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Hope I can post this. You can get an Amazon gift card for the survey. If you say I referred you so will I. I cam PM my info.
Thanks for being a member of Rare Patient Voice. We have been asked to invite Cystic Fibrosis patients in the United Kingdom to participate in a survey. Most of...
What is the best way to handwash our dishes that won't get bacteria etc for our CF'er. Could I use some bleach is the sink with soapy water and rinse after of course? I won't have the dishwasher fixed for a few days and I am not wanting my daughter to get any wierd bacteria from handwashing...
I was going to give my daughter her antibiotic, which is a big white pill. I get them in 90 day supply. I found at the bottom of the bottle a pink pill that I had no idea what it was. Called the pharmacy and they identified it as a mood stabilizer. It was in with a child's antibiotic. I am...
Heading in tomorrow for GI clean out; NGT with golytely. Been a long time since last admit; 9 years:)...I am very tired. Refresh me of good things to bring...VEST enzymes, computer, Clorox wipes? Daughter is going in healthy lung wise; it's just this stupid constipation...Want her to come out...
Would you drink Barium if you were getting a Abdominal cat scan? I am not in favor of it, it is very constipating and this is the issue. The radiologist wants my daughter to drink it
Looking for some input. I feel like I am having a hard time getting my child with CF's GI system back on track. It's a long story but if you have time I'll give the background.
Daughter is very pancreatic insufficient. She injured herself this summer which limits her mobility...Meaning she...
My daughter 11 with CF has been complaining of daily headaches, starting about 1 and half weeks ago. No other symptoms.. She is relatively healthy right now; no cold symptoms or illness. She has been irritable; not sure if it is because the headaches or vice versa. She does have nasal...
Looking for some info about Houston TX and how things are in the hot humid climate. My daughter is 11 with CF; would be middle school..We are thinking about a relocation which is job related. Lots of questions.
1. are the schools air conditioned?
2. who is a good CF doc at the Baylor CF...
So, both my daughter and I got the same virus at the same time. High fever x 2 days, cough. Mine is actually worse than my CF daughter's at this point. Her's is slightly above baseline with some mild wheezing(we have a routine appointment next week, hoping she makes it until then)
Anyway...
What are some easy quick healthy things you make when your CF child is sick? We're on yet another illness; seems like every 2 weeks....Burnout is looming for me. Cooking can be a pain but of course necessary to keep my CF child fed as well as an every hungry family. Tonight is pancakes. We...
Just found a new product since we've all been sick in our family this week. It's a probiotic tea from Bigelow lemon ginger flavored. It is very yummy. My daughter with CF loves it. Just wondering if it's a gimmick; figure it can't hurt anything; we usually drink tea anyway with sore throats...
As a nurse myself; I always wipe down my stethoscope, but honesty did not prior to having my CF daughter.
http://www.npr.org/blogs/health/2014/02/27/283439909/stethoscopes-do-as-much-dirty-work-as-hands-in-spreading-germs
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