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To answer your question better, I should ask, is there anything in particular you are scared about? What aspects of the disease cause you the most concern or would be more challenging for you to face?

The concern your family has is well placed and having your eyes wide open and a dose of realism is a very good thing when dating. Before you get real serious you need spend some time in introspection deciding if you are up for the challenges that CF will throw at you. I know this was something...

From accounts I've read on oils and cannabis in general, people with CF should avoid administration of alternate medicines that involve inhaling. There are some sad stories of CF people nebulizing oils and giving themselves lipoid pneumonia.

@Jersygirl; From what I remember the chances of getting pregnant with 2 verses 1 blastocyst isn't much better (maybe 50% vs 60%). I love my twins, but the pregnancy was super hard on my (otherwise) healthy wife. And we were just sleep deprived zombies for the first 3-4 months after their birth...

Student loans can be used for housing, food, and transportation costs and unfortunately student loans aren't an uncommon part of getting an education. Try to get by on Federal student loans and avoid private student loans. Also make sure you budget such that you don't take more federal student...

Agreed Shay, if the mesh bag(s) didn't dry or you couldn't find a few anchor points to tie a dry line then it just doesn't work. The humidity in my area is low, so I'm used to everything drying rather quick. Drying is definitely an important part of any disinfectant scheme.

At the very least, you could get a mesh bag to hang them in to dry. Then you could hang it somewhere out of the way, like hanging from the TV stand or the curtain rod. A little rope or shoe lace and a review of knots might be needed. A camping store generally carries mesh bags used for hanging...

I was just thinking we stumbled on a million dollar idea; decorative hospital masks. Then I googled it and realized there are a million already to choose from. Anyway, I found a couple for me...

My local hospital's spirometer is the same for me as the CF Clinic's spirometer (I use nose plugs for either location). Is the liter value of your PFT different or just the % value? I was under the impression that the % has more variability in the calculations than the liter measurements. That...

I got a letter from my clinic a few weeks back that requested that any patient that is culturing something is strongly encourage to wear a mask to protect others. And those who weren't culturing should wear a mask to protect themselves. They explained it as a new effort at infection control. I...

Sounds a like an asthma attack. Talk to your Dr. and maybe start carrying around a metered dose inhaler (MDI) of albuterol.

Sorry I didn't equate DOR with rehab counseling. Acronym miss on my part:eek: Wishing you the best of luck getting it figured out.

In many ways this is a scary disease, but you do have treatment options and it seems like those with adult diagnosis typically have less aggressive CF symptoms and better outcomes. There are times that I have anger at CF. Dealing with a chronic disease is a little bit like dealing with any...

I don't know why I didn't think of this sooner, but have you considered discussing your situation with a state funded rehabilitation counselor? My wife's college courses covered Vocational Rehab Counseling a bit, and even discussed how to help CF patients transition to a more suitable career as...

I agree with you that waiting tables is a difficult job for people with CF, especially long term. I think you are very wise in getting more education and trying to find a job that will better suit you (and hopefully come with health benefits and paid days off). One thing to look at when getting...

I too am sorry you are facing such a hard challenge. This is very tough. The consequence of this choice are shared by all three of you (Mom, CF-er, and little sister). From a patient side, I want my loved one to know that I understand that my treatment choices affects how they experience...

A couple years ago my Dr recommended increased Vit D supplements to try increase my blood levels from 25 up to the recommended. So I have increased my supplements but had very limited improvements. My last blood work was done in August and my Vit D levels were at 26 (I suppose any increase is...

Did the doctors/dietician explain to the side effects of too many enzymes? I've often wondered this myself mostly because my bad guts always seem like the results of not taking enough enzymes.

I wonder how much more affordable life would be without fraud and dishonesty. Shoplifting, falsely used credit card numbers, security fraud, unreported taxes, Medicare/health care fraud, and the price to police it all end up costing those that are willing to be honest. Sometimes it doesn't...

Two ways to cover your tracks when you mis-post: The first method is to hit the "edit post" function (which is located in the bottom right hand corner of your post) and delete all your words and replace with some verbiage like "mis-post" or "sorry, wrong thread," or "didn't really mean to...