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Maggie is almost done with her 2 week course of oral Cipro for her first culture pseudo. She has 2 days left. She woke last night with a headache, course I was half asleep and I gave her some tylenol; this morning she still has a headache I checked her temp cause she had felt warm to me when I...

I have been debating getting a Mobilaire compressor; The Pari just doesn't cut it; It died after just another 2 months of use; having been replaced maybe 2 months before that. It's awful. Luckily I have a generic type back up. I had called around to a couple medical supply stores but they do...

I usually give Maggie culturelle once a day. When she is on anti's I give it twice a day, even for a while after she finishes the course of anti's. How many times a day do you give your child probiotics when they are on strong antibiotics? Thanks!

When do you give your child their CF vitamin and antacid, like prevacid when on Cipro? The instructions say not to give 2 hours before or 6 hours after; I am a little confused when to give prevacid and the CF vitamins

So, Maggie cultured pseudomonas for the first time just got off the phone with the doc. She also cultured her MRSA. She does have a slight cough; not bad but she had 2 cold back to back with ear infection as well in December. anyway, he called in 2 weeks oral cipro and 28 days of TOBI to...

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<a target=_blank class=ftalternatingbarlinklarge href="http://www.nytimes.com/2010/12/21/health/21really.html?_r=1&ref=science">http://www.nytimes.com/2010/12....html?_r=1&ref=science</a>

Looking for some home owner advice/CF environment... BTW, my stress level is at an all time high; deep breath it could be worse(don't we always say that) Last week, we had heavy rain, the next morning our living room ceiling was dripping water into the floor. Had a roofer come, pulled down...

Our Pari Vios which we just got like 2-3 months ago is already not working great. Looking around we just need a better hospital grade compressor. I saw the Mobilaire compressor. Is it ok to use with CF meds? It looks much more sturdy...Also runs around $275. WOndering if I could get a script...

This time of year seems hard every year. Cold and flu season; plus having to visit family buy presents, work and continue with the day to day CF care. Trying to keep positive but twice yesterday I felt weepy..Not like me at all..It feels like an uphill battle. AND it's not even that bad...

I get emails from Medscape one recently published was study done on COPD patient and singing improving their PFT's and decreasing fatigue. Not sure how to paste it at this site but the study had patients do breathing exersizes and sing for 5 minutes a day and noted a positive difference in...

So Maggie developed ear pain on Sunday, knew it was going to be an ear infection but we had to wait til yesterday to bring her in. She has an ear infection in her right ear and the PA thought she heard a few squeak in her lungs. So 10 days of Augmentin and double her Bactrim for 14 days. I...

Just wondering if anyone else feels this way..Certain things people say just irritate me..I've learned to let ALOT go. One thing that drives me nuts is when my daughter has a cough(like now) and family will hear it and say"ooh that sounds bad, or is she Ok?, or that's not her normal cough"...

Once you culture it, are you always on TOBI or just when it flares up? Just curious...

Yup its here. Maggie woke up with a sore throat this am no fever..I had to work Magge said we'll I'm going to school anyway; "we're doing fun stuff" I let her know to go to the nurse if she didn't feel well. Of course Maggie didn't go to the nurse. Now she is boogery, congested, with a cough...

Hi Emily, I saw your site on FB about a virtual run( love the idea). I am a runner and would love to run in March in my town; I would love to register and get a t shirt supporting running for CF... Just wanted to know if you register can I get one mailed to me? Can I get a running group...

My daughter takes Pancrecarb; yes we still have some, but are no longer able to get it from any pharmacy; still waiting for FDA approval. I have spoken to our Senator's office and her health liason has gotten through to the FDA liason. I got an e-mail stating a GI doc from the FDA would be...

Our local clinic got rid of our CF nurse this past year. Does your clinic have an RN dedicated for your Cf clinic? Right now, they only have a Medical assistant but I am sure they have little minimal training about CF. Of course this is all due to financial constraints of the hospital. My...

So Maggie got sent to the nurse yesterday and today for belly aches..I think she is constipated not sick...Gave her prune juice yesterday and Miralax this am...She got sent to the nurse today(she pooped a little before school and moderate at school) Maggie was acting like she wanted to come...