughter's VEST made a really weird noise during her morning treatment and just Died! of course it's weekend and customer service at Hillrom is not available(as far as I know) til Monday. I left a message on their customer service line. Looking for advice if there is anyting else I can do. We...

Just curious if any of you use this for your CF kids? It is a non alcohol fluoride mouthwash. Our dentist suggested it for my CF daughter. I am always hesitant to use these types of mouthwashes because of contaminants or risks of getting bacteria cause it is not alcohol based. What do you all...

http://health.yahoo.net/news/s/hsn/should-cystic-fibrosis-patients-get-so-many-antibiotics

http://www.youtube.com/nonprofitvideoawards?x=us_showcase_4633_46

http://www.youtube.com/nonprofitvideoawards?x=us_showcase_4633_46

http://www.boston.com/Boston/dailydose/2012/03/fda-considers-putting-more-drugs-over-the-counter-while-curtailing-antibiotic-use/pMhYsyerDfs5jVcmPx4OhK/index.html

http://news.yahoo.com/expert-kids-likely-not-harmed-cvs-pill-mix-232453073.html I always check my daughter's meds; actually count out the pills...I have caught mistakes, usually it is they do not provide enough of the antibitoics(since she is usually on a high dose for a long period).. Once our...

So, My daughter has had an exacerbation, treated her with steroids and anti's(for over a month)..Her follow-up PFT's are better but still about 6% less than in December when they were at her all time best. She has a bit of mucus left(she's ALOT better) but I am afraid with the next cold/resp...

<a href="http://www.lhj.com/health/news/choosing-my-life-or-my-unborn-child/?page=2">http://www.lhj.com/health/news/choosing-my-life-or-my-unborn-child/?page=2</a>

<a href="http://www.cff.org/aboutCFFoundation/NewsEvents/2-15-Cayston-Patients-May-Face-Treatment-Delays.cfm">http://www.cff.org/aboutCFFoundation/NewsEvents/2-15-Cayston-Patients-May-Face-Treatment-Delays.cfm</a>

I know this topic has been asked before; but we are getting close to needing an admission for PICC and IV's. Depends how the next 2 weeks go and the next PFT result. Anywho, my daughter has not been admitted for a long time(since she was 2 1/2 years old). She is 9 now. What do you bring? Meds...

Just wondering if any of you work from home and what do you do? Just thinking about things I could do from home to earn some extra money while also being there to manage my daughter's illness. Currently I am an RN working per diem. Just finding it draining to go from one caring profession and...

My daughter started 5 day Prednisone burst(on 2nd day) and Zyvox (also second day). She is coughing more today than when she started! Coughed up some clear mucus, I'm guessing the Prednisone opened her up more so she could get the mucus out? I thought the prednisone would tamp down her cough...

We had a good fall respiratory wise; quite a few colds but did not turn into anything further. Post Christmas, my daughter has a persistant cough. She overall has been acting well, sleeping at night. We have her on her second round of oral anti's and I just feel like it's not going to cut it. I...

My daughter is coughing, productive(but she swallows it) and was started on oral Duricef. She has taken this before without it bothering her stomach or making her throw up. She threw up about 1 1/2 hours after taking the first dose. Pharmacist thought she likely absorbed the med before throwing...

So, I was cleaning my pocketbook because we are traveling for the holidays and I want to make sure it is stocked and ready to go. <br>CF related things in my purse: albuterol inhaler, Purell, handiwipes, Tums, sodium bicarb tablets, of course enzymes, cell phone, wallet, peppermint candies for...

Just got an upgrade to Hill rom 105, we have the 104 but it burned out. So we go the 105 today. I programmed the settings; it automatically pauses for coughing which is nice.<br>How the heck to do you turn it off? I press the OFF button and it does not turn off. Wierd?