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When I was younger I was underweight so getting any calories inside of me was better than nothing. Now my weight is managed so I worry more about controlling indigestion and getting nutritional density/variety. As weight became less of an issue, I cut out the less healthy things first and have...

I ask myself this question at times but slightly modified "what will lead me to do my first course of IV antibiotics". Getting to my age without needing them is a great testament to the treatments that have been developed (Tobi, Pulmozyme, HyperSal, Vest, etc) and the wonders of our medical...

Thanks for the advice everyone. To answer some questions, the tiredness seems most pronounced when I'm sitting (or lying) down. I've started to stand up in the back of a room during meetings and doing so keeps me awake. Stand up desks are getting popular in my cubefarm so maybe I'll request...

I've got a Phillips Respironics Inspiration that has worked well for me going on 3 years. I had a Vios for a couple weeks but got a lemon, so I traded it back for the Phillips. The Respironics is a bit bulky and I wouldn't call it quiet, but I still have taken it when traveling, including a...

I've had nights with coughing fits that haven't turned into much more. Sometimes things move when you are in a lying down position. I'm not sure what turns a normal cough into a 'fit'. But watch his cough closely (as I'm sure you always do). After a weekend you should know if this was just an...

LL, your thoughts on the endocrine systems are interesting. I've actually picked up 5-10 pounds in the last quarter. My wife has been asking me if my shirts have been shrinking, as the weight is all my gut, not my shoulders/arms where I want it. So I wonder if decreased testosterone would do...

The live blogger at The Street seemed to not think much of the patient advocate. But my Dr wasn't super excited about the combo when I asked about it after the Phase 2 studies a couple years back. I think my Doc was disappointed in the pricing of Kalydeco and expressed that if the combo was...

I've had a problem with dozing off at work (and church and home) lately. Fortunetly I've been doing CAD at work, my co-workers and boss seem to not notice, and I've been able to stay late to make up the work missed during my naps. But it is getting frustrating. My cough hasn't increase, my last...

Now we wait until July 5th. "I hate waiting." https://www.youtube.com/watch?v=y0Y7ScfaVHs

Oh, and I too am sorry you are dealing with such a bad hand. Hopefully you can find some medical professionals that know their stuff and can really help you out.

Prescriptions for Tobi (inhaled), Cayston (inhaled), and Zithromax (oral) are all common antibiotics used to help control pseudo for CF folks. I've also used a round (14 days) of oral Cipro or oral Augmentin to keep minor colds from becoming flare-ups. For major flare-ups (or exacerbations)...

1.) A good percentage of Cf-ers have some sort of bacterial colony (Pseudo, Staph, MRSA, etc.). Fungal colonies aren't as common, but not rare either. It is possible to steer completely clear of colonization but I suppose it to be rare. That being said just because a person is colonized doesn't...

Thanks for the reminder. Just wondering, how many times can I use the word "darn" before I get banned? (NOSEPICK)

^This is the risk you will have no matter who you end up loving in life (including your children, parents, and friends). Love means taking the risk that you will watch that person pass on (half the members of any lifelong couple will experience this). Love means giving someone the power to hurt...

That was great, thanks for sharing.

Before I could swallow pills whole (pre-2nd grade), my mom would mix pills in my applesauce or put them in one corner of my sandwich. I know I chewed some because the thought of biting into an enzyme is a vivid memory that still makes me pucker. To this day I can't eat anything with sprinkles...

My parents had to deal with this. My parents seemed resigned to the fact that we would share bugs. And ultimately, my brothers and I ended up all culturing the same bugs. I'm glad my parents took that attitude and just let us be close and do all the typical brother stuff without great lectures...

Aboveall is right, having a water bottle at the ready helps me stay hydrated. My wife gets a little tired of me leaving my water bottle everywhere, but at least it isn't half full of old milk like my kid's sippy cups.

The difference between this therapy and therapies of the past is the delivery mechanism. In the past researchers had thought they could use a bacteria or virus to deliver the new DNA to the lung cells, which wasn't very efficient. Now they are trying nano-molecules which I suppose, as a man-made...

Sinus production/pressure/headache increase for me in the spring. Also sometimes pollen will hit me and just make me a little tight/asthmatic and wheezy. Claritin helps a bit with the sinus. Getting a shower shortly after I've spent any time outside working in the yard or garden also helps me...