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I would like to add a mid-day CPT. I know a lot of you guys do that; but, I get NO benefit from using my vest without a neb....I just feel there is no benefit to doing that. Those of you who do a mid-day CPT, do you do a neb with it and if so what. I am wondering if just doing sterile saline...

For those of you who use a nasal mask with your nebs, what meds do you like to use with it. I am going to ask about adding a mask to help with some sinus issues. I think I have heard some do pulmicort respules. I am thinking pulmozyme and HS would also help my sinuses. Any suggestions would be...

I am pretty organized about things; but, I need a better system for knowing when to refill a med. I have mail order and get a 3 months supply. I just look at the labels and call when I need to. That messes me up sometimes though. I forget to call or there are no refills and I need to get a new...

do any of you know what some of the great SUPER foods are for CF. I am going to try to hit the produce aisle more. I think blueberries and sweet potatoes probably make the list. Anything else you guys find particularly helpful.

I am a 41 yo dx'd at 2. My husband and I are considering homeschooling our 9 year old through middle school. She does not have CF; but, we don't live in a great school district and her private school middle school has recently closed. I have a master's degree with teacher certification and I get...

Are there ANY good care centers in the eastern part of KY. I can't travel far west where it seems that a lot of people go. Are there any good CF docs near Ashland that are maybe NOT part of a care center but part of a good medical facility.

I have a question about a couple of my siblings. I have a big family. My older brother who is a couple of years older than me never had children.....not for lack of opportunity<img src="i/expressions/face-icon-small-smile.gif" border="0"> He does have children that are his wife's from a previous...

I just received notice today that my local CF doc is leaving. I am just crushed and could not hold back the tears....I don't know how to do this one. I have been with him for about 3 years and he is the ONLY doctor who has ever bothered to educate me and get me going in the right direction. He...

I did an article for my CF center newsletter re: time management. I posted in my blog today if you all want to check it out and ADD to it if you like. A lot of the tips I have learned here. They are kind of common sense and practical. Anything to make our days easier......would love it if you...

OK....I need advise. I have been fighting a cold for about a week. You know...the crappy kind that starts out with a dry cough and then blah. I was not on anything inhaled or other. I have not taken Tobi for about 6 months. I was cycling it until I started AZLI and then decided to take Tobi out...

This Brazilian Model died of a general infection caused by PA. How on earth does that happen. I have never heard of this. I use to work in a hospital and you would hear of PA in someone's cath line or something....but, this is so drastic. Not CF related....so those of you who are a bit...

OK...I know this is vain...but, hey I am over 40 now and I need help. I had a rough day yesterday and I looked like I had a rough day. Do any of you have some good beauty secrets to use for those not so great days. I always find if I feel kind of fresh looking I don't feel as sick. For...

I have not had one of those classic CF tummy aches for years. You know the ones you get from too much fat! I use to get them all the time when I was younger until I went to a low fat diet when I met my husband. I was absolutely craving pot roast though....so made a fabulous dinner and enjoyed...

OK.....so over the last few years I have been taking some meds that are new to me for my CF care. I also had sinus surgery about 2 years ago. Anyway, I was lamenting the fact that I have lost a lot of my focus......seems to be more difficult to stay on task....not forget things.....complete a...

I am coming over from the adult section. I am writing an article for my center on time management with CF. I want to be sure and write tips from a caregiver's point of view. Would you parents mind sharing your best time management tips in the CF care routine. I know what I do as an adult; but...

I think this topic was covered at the CFRI conference. It has probably been discussed here before; but, do you all mind sharing your time saving tips. If any of you remember tips from the conference or where I can find that information, that would be great. I am writing an article for my center...

I just got a new order of Aquadeks a couple of days ago. It was difficult to get for a long time so I had been taking ADEKS. My energy level has been running kind of low lately with some depression and just kind of yucky feelings of not being interested in much. Anyway, when I started the...

I know many of you follow Tricia's story on the Confessions website. I was encouraged to read the update today and I know many of you have been praying for and thinking of her. So check it out today. I didn't know where to post this. Feel free to move it if you feel there is a more appropriate...

i don't really have anyone i can go to on this.....i thought this would be a good place. Am I being too sensitive? I have had some really good things happen in the last year and I keep a caringbridge site. Family and friends are connected to the site. We live far from home now and my siblings...

I may be trying Colistin at my next clinic visit. I have always hated Tobi. It makes me SOB and kicks my FEV1 arse. What can I expect with Colistin? Do any of you like it and what are some of the positives about it? I can take the Aztreanam Lysine just fine and it really helps me; but, I truly...