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Hello. Well, here's the deal. DH just deployed this week. Its been a tough tough week. Not only am I just getting over a cold, but my sinuses are starting to get super runny again, so I'm wondering if I'm not getting it BACK. But, here's some other things... Since DH left I've had the worst...

Hello. OK, honestly I think I ask this every time I get a cold, but since there are always new people on here, thought I'd ask yet again and see what everyone does/thinks. I have had a head cold for the past week. It recently moved into my lungs with that persistant hacking "moving nothing...

Hey everyone. Just curious if anyone else is having problems getting in and reading Gina's blog on FOP.blogspot? I've been trying since this afternoon (Friday) and cannot get in... Keeps saying internet cannot open that page. I am able to get into other peoples' blogspot blogs (well only my...

Hello... Just thought I'd post since today is the very sad day one year ago that littledebbie lost her battle with this dreadful disease. I know there are probably some newer members who didn't have the pleasure of meeting her. She was someone very special and she is very missed. Breathe...

Hey! Just curious if anyone has taken part in the conference call and survey for users of the e-flow and what it entailed? I signed up for it last week (there was a link to it for a free webcam and money for your time on cf.com I thought, but it is no longer there...) Anyway, I'm doing it...

Hello and happy Independence Day!!! I recently heard from a lawyer who is familiar with CF regarding my recent app for SSDI... She mentioned having a dr. write a letter stating how I meet the criteria and how and why I cannot work. Just curious how many of you had this done on your initial...

Howdy... Just curious if its just me or anyone else is just plain NOT HUNGRY when it gets hot out like this? For the past month or so I've had NO appetite and had to force myself to eat light foods throughout the day cause the thought of a huge meal makes my stomach turn. I was thinking it...

Hello! My SSDI interview is in person this week (I chose in person versus phone interview but I know you can do either), and I'm really nervous. Can anyone who has gone through the interview please share with me how it went for them (I've filled out the disability report AND filed an...

Thought this may be a fun "getting to know you and your routine" since I know we're all curious what other CFers do to stay healthy... Just curious what everyone does for exercise? How often and for how long? Also, do you use supplemental O2 with exercise? To answer my own question: I try...

Hello! If you have CFRD, just curious how long ya'll can go without eating something before your blood sugar plummets? Lately, I've been able to go 3+ hours, but it used to be that I had to eat something every 2 hours to not become hypoglycemic. Just curious what everyone else does. <img...

Hey, if you're on facebook and want to connect, PM me your name and I'll request you as a friend... I'm new to all this stuff, but thought it would be a great way to keep in contact, share pics, etc. with my CF friends! Cheers! <img src="i/expressions/wine.gif" border="0">

Hey! So, I just started up another month of colistyn with E-flow and when I mentioned my concerns of buying gallons of sterile water and the pain in the butt it is to boil it, etc. and have to POUR and use so much of it to rinse my treatment parts, the lady gave me a brilliant idea (which I now...

Hello, everyone! Well, I know most of ya'll know my plight when it comes to social security disability (SSDI) and being denied all the way to the federal level several years ago (because I was told I could "work a desk job" fulltime). Anyway, after spending an afternoon on the phone with...

Hello.... It seems there have been several posts lately regaring people being on disability and it continues to shock me how many CFers have been accepted and are receiving disability with varying degrees of this disease. I feel like the minority. I had applied several years ago and was...

Hey again! I guess I'm just FULL of questions lately! LOL... Too much time on my hands, I guess. OK, so I'm wondering a couple of things. First, I recently started hypersal (the premixed stuff) after years of being on the H.S. 7% I mix myself. Well, I had to do H.S. when I mixed it myself...

Hello, ladies. I know this post has been done and re-done a gazillion times, but I wanted to start it anew for any new eyes we may have scanning the pregnancy boards and maybe those who have already answered could humor me. <img src="i/expressions/face-icon-small-wink.gif" border="0"> If you...

Hey! I had tivo'd a law and order a couple of weeks ago and just watched it last night. It mentions CF a ton and is basically about a guy with CF who gets run over (murdered) and they are trying to find the killer. Well I particularly thought it was funny cause the reason they deduced he had...

hello! so we just got back from a roadtrip to san diego this weekend and had a nice, relaxing time! we slept in, did some walking and then watched movies in the room and usually even got to bed EARLY! however, of course we ate at various places (mostly diners) and i'm curious if the...

Re: Hypersal Hello... Does anyone notice when they do hypersal that they cough more throughout the day as well? I don't cough much when I'm actually doing hypersal (I do it with my vest), but througout the day, its been seeming that its easier to get plugs, etc. up and when I do cough it...

Hello, OK, so recently my FEV1 took yet another nose dive (after only 3 months of being off antibiotics!) back to 55% (it had been 63%). My doc said I was wheezing a TON (and even let me hear myself... it was terrible!) so thinks the decline is more due to allergies and/or asthma and has put...