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Just wondering about ideas for drinks for children with this arsenic issue in juice. My daughter drinks alot of juice. I know it's not great for kids to drink alot of juice but with CF'ers needing to stay hydrated this is something my daughter does. She also drinks prune juice; anyone know if...

So, My daughter with CF is in 3rd grade and we do not have an official 504 plan set up. My daughter had a winter from H#ll being sick in 2nd grade and I don't want a repeat for 3rd grade.<br>My only request for her 504 would be for her to have a tutor in place if she is sick and absent for 3 or...

http://www.cff.org/aboutCFFoundation/NewsEvents/11-16-Genzyme-and-CFFT-to-Collaborate.cfm

My daughter gets spots on her bottom.  Looks like pimples; likely my opinion her staph on her skin.  Do you do anything for it?  She has one that is slightly bigger and "itchy" I have her soak in Epsom salts bath, usually seems to help; but she usually will only do it every other day.  Should I...

Maybe someone has some tips for me but I go to the grocery store every 2-3 days and buy $90-$100 of food a trip.  It's gotten to the point that even the people who work at the store must think I have some eating disorder and shopping addiction<img src="i/expressions/face-icon-small-smile.gif"...

This is the one bug she has caught; that  is ok by me.  My daughter is a reading fool.  While doing her endless nebs and VEST she has been reading books constantly for enjoyment.  Diary of Wimpy Kid, Little house on the Prairie.  39 Clues.  She loves series of books.  Loves the Diary ones.  This...

http://www.cff.org/aboutCFFoundation/NewsEvents/10-21-FDA-Recalls-Nostrilla-Nasal-Decongestant.cf

http://www.cff.org/aboutCFFoundation/NewsEvents/Vertex-Submits-VX-770-Application-to-FDA.cfm

I have been doing some reading about magnesium supplements and CF.  I do not think my daughter has ever had her magnesium level checked.  She has been on Albuterol for years, which can deplete your body of magnesium.. I was thinking of bringing up this issue with her nutritonist; to get her...

Just feeling a little down today.  My daughter has had a cough since 1st week of August; we've done some Bactrim; then went to some Duricef, 9 days into that she was wheezing this morning.  <div><br></div><div>I called and I am bringing her in for PFT's, culture, and doc to listen to her...The...

Funny how little things make you happy.  My daughter drinks G2 especially after gym or recess at school.  It always was terrible colors, looked like she was drinking anti-freeze.  I just saw at the supermarket, G2 with no artificial colors! yeah!  The teachers like it so much better cause if it...

Still no word on FDA approval on Pancrecarb enzyme.  It truly is the enzyme that works for my daughter.  I called Digestive Care Inc, and they still have not gotten approval.  It would be helpful for those who want this enzyme to make their voice heard.  I gave them my name and phone #; let them...

I love Green Day.  They are also my son's favorite band.  I love them even more now that they support the Cystic Fibrosis Foundation.  Wish I could have gone to this show they did to fundraise for CF.  Hopefully it'll copy...

So Maggie has been complaining of a sore throat; tickle in her throat, does look a little red inside. Started last week; no fever.  appetite good.  SHe's tired cause she woke up early from her cough; you can hear she has extra mucus on board.  Any how; I called her CF doc and asked to double up...

Just finished the book Sister.  Had alot of CF genetics as part of the storyline.  I found it VERY interesting.  The story is about a sister that dies while involved in a medical trial and her sister's quest at finding out the truth about her death.<div><br></div><div>Wondering if anyone read...

I have not yet changed/checked  the filter on my daughter's compressor, the Mobilaire.  How often do you change the filter.  the instructions say to wash it with soapy water and let air dry.  What do you all do and where the heck is the filter on the machine anyway?  TIA

Well, we got back yesterday from going pretty much across country, flew by plane to CA then drove in an RV for 9 days with hubby son and daughter with CF.  It was amazing!!!!!!  I feel so lucky we were able to do this vacation; I can't really express it in words; but you all understand.  We...

Maggie and her big brother and Maggie's friend had a lemonade stand yesterday.  They made $47 for the CF Foundation in 2 hours!  People were being so generous and the kids had a great time! I had to force them to stop.  <div><br></div><div>Next hot day we'll be out there again to sell lemonade...

We are getting ready for an RV vacation. Flying first then renting an RV and traveling.  <div><br></div><div>Any advice on traveling in an RV with a CF child.</div><div><br></div><div>Feeling a little overwhelmed with getting organized and packed.</div><div><br></div><div>I have disposable nebs...

So, the air quality is bad today.  THinking of lists of things to do to"summerize" for better air to make summer easier for those with CF.<div><br></div><div>Things I have thought of:</div><div><br></div><div>Cleaning air filters in the house/bathroom.</div><div><br></div><div>Cleaning air...