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You sound a little depressed, which is a very normal and very common thing in the face of such a stressful life change and facing such a tough disease. Please get to a therapist to get professional treatment for your depression. Go find a support system that can help you talk out your problems...

The first big thing to look at for gaining weight when you have CF is how are you digesting things? Are you taking enough enzymes to do the job? Have you figured out which foods you can eat and digest? Once you get that figured out then start thinking about total calorie intake verses output...

I think that useless knowledge is only useless because it hasn't been learned well enough to be applied. A tool is no good, if you don't know what it does. Mathematics was a skill I mastered and it serves me in my occupation, my advocations, and in generally understanding the world. Oh how I...

No truer statement that this^. While I think that any two adults can make their own choice and live with the consequences of those choices (granted no two adults are an island and should still make smart choices), once you are a parent then you have to also consider the consequence your choices...

I've read a couple of articles about CF couples. One in the Reader’s Digest 15 years back. They met in the hospital in their early 20s and spent 1-2 years as a couple before each passed within a few months of each other. Another story of a CF couple was recently in the news, comparing them to...

Switches are a common failure point in many electronics (saws, blenders, lamps). It is frustrating that a couple hundred dollar machine is done in by a one dollar switch. But stuck in the 'on' position is the best way for it to go. If you have even a basic knowledge of electronics you could...

I don't care for pickles, but pass me the salt shaker at every meal. I've also heard of runners drinking pickle juice post workout but I prefer a bowl of cereal personally.

But if you game the trials to provide drug access, then what knowledge can a doctor and individual rely on to make an informed decision on what treatments would be best? Secondly, if the drug companies weren't 'gaming' the system by limiting the scope of the trial then these drugs wouldn't be...

Um... gaming the trials is not what we need at all. While I appreciate your enthusiasm to get these drugs available for all CF folks (and I image you are a bit tongue in cheek), the science, as slow and plodding as it may be at times, is there for our protection. Anecdotal just doesn't count in...

Anything high in fiber like beans, nuts, wheat bread, and everything with fat if I don't take my enzymes.

I went to a family reunion this weekend and listened to a discussion between my Aunt who is a school counselor, and my cousin's wife (whose 11 year old daughter has CF). One thing my cousin said is that her daughter was just getting exhausted by school and treatments. My Aunt suggested that her...

Often times we measure our workout intensity on the distance and speed of the run, the reps and mass of the weights, or the time and pain of a yoga session. But from what I've read the level of exercise (light, moderate, or intense) should be based off you heart rate and your perceived effort...

Massive heat in the tubing means that something is wrong and that you probably aren't getting the medicine delivery you need. A few thing to look at: 1) are your nebulizers or hoses blocked, crimped or plugged in a way that is making the pump work too hard, 2) is the pump in a tightly...

Also note, you are not allowed to thumbs up your own content, which is too bad because sometimes I really like my own posts :p

I've noticed this 'glitch' a few times and just wanted to explain how the oft misunderstood ‘thumbs up’ feature works on this forum. When you press the green "thumbs up" icon on a post the page will refresh and show a red "thumbs down". Know that you have not just 'thumbs down' someone. What...

For me 1 cookie needs an enzyme. I won't have huge GI problems if I miss pills for a small snack but I've learned that it means the snack was wasted (mal-adsorbed) (FART). Plus who eats just one?

This article helped motivate me to get out for a jog yesterday. I'd heard the theory before but hadn't seen the study. The longer I have this disease the more I realize I need to get out and do things that create airflow and mechanical movement (even if it makes me cough a little). That cough...

I had good health through H.S. so I'm not sure if many of my teachers even knew I had CF. I was an Aid for our Library one semester and the Librarian knew I had CF. She didn't understand the disease at all (not that I offered her much information) and treated me with kid's gloves. She would...

First answer, if they found no sperm during the test, you and your wife have been trying to have kids (no birth control) for 6-12 months, and with the 95%+ probability that a CF male has blocked or no vas deferens, you can be near certain that you are infertile. Sorry to say but retesting isn't...

When you stretch do you ever monitor your S02 or heart rate? If you heart rate is getting high (145+ bpm) or your S02 is getting low (below 85%) during your stretching routines (or any normal daily routines) then you might be putting your muscles in an anaerobic state. Anaerobic exercise leads...