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hi, everyone. so, i was put on 50 mg of prednisone yesterday for 5 days and then down to 20 for another 5. well, i did 40 yesterday (just to make sure it didn't effect me different than usual) and all night and into today i have a horrible horrible headache and no dosage of tylenol will touch...

Hello, So, with the recent bleed and decline in FEV1 (by about 5% in as many weeks), I'm starting to think it may be IV abx time again. Here's how my last year has gone fyi: IV abx from November until December for 5.5 weeks (just not getting better until that time... plus, they didn't take a...

awesome (insert LOTS of sarcasm here): <a target=_blank class=ftalternatingbarlinklarge...

Hello! OK, so I'm finally back on (though not very often I'll admit) after about 6 weeks of IV abx and a real headache of an infection with LOTS of "issues". But I digress.... My question is this: My DH and I are talking seriously about just getting a home treadmill and gym equipment so we...

hello, yesterday and into the early evening, my O2 sats started dropping like crazy and it became extremely difficult to breathe comfortably. i slept about 1 hour when i finally fell asleep this morning at 10 am after feeling tight and itching all night (the insomnia may have more to do with...

Hey, Just wondering how often you are Rx'd prednisone? How the doc determines its time for prednisone? Is it used in conjuction with, before, or after abx. and what dosage/frequency? I've just started it tonight and its rare they put me on it, but he said I sounded "awful" with wheezing today...

Hello. I've been on 750 mg of cipro twice daily now for about 13 days in conjuction with my IV meds. They recently stopped my IV meds cause I'm having some serious allergic/adverse reactions (tinnitus from amikacin and sob and wheezing from ceftaz - maybe). Anyway, they are keeping me on the...

Hi, everyone. So, I'm going on my third week of meds and overall my cough has improved, appetite is coming back, energy would be back if I'd get my behind off the couch (ha!), etc. However, I notice I still cough up the icky green crap when I do huff coughs or laugh. Usually, for me, I get...

Hello, MY CF clinic told me recently they are running out of meds to treat me (I.V.) since I'm allergic to so many things that I'm still sensitive to. I remember a few years back at another center, my nurse mentioned "desensitizing" (I think that's what it was called, but there is probably a...

Just an FYI: I was getting switched to aztreonam for my home health IV meds and was notified today that its on nationwide backorder and I can't get it. Wow. Never thought something like this would happen in America. Nevertheless, apparently my home health agency has checked all their...

Hey, everyone. I always seem to have so many inquiries when I'm on abx... Sorry! LOL.... Guess I just get inquisitive and nothing better to do than ask my best and most knowledable buddies what ya'll think! Anyway, just curious how long it usually takes you to feel better once you've start IV...

Hey, me again... So, I am on my second day of abx I.V. merrem and ceftaz combo. On the very first night, I ended up having severe chills and achy all over. My joints hurt really badly. The next day, the chills were gone, but I still felt achy and my ankles really hurt. Strange. Today...

Hey, So, I'm only on second day of IV meds and I'm already having diahrrea... grrr... its rare I get it, even when on meds, but apparently this is my time. Anyway, a couple things: I know its a "natural" reaction to being on such strong abx and is a usual side effect. I also know they say...

Hello, So, with my increased need for O2 lately, it got me thinking of some questions. For those one home O2 therapy, please share: 1. Are you on O2? If so, what is your FEV1? Does your FEV1 seem to change when your O2 therapy needs (i.e. O2 sats) change? 2. If on O2 therapy, when do you...

Hi, everyone. So, I've been having issues lately with my O2 sats dropping. I'm normally around 97% at room air, but lately have been dipping to around 92% or so. I do have supplemental O2 at home that I can use, but I often do not unless I really feel SOB. Anyway, my rather odd question is...

hello! so we just got notice we're moving back to san antonio on military orders... we're excited! when we lived there before, i was seen at willford hall medical center at lackland AFB. just curious whether anyone goes there now and what they think of it? i imagine its a few new docs/nurses...

Urgh! So I've been weightlifting heavier weights lately at the gym.. pushing myself a bit harder. I've also been keeping up with my jogging every other day. I've noticed lately I've been a bit more sob than usual, but I attribute that to the dust and wind storms here in southern nevada...

URGH!!! So, its 2:45 am and I was doing my late-night meds and after the first med my PARI compressor crapped out on me! Its been getting consistantly louder so I already have the return authorization number from PARI to send it in (called them Friday), but I was hoping it would last until...

Hello, everyone. I'm currently averaging about two 3-4 week clean-outs per year and always go to IR to have a PICC placed cause I flip out when they "try" to get a PICC placed the usual way. Anyway, I've been lifting weights lately and find my arms are getting bigger and more to the shape I...

Hey, everyone. Just wondering how Ratatosk is doing with the flooding in NoDak? Also, anyone else living in or around Fargo.... Any updates? Just wondering and seeing if there is anything you need (CF-related or otherwise)? Thoughts and prayers are with you. My heart is breaking for my...