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Well....since friendly politics seems to be OK right now on the forum. I liked Lauren's post. I would also like to know what everyone's primary concern is in this election cycle? Just a couple of words.....no soap boxes<img src="i/expressions/face-icon-small-smile.gif" border="0"> What is your...

I would like to hear about any adult experiences with having this done. I know a lot of kids get it; but, i want to hear from any of you older cfers. Mine is mild; but, I am being told that if I ever want to consider a tx it will have to be fixed. The thinking is to fix it now when I am...

In case someone out there has missed it, Aztreanam Lysine is available for some who qualify through the expanded access program www.eapforcf.com and will continue according to a Gilead press release. It may be worth the drive if you qualify. I drive 3.5 hours both ways to get the stuff. The...

How do you guys keep track of ALL your medical records. I have them in an accordion file that I take to most doc visits. Mine are getting kind of complicated though with a few facilities involved that are not connected online. Have any of you ever used some of the new online services that give...

I am going to e-mail the bone specialist at the Cleveland Clinic. He gave me his e-mail address and told me to e-mail anytime with questions. I am very confused about the best treatment for osteoporosis and the right Vit. D and calcium to take. So if you all can think of any good questions to...

I know this question has been discussed many times......but, gotta ask again. I am really interested in trying high doses of Ibuprofen for inflamation. I know you have to be very careful and I know I have to work closely with my doc. I just notice such a HUGE difference in my exercise tolerance...

I recently read that thin females with CF have a much poorer prognosis than a typical CFer. I know there are many on this site who hate the idea of a pump. It is the BEST way aside from an artificial pancrease to regulate insulin through the day without all those highs and lows and to help you...

I know a lot of you have an asthma component to your CF. How do you make decisions about when to do IV's based on your FEV1. I am kind of new to the whole IV process. My FEV1 seems to fluctuate by about 5-8% points in both directions. For example, a few weeks ago I was down about 8% and wanted...

If I qualify for medicare under SSDI......what does carrying medicare as a secondary payer cover. We don't meet any low income guidelines and my husband's company would remain my primary insurance. What exactly does medicare pay for when they are secondary? I am curious whether they pay some of...

I can tell if my blood sugar is running high based on my oxygen saturation. Do any of you understand why this is true and what the correlation is and have any of you noticed this. My O2 saturation is always a couple of points lower if my BS is over about 160 or so. Any time I check my saturation...

I'm not talking about the show that followed Electric Company on PBS for you older CFers<img src="i/expressions/face-icon-small-smile.gif" border="0"> Have any of you had Zoom done for teeth whitening. My husband had it done and it looks great. I would like to have it done; but, don't want to...

I am just putting meds in a small cooler with a couple of ice bricks and then putting back in the fridge for when they turn the power off. Is that OK....will it be cold enough without freezing them??? I put pulmozyme and Tobi in a drawer in the fridge with an ice brick. Tell me that should be...

A couple of our power lines went down in our backyard last night. We didn't lose power; but, the electric company wanted to cut it all night and come out in the morning and fix it.....yikes!!! A CFers worst nightmare. We talked them into not doing it that way. My thoughts immediately went to how...

I gave my doc all the e-flow information...brought the e-flow in to show him. He has obviously seen it before; but, they don't have one floating around the clinic. He still didn't like the low number size in the studies....also a big concern I had. He said he'd be fine with me trying it next...

I had PFT's done today....they were low for me....down from the ones I did 4 weeks ago. We have a plan of attack though and we are on the same page. Normally I would be SUPER freaked out...look for reasons why it was happening....just bumbed out and freaked in general. I wasn't at all today. I...

I filed for SSDI around March. I had to take care of some tax paperwork and they just received completed information from me in early May...around May 6th. I have called them a couple of times and they have assured me that they have everything they need. How long does it take for them to make a...

I use an o2 concentrator at night. I have had it about 2 years. My monthly payments are pretty minimal and insurance covers the rest. I also have a pulse ox that had the same set up and then when rental got to the purchase price I then owned the piece of equipment. I just got an explanation of...

I just wanted to share this.....especially for some of you younger CFers who are just now starting to handle some of these issues on your own. I wanted a 2nd opinion during the winter. I wanted to go to a bigger center about 3 hours from my home with a very experienced adult staff. I did not...

My doctor has suggested that I take Ergocalciferol, a presciption vitamin D supplement. My D is in a low normal range and they like it a bit higher. That was also at the end of last summer when it should have been higher due to the sun. Have any of you ever taken this supplement? I was wondering...

I posted this in the adult forum as well. Have any of you parents served on the education committee? My doc wants to nominate me; but, I don't want to get into something and then find out is more work than I bargained for. I think we have all done that<img...