Cystic Fibrosis Forum (EXP)

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  1. L

    D.C. or Baltimore area?

    Hello again... Just curious if anyone has info. or anything (good or bad) to share regarding centers in the DC or Baltimore area?? We're likely to get stationed there in the next year or two and I'd like to know what the centers are like and which you prefer? Also, what is the climate/air...
  2. L

    To blog or not to blog....

    Hello, everyone! OK so I'm thinking of joining the world of bloggin and/or posting on facebook or myspace as an easy way to network and/or keep family and friends apprised of my ongoings without having to email everyone directly with "updates". Here is my dilemma, and I'm hoping there are...
  3. L

    E-flow

    Hello, everyone. I haven't been on much lately but just wanted to check in and read through the boards. I will try to respond on my next visit. My post is in regards to the E-flow. I hate it. I LOVE how fast it is and it seems to do a decent job (I can't really tell much difference and only...
  4. L

    Honestly.....

    I think I need to be banned from the internet when I'm on I.V. meds! LOL.... Here is what I found with regard to Cefepime (that I started two days ago)... <a target=_blank class=ftalternatingbarlinklarge...
  5. L

    another question

    Hey! Sorry for the incessant questions, but this round of IVs has kind of thrown me for a loop. So, I was on merrum and tobra for 9 days, but like my previous post mentioned, I was switched today from merrum to cefedime. Well, now I'm having severe anxiety that maybe 9 days of merrum will...
  6. L

    Frustrated, scared, alone....

    Hello everyone. Well today I hit a bottom I hadn't hit in a long time. Really just spent time feeling sorry for myself and sulking cause to be honest, I feel like NOTHING I do is going to effect me bouncing back anymore from these "exacerbations". I feel kinda helpless, which I don't usually...
  7. L

    Pain in front of underarm area

    Hello. OK, so I've had my PICC in now for a week and am noticing as the days go on, it feels sore and kinda a dull ache kinda in the front of my arm pit... does that make sense? Like the area you can flex near your pectoral muscle.... Anyway, it is really really bad when I do the vest cause...
  8. L

    Who's on IVs right now?

    Hey, everyone! It seems there are an awful lot of us sick on IVs (either inpatient or outpatient) right now, so was just curious if you're on IVs right now and, if so, just curious: What are you on? How long have you been on it? Does it seem to be working? Have you suffered any side...
  9. L

    How long does it usually take you?

    Hey, everyone! Well, I'm at home on home IVs again. I switched to the local clinic and they were more than willing to let me come home instead of staying inpatient, so my mood, appetite, etc. are better than the last few times I've been in lockup. Its wonderful. However, I do notice one...
  10. L

    Your clinic

    Hello, everyone. OK, so even though I'm sick, I made an appt. with the local clinic and the soonest they will see me is over a month from now! ridiculous, but not an entire surprise. I usually see the clnic in SLC, however we are now "butting" heads over whether I can go home on IVs versus...
  11. L

    Please help

    Hello, everyone! Its been so long since I've been on the board and I'm just trying to catch up a bit with what everyone has been up to.... I took a little "siesta" from posting for awhile while I focused on getting my new home-based business up and running. So, that has kept me very busy...
  12. L

    Grandma has MRSA

    Hello.... My grandma was recently admitted to the hospital very very sick with a respiratory infection that they later found out to be MRSA (probably contracted when she had surgery a few months ago). She was (is) still struggling to breath, had fevers and was extremely sick with it. People...
  13. L

    O2 sats question

    Hey, ya'll... Happy Halloween!!! Does anyone know if allergies can effect O2 sats? I've recently woken up with a stuffy nose (and have it on and off throughout the day) and sneeze a lot, so though I have never had allergies before, I think I'm developing them. And, I notice my O2 sats have...
  14. L

    Anyone take this?

    Hi... OK, so today I had my first consult with a local psychiatrist. She Rx'd Paxil CR for my anxiety and constant worry. I know lots of people here have experience with many things for anxiety (as do I, I've tried about 8 anti-anxiety meds in my lifetime and didn't stay on them cause of side...
  15. L

    Trouble with Helios O2

    Hey, everyone... I gather there won't be too many on this site who use Helios O2 (that little fanny pack) when they exercise, but I recently started using it when I jog and have had some "issues" with it. Just curious if anyone else has this happen.... When I've been jogging for a bit and have...
  16. L

    Coughing up blood

    Hello... So, I'm kinda worried. Since our vacation started about 2 weeks ago, I've been coughing up lots of yellow crud (pretty normal.. maybe a tiny bit more than usual, but I take that as a good sign since I just got out of the hospital about a month ago).... anyway, streaked in the...
  17. L

    Anyone do this?

    Hi... Just curious if anyone does their nebs hooked up to their O2? What I mean is, like in the hospital, they sometimes hook the hose to the liters of O2 so the O2 pressure is pushing the med into the lungs. Well, I'm curious if anyone does this with their home O2 or been told they can use it...
  18. L

    First time with O2 at the gym

    Hey, everyone... Well, last night I did it! I took my new portable Helios to the gym with me! (Gold's Gym)... I finally got the courage and once I was wearing it I didn't really care what others thought. They were pretty darn curious though! LOL.... And, its pretty small, so not as...
  19. L

    Free from lock up!

    Hey, everyone... I wanted to share my email (since so many of you offered your care and support over the past couple of weeks) that I sent to my friends and family today. Just think it sums up all the tests, etc. that I underwent and what is the next step for me. Thanks again for EVERYTHING...
  20. L

    Antibiotic (I.V.) Experiences

    hey, everyone. so, i've been in now for about 9 days and most of the time i was coughing little up. my pft's were up 6% after a week. i didn't feel all that sick other than exhausted and loosing weight from hospital food. now, today, i've started coughing up a lot of stuff... it feels just...
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