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Please be very careful with (or avoid) inhaled natural remedies. I stumbled on this blog that has some stories about nebulized oils leading to lipoid pneumonia which caused loss of lung function and death. http://abreathofreason.com/2014/08/26/essential-oils-long-on-history-short-on-evidence/...

Until the test comes back, I don't have much to offer but support. Are they doing sweat tests or genetic tests?

My brothers were a big support to me but I didn't realize it at the time. I also had a friend in middle school who had diabetes and we were able to be 'defective' together without the risk of cross infection. Seeing my friend monitor his blood and take insulin helped me see that I wasn't the...

A decent percentage of folks with CF also suffer with reflux. Do you have any other symptoms? Do you happen to know your mom's CF mutations? Seems like any child of a CF patient should be in running for a test. Maybe it is time to find a second Doctor to look at you.

You are probably right. Any body mass gain is difficult for me. It has taken me a decade to get to a reasonable adult weight (and a lot of that isn't muscle). I have a friend w/out CF or other obvious health issues; at 6'1" and 145lbs he complains that lifting weights and eating tons doesn't...

Losing fat would be, except many of us don't have enough fat to lose.

Found the link to Tyson's quote: https://twitter.com/neiltyson/status/208063372200128512

Neil Degrass Tyson has a quote that says something to the affect that when alternative medicines are studied and proven effective they are no longer called alternative medicine they are just called medicine. I like that the CFF has studied some alternatives (like salt spray and high calorie...

Migraines are a tough nut to crack. IVs being a trigger seems reasonable to me. Tobi is not tolerated by some people for many reasons. Also, I tend to get them more when I'm not feeling well (like that is when I need them). My mom gets them and likes to take a pain killer with caffeine (like...

Are you staying hydrated? I’ve heard it is hard to do properly (with the correct water to electrolyte balance) when on IVs sometimes. Dehydration is one of my migraine triggers.

Salty air (like spending a day right on/near the ocean) was a natural therapy that was studied and found effective. The general therapy (inhaling salt sprayed air) was converted to a nebulized treatment for those of us who couldn't get to the beach (hypertonic saline). Percussive airway...

I've only been to Florida twice, once for work and once for vacation. I liked my vacation there better than my work there :D. But both times I felt good health wise. It would awesome to live near a beach and be able to chill or surf or whatever in the salty air whenever you wanted. Anyway just...

I think you would do better health wise in a professional care setting than what you would do on your own. Even the most dedicated exercisers like to use coaches and friends to stay motivated especially during the start of a new program. 3 times a week is a pretty ambitious start for a new...

Stomach acid dissolves/destroys enzymes so the Px enzymes (like Creon) are enteric coated to survive the stomach. Then when they reach the intestines the acids are neutralized by a basic solution your body secretes. This same basic solution dissolves the enteric coating of the Px enzymes and...

Here is a post that is very similar to yours. http://forum.cysticfibrosis.com/threads/127915-First-Tune-Up I've yet to have IVs, but my brother's have. One had his first two rounds durning a rough patch in his mid-twenties. That was 4 years ago and he has not needed another round of IVs...

@CFJeff, apparently you did your homework and living as married works well for you. But to claim this as an universal truth or even an optimal choice for everyone is assuming that your situation is universal. It isn't. For me to offer an alternative isn't an attack on your choice, but an...

@beliveing re:intransigent RT: My clinic is attached to a teaching university, and so I get lots of turn over in the nutritionist/social work/pharmacy/nursing specialties. Sometimes these 'kids' need a little bit of discussion on the fact that I'm an adult, I've got 30+ years experience with...

This is a misinterpretation of what was said. A person isn’t going to cover all of his health cost with tax savings, but a person sitting on the bubble of affordability would surely like to look into any tax saving he/she might get. For me personally, my health care coverage is +$150/month...

As stated above you will have a Medicare/Medicaid impact to getting married. But there can be tax benefits to being married, typically when one partner makes considerably more money than the other. I suppose the benefits are more helpful to people in a higher tax bracket. As you figure out your...

LL from your tests, what was the natural frequency range of phlegm? How does that compare to the natural frequency of the lungs?