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Does anyone know anything about serving on this committee? My doc wants to nominate me....I don't know much about what would be involved. From what I gather...there are a few conference calls a year to review educational literature for the foundation. If anyone knows anything, please post. I...

I just wanted to post this to remind everyone to look for unusual side effects with all the meds we seem to be on at any given time. I know we all know this; but, it doesn't hurt to be reminded. What is difficult is that some of us have a high tolerance for being "annoyed" and may ignore some of...

I was just wondering how annoyed everyone gets by their coughing. I often get comments about how little I cough from CF moms and others. If I am being compliant with meds, my cough is very rare and I don't feel congested. I do cough on purpose during PT; but, not much else during the day. The...

I had a clinic visit to set up IV's. My PFT's have been low for a couple of weeks. I went in last week to do PFT's to plan for this week. My doc was out of town so I didn't even get the results cuz I wanted a care-free weekend and didn't want to think about starting the summer on IV's. I even...

I hope you all take care of your bones; but, especially you younger CFers who are still building bones and contributing to their strength for future years. Here is an article about good "bone foods". Eating good foods is a great place to start. <a target=_blank class=ftalternatingbarlinklarge...

I have to lose 5 pounds. First time ever in my whole life that a doc has told me to lose weight. So weird for me. I'm gonna do veggies and fruit over the summer. Darn CF hunger cravings. I had to go in for PFT's to see if a tune-up might be in order. Well I wait a 1/2 an hour at my clinic to...

This is an article about a 57 yo woman who was dx'd with CF at the age of 17. I like her attitude. <a target=_blank class=ftalternatingbarlinklarge href="http://www.freep.com/apps/pbcs.dll/article?AID=/20080527/FEATURES07/805270367">http://www.freep.com/apps/pbcs...7/FEATURES07/805270367</a>

I need a new compressor and fast. I have had pro-neb ulta a couple of times and they crap out so easily. Please recommend something for me. How good is the devil bliss?? and how easy is it to get. Is it the right molecule size for Tobi and Pulmo and do you use the pari LC plus nebulizers with...

I have a good friend who grew up in the same city as I did. We met through a website since I now live in another state. We had a small fundraiser for her on my 40th birthday. Some of you may remember my chocolate champagne 40th. She has been listed since about October and had a really tough time...

I found a new love a couple of years ago. I like to garden. I love how relaxing it is and I've gotten pretty good at it. I have become paranoid though cuz about a year ago I grew a new bacteria and read something about it that says it is found in dirt among other things, ughh. I don't want to...

I never really knew CFers had problems with their gallbladder. I am not having any problems. I was just wondering how you all knew you were having stones or knew that you needed it removed? I am just curious. For those of you who have had a tx, was it recommended that you get it removed? Also, I...

Here is the link to the article I did an interview for. <a target=_blank class=ftalternatingbarlinklarge href="http://dailymail.com/Life/200805160203 ">http://dailymail.com/Life/200805160203 </a>The pic of my husband and I is dorky....for the record, he does not usually kneel next to me while I...

I hesitate in posting this; but, I also know this forum is open to discussion and can be friendly and sometimes have helped me see things from a different perspective. Some of you know that I have needed to consider changing my career choice. I went to school for about 6 years to become a speech...

I just did my first newspaper interview! Getting the word out about the walk and CF awareness. They took pictures of me playing the flute<img src="i/expressions/face-icon-small-smile.gif" border="0"> I'll post it when it goes out. It was kind of fun. Karen

My husband and I are setting up our will. We want to leave money to a good CF charity. I am not really interested in the CFF because I think they get plenty of attention and money. Don't get me wrong, I love what they do. I am just more concerned about families trying to pay for a lung...

My husband wants to travel to Denver in June. I have never traveled with the vest. I have always taken my flutter. Well, I don't have that "lung function" luxury anymore. I have a small portable vest with a travel case; but, how the heck to you take it on the plane. I sure as heck am not going...

I am sure this topic has been talked about many times before.....I could only find it in reference to peds though. I may have to do an impedance PHprobe, do any of you know much about this. I know what a regular Bravo and Phprobe is, I am not familiar with the impedance part of it. Have any of...

I know all the logic with this question; but, sometimes my mind doesn't want to be logical. How do you keep from second guessing everything you do? When you have a "less than desirable" FEV1 you feel like every decision you make and every move you make is so dang important. Here are some of my...

I say this with "kid gloves". I am confused as to why people choose centers that don't have a "good" wait time. It is really hard to see some of the CFers suffering out there for months and months with no end in sight and others get transplanted within a couple of months at the bigger centers...

My husband was looking through a news website this morning and found this article. I said "oh is her name Emily". Yeah Emily! <a target=_blank class=ftalternatingbarlinklarge...