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So I got an email from our local CF chapter in Maine and Dunkin Donuts has donated 2000 VIP travel mugs to the chapter.  For a $20 donation to the CF Foundation you get a Dunkin Donuts travel mug and can bring the mug to any Dunkin Donuts in Maine on SUNDAY and get your mug filled with FREE...

Thought you would appreciate this one.  We went to a local pub the other night for dinner.  I usually put My daughter's enzyme bottle on the table.  Apparently I left the bottle on the table and we left.   Not realizing this, of course, for a few days then took my daughter to a show; to have...

I tried to get Control 3 cleaning solution for my daughter's neb just in case for travel and at CF Services you need a prescription for it?  Seems like silly thing to bother my daughter's CF doc for him to call in a script.  Any place online to get it that you DON"T need a script, that is...

Wondering how to clean nebs on RV vacation.  At home we boil and when we travel we usually boil too.  Just  thinking about water supply and cleanliness of water.  I have some disposable nebs, a couple inhalers, but will still need to use Pari nebs too.  Would you use Control 3 solution?  Ideas?

My son without Cf has to do a paper for science class about a genetic disease.  He picked CF.  He already knows ALOT about CF but I have kept certain things about CF like life expectancy, lung transplant, on the "down low". He has already started research on the project at school , so he likely...

For Mother's day I really wanted to have a regular day.  Coffee made by the kids, a card.   My son(no CF) is on a travel soccer team.  It is VERY hard for us to go to his away games all as a family because of the hour and a half drive BOTH ways and 2-3 hours of game time....We just can not fit...

Likes to cuddle with my daughter's VEST!  My boxer likes to lie next to her vest, lately she rest her head on the top of it like a head rest, very cute!  BUt very weird!!  My elderly cat also likes to lie on my daughter while the VEST is vibrating, must feel like a purring momma cat.  

Seems like I am full of questions... I brought my daughter back to clinic today; we have been going monthly for one reason or another. Daughter still not back to baseline in my opinion... She got a culture done again and the doc went through her nebs meds with me and suggested doing Pulmozyme...

So I finally looked into the Minnesota way of doing vest airway clearance. We had always just done one setting and then pause and cough. I started doing the Minnesota way, following their way for adjusting htz and pressure. The downside is it makes my daughter really itchy!. Is there benefit...

Just curious if you are always on antibiotics? My daughter is always on Bactrim once a day, but it can change depending on what she grows. So, she never has a break from antis..Just wondering if there are people with CF that aren't on anti's on a daily basis. This includes things like TOBI...

My daughter has had a tough winter respiratory wise this year. She seems to be almost back to baseline(knock wood), pending any cold she may pick up at school. A couple things I have done; which I think have made a difference(besides being on antibiotics constantly this winter): I pause her...

<a target=_blank class=ftalternatingbarlinklarge href="http://www.nytimes.com/2011/03/31/us/31intravenous.html?_r=1&hpw">http://www.nytimes.com/2011/03...ravenous.html?_r=1&hpw</a>

This winter has been tough for my daughter. She cultured pseudomonas first time in January did TOBI and Cipro to treat it then on her last day of Cipro she go the flu; ended back up on Cipro plus the TOBI and Zyvox. Repeat culture showed no pseudo; only staph areus and moderate yeast(after all...

So, I went to the $ store today and saw these rose pins, the kind you might wear on a jacket(like a pushpin). I bought all of them, thinking I could use them for our walk somehow. They were only 50 cents a piece! How much would you sell them at the walk? $2.00 a piece. Just give them away...

So I was thinking about the compressors we use for the nebs day in and day out. Something like the Pari is just not great for CF kids/adults who do back to back multiple nebs a day. We recently purchased a Mobilaire compressor which is SOOOOOO much better. It works faster and has not broken...

Just wondering how you all clean a flutter valve? The booklet says soap and water. Do you think boiling will melt it? Thanks!

<a target=_blank class=ftalternatingbarlinklarge href="http://www.medscape.com/viewarticle/738230?sssdmh=dm1.669927&src=nl_newsalert">http://www.medscape.com/viewar...69927&src=nl_newsalert</a>

For those of you whose child cultured Pseudomonas for the first time did you use IV Tobramycin to try to eradicate it? Maggie's followup goes like this: she was recultured IF her culture comes back no PA that is GREAT! If her culture comes back with PA we have the option of being admitted for...

Maggie has had a really bad virus; might have been the flu..She seems like she is getting better; still has 5 days left on cipro and zyvox, finished TOBI yesterday. She is coughing significantly less...Mostly only doing HTS and VEST(though she usually doesn;t cough while doing these when she is...

maggie's sick...Now I think the whole family is coming down with it. I am going to run to the store for supplies... My brain is fried and looking for ideas for things for kids and adults: My List Ginger ale chicken soup (saltier the better) sherbert jello popsicles botted H20 protein bars...