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Hello, friends... So, many have been following my saga with this recent illness and I'm just really perplexed. After 11 days of IV meds, I'm not feeling any better and my pfts are just barely up 2%. Blah. This is highly unusual for me. I"m still tired and still coughing up stuff, but the...

Hello. I've been on tobra IV every 24 hours and merrem every 8 hours for the past week. I'm thinking these dosages seem a little infrequent for p.a., but not sure. I have a doc appt. tomorrow to check PFTs and I can't imagine they'll be any better. I'm still exhausted and coughing up...

Hello! Happy Halloween!!! I've been throwing around the idea of getting a port since I usually have to get put under to get a PICC anyway. I'm generally on IV meds every 6-9 months. I know most everyone who has one LOVES it. But, I wanted to discuss exactly what the accessing, etc. entails...

Hello, So, I'm going in to be put on IV meds tomorrow. Last time I went in, it took the "student" at the University Hospital 4 times and two blown veins before she finally allowed her "teacher" to try to start my IV. I always get an IV the night before I'm knocked out to place the PICC. This...

Hello! Ok, so I'm just getting through the weekend and will likely be admitted for this dang "cold" that has moved into my lungs and set up shop. My question is kinda an odd one: Can we give our selves low-grade fevers from coughing? I ask because I've been working super hard on doing huff...

Hello. I'm thinking I'm gonna need yet another clean out here in the next few days. Just can't kick this "cold" that moved into my lungs and I don't want to risk precious lung function because I'm being stubborn. <img src="i/expressions/face-icon-small-wink.gif" border="0"> Just curious, I...

Urgh. This is so frustrating. I had a super bad cold about 1 1/2 months ago. They tried oral abx (which I'm resistant to) and I seemed to get some relief. I felt I was on the upswing. Then, when I was supposed to do my follow up appt. last week to see how the orals worked (if at all), the...

hey ya'll! just wondering how often everyone is on I.V. abx (in general) and what your FEV1 is at baseline (in general)? just curious. my FEV1 is about 56% at baseline and I'm on I.V. meds about once every 6 months. thanks!

Hello, everyone Well, I'm sick AGAIN. Another head cold. Starting to think these are stress-related... LOL! I usually get 2 cold a YEAR, but now I've gotten 2 colds in 2 months! Grrrr... Anyway, this one doesn't seem as bad, thank goodness, and I'm hoping I can stay active enough to stay...

Hi everyone, OK, so I hear a lot about Obama wanting to "cover pre-existing conditions" but I'm curious what exactly that means? My biggest issue with healthcare is that I want to be able to purchase my OWN private policy in any state we live in. NOT employer coverage, but calling BCBS (or...

Hello! OK, so I know there was recently a post regarding Medicare and Tricare and what they covered and in which order, but I'm kinda asking a seperate question here and asking for elaboration on the other responses. First, I have BCBS insurance (I pay a hefty premium per month but will NOT...

Hello. So I was thinking with this deployment that we just started... Does anyone know how much CF effects deployments, staying at one station for an extended time, etc? The reason I'm asking is this: Say DH was deployed and I got really sick really fast, would the military allow him to come...

Hey, everyone. So, I've been on levaquin and prednisone for about a week together. I felt amazing! Hardly any cough, big deep breaths, etc. Then, a couple days ago, I was to stop my pred. So, I did that and am now just on levaquin. Though I'm not feeling AS sick as I was a week and a...

So, as many know I applied for SSDI back in May. I have not heard anything on the initial determination. I was however requested about 3 weeks ago to go in and do a PFT by THEIR doctor since they were having trouble obtaining my most recent one from my clinic. I did this and am still...

Howdy... I'm hopped up on prednisone and levaquin right now and another question popped into my head with regard to declines and rebounds in FEV1 levels with abx.... What is your experience, in general when you're put on abx.? Do you fall way below baseline, go in for cleanout or get oral...

Hey all, So since my head cold moved to my chest and my cough has gone throuh weird stages, I was put on prednisone (for a week) and levaquin (as you probably already know from earlier posts). The hope is that these can kick out the inflammation or infection and I can avoid I.V. time. Here's...

Hello. When I went to clinic yesterday they told me they have a large amount of wives with CF whose hubbies are stationed at the local base. I found that peculiar. Even my nurse mentioned that usually its children who have CF with a parent in the military that they see. Anyway, this got me...

Hey, everyone. I know, when it rains it pours questions from me... LOL! Just curious, what oral abx have you been on and for what? Are you resistant to oral abx and they still put you on them or do they go right to IV? I'm just curious. Since I'd never heard of Levaquin until I was Rx'd...

Hello. So Levaquin is a completely new drug to me. They have never even suggested it and usually go right to IV abx, however today my doc said we could try this first to see if I get results. Anyway, I know there is another thread about all the terrible things that people experienced on it...

Hello, friends So I've posted before that I've had dark (brown) streaked sputum in the past... Stuff that was hardly there. Well, now tonight, I notice I'm coughing sputum with lots of bright red blood in it and I'm freakin' out! I mean, I've upped my HS to twice a day about 2 weeks ago and...