Cystic Fibrosis Forum (EXP)

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  1. L

    3659delC

    <span style="font-family: tahoma, arial, helvetica, sans-serif; font-size: small; color: #3366ff;">thanks for the site alegris! i will check it out<img title="Wink" src="/include/wysiwyg/tinymce/jscripts/tiny_mce/plugins/emotions/img/smiley-wink.gif" alt="Wink" border="0" />
  2. L

    Welcome Ambry Genetics

    <span style="font-family: tahoma, arial, helvetica, sans-serif; font-size: small; color: #3366ff;">i am not at all familiar w/ the different genetic mutations and what they mean... </span><span style="font-family: tahoma, arial, helvetica, sans-serif; font-size: small; color: #3366ff;">i have...
  3. L

    3659delC

    <span style="color: #3366ff; font-family: tahoma, arial, helvetica, sans-serif; font-size: small;">thank you so much! i'll check into it :-)
  4. L

    3659delC

    <span style="color: #3366ff; font-family: tahoma, arial, helvetica, sans-serif; font-size: small;">thank you so much! i'll check into it :-)
  5. L

    3659delC

    <span style="font-family: tahoma, arial, helvetica, sans-serif; font-size: small; color: #3366ff;">In addition to F508del, I have 3659delC. I'm curious if anyone else has this second mutation? I have no idea what it means for me, but I know that I have yet to see any members of this forum site...
  6. L

    3659delC

    <span style="font-family: tahoma, arial, helvetica, sans-serif; font-size: small; color: #3366ff;">In addition to F508del, I have 3659delC. I'm curious if anyone else has this second mutation? I have no idea what it means for me, but I know that I have yet to see any members of this forum site...
  7. L

    I was chosen as a finalist for a contest

    voted for you! good luck!!
  8. L

    I was chosen as a finalist for a contest

    voted for you! good luck!!
  9. L

    Generic Hyper-Sal

    i'm not sure if this has been said as i've not yet read the entire thread, but i receive my hyper-tonic saline free thru Foundation Care for getting the Creon filled thru them. might want to check into it?
  10. L

    Bronchoscopy info please

    i don't mean to be negative and scare you, but i did NOT have a good experience w/ my first (ever) bronch last July! however, i cannot say whether it was the bronch itself or maybe a combination of many things as that was just a horrible hospital admission PERIOD... i was fully sedated during...
  11. L

    Bronchoscopy info please

    i don't mean to be negative and scare you, but i did NOT have a good experience w/ my first (ever) bronch last July! however, i cannot say whether it was the bronch itself or maybe a combination of many things as that was just a horrible hospital admission PERIOD... i was fully sedated during...
  12. L

    AquaDEK

    i have used both SourceCF and AquaADEKs and didn't notice a difference, really. the only reason i switched is because i couldn't get the SourceCF thru insurance and the AquaADEKs you can order online w/ no prescription and not too awful expensive...
  13. L

    AquaDEK

    i have used both SourceCF and AquaADEKs and didn't notice a difference, really. the only reason i switched is because i couldn't get the SourceCF thru insurance and the AquaADEKs you can order online w/ no prescription and not too awful expensive...
  14. L

    Genotype

    i was diagnosed at birth but just now found out thru my records what my genotype is: F508 and 3659 delC??? i wish i knew what that meant LOL
  15. L

    Genotype

    i was diagnosed at birth but just now found out thru my records what my genotype is: F508 and 3659 delC??? i wish i knew what that meant LOL
  16. L

    Need help, at a loss

    <font size="2">i'd absolutely find a new doctor and/or CF center! i cannot imagine having a doctor who doesn't listen to me and, what's more, call me a hypochondriac ... that's <span style="font-weight: bold; font-style: italic; text-decoration: underline;">INSANE!!! <br></font>
  17. L

    Need help, at a loss

    <font size="2">i'd absolutely find a new doctor and/or CF center! i cannot imagine having a doctor who doesn't listen to me and, what's more, call me a hypochondriac ... that's <span style="font-weight: bold; font-style: italic; text-decoration: underline;">INSANE!!! <br></font>
  18. L

    please help

    <font face="georgia" color="#0066ff">i am also entering the same boat many of you have stated you're in or have been in ... PICCs are getting harder to place (last one in November they used a "third choice vein") and they're starting to have issue w/ clotting very easily! i have been kicking...
  19. L

    please help

    <font face="georgia" color="#0066ff">i am also entering the same boat many of you have stated you're in or have been in ... PICCs are getting harder to place (last one in November they used a "third choice vein") and they're starting to have issue w/ clotting very easily! i have been kicking...
  20. L

    Nervous

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>BelEAche</b></i>I would rather have my health & be able to work any day !</end quote> <br><font face="georgia" color="#0033ff">absolutely! i feel the same way :-)</font>
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