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Hello. Just curious for those of you who have allergies, do you have sob with them? Is it possible ONLY to have sob and no other symptoms from allergies? The pollen counts are like 10X higher than "high" here right now and I've been sob lately, but no other symptoms like cough, runny nose...

Hello, I posted a question about this a week or two ago and no one really spoke to the second part of it, so I'm trying again with just one question this time... LOL! Question: If you have medicare as primary insurance, how do they handle things like starting your IVs in the hospital and...

Hello, Does anyone take this and what do you think of it? My CF doc a few years ago said it usually does "nothing for CF cough", but I don't see why it wouldn't other than our mucus is too thick, but even then, why wouldn't it help thin it a little bit? I've used it a day or two in the past...

Hello. I'm noticing lately that when I wear my pulse ox when I'm sitting at home (or doing anything), it jumps around wildly... Like from 98 for 15 seconds to 90 for 15 seconds to 82 15 seconds and then back up to 94 for 15 seconds. I've heard somewhere this is an indication of a "bad reading"...

hello, so, because of SSDI, i am now elligible to start receiving parts A, B, and D. however, because of tricare, i'm going to NOT enroll in part B or D. i also have BCBS which i pay out of pocket for. i will keep this policy as its just a private policy and is quite good about letting me go...

Hey, everyone. OK, so since I've been attending the clinic in my town versus driving 450 miles each way to my all-time favorite clinic, they've insisted on rx'ing sodium chloride 0.9% to mix with colistyn instead of the "usual" sterile water. Just curious if anyone else does their coli with...

Hello. I know there are many military families on this board (and many who support military) and I have recently felt compelled to write my congress regarding this recent stimulus bill. It completely ignores a huge group of Americans who seem to be suffering in silence... Military members...

Hey, ya'll! OK, so i'm starting to lift again (finally) and am looking for a protein/muscle gain powder that is also fairly high in calories and/or fat. I'm finding it relatively difficult to find such a powder that doesn't claim to "burn fat". Since we CFers don't usually need help burning...

Hey, everyone! I know many had been asking for ways to add calories a while back (I think originated with someone's mom wanting to add oil, etc. to infant's intake??) Anyway, I read on a weighlifting/bodybuilding site that a trainer actually adds 2-3 Tbsp. of extra virgin olive oil to his...

Hello! I know some have followed my recent struggles with putting weight back on after my illness caused me to loose a lot of it. Well, here's another thought, but seems really really ODD.... I notice when I do take my insulin regularly (I'm borderline CFRD and rarely take it), I end up...

Hello. So, for some odd reason I've been having a tough time putting the weight back on from when I was sick. I'm eating the same, normal bm's, taking sufficient insulin, etc. but I'm just staying at the weight I dropped to when I was sick and cannot seem to gain a pound back. Here is my...

Hello friends! I know its been a while since I've posted. Been busy for the holiday season. Hope everyone had a lovely Christmas and New Year!!! OK, so about a month ago I noticed pain (very much like a side ache) on my left side rib (lower rib... feels exactly like a side ache) when I was...

Hello, Just curious for those of you on assistance SSDI or SSI whether or not you tell your friends and family AND how you tell them and what you tell them? Thanks,

Hello all, I know this is kinda an extension of my earlier question regarding good cities for us to live it, but I'm curious for those of you who live in Germany or London what the care is like for your CF? I ask because we have an opportunity to be stationed there for 2 years and I really...

Hello, Well, its official... we're moving. We have to finish our final "dream list" for the military in the next week or so, and I've been diligently matching bases we could go to (limited by DH's occupation) and accredited centers (I'm part of the EFMP program and we are to be stationed...

Hello, just curious if anyone has experiences with this med and if its helped them put on weight? I've tried Megace and though it worked for a while, it has ceased to work for me and I stop having a period, which I don't like... I've also used Remeron in a very low dose and it just put me to...

Hi, Me again... To add to the plethura of "stuff" I have going on, I've noticed today my ears are starting to ring... at least I THINK its ringing.... It happens maybe 2-3 times per day and is just a low ring for maybe 5 seconds. My ears also feel kinda "full" today. And, they crackle when...

Hello. I went to clinic yesterday and found I'm to be on this new abx IV for another 2 weeks, totalling my course to 5 1/2 weeks. I also found out in Sept. I cultured MAC (Mycobacterium avium complex). They're waiting to see if it causes problems in the future and if my recent culture grows...

Hello. I have been on two weeks of merrem and tobra and just today they switched the merrem to ceftaz cause I'm not responding as well as I usually do AND because they got back my culture and I'm now resistant to merrem. Urgh. So, I will be on a course of IV antibiotics (tobra the entire time...

Hey everyone... I'm re-posting my original question here since we got a bit off track (that's ok though!) on my other discussion. PLEASE give feedback on your experience with IV antibiotics and how you know you're well enough to go off them. Thanks. Here is my original question: <b>Hello...