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Hi all - you'd think I'd know this by now! At any rate, we use the Sidestream Plus for DD's HTS and the Sidestream cup for Pulmozyme. We recently purchased a Pari Vios and received two LC Sprints with the compressor. What can these be used for? Thanks.
Hi all - you'd think I'd know this by now! At any rate, we use the Sidestream Plus for DD's HTS and the Sidestream cup for Pulmozyme. We recently purchased a Pari Vios and received two LC Sprints with the compressor. What can these be used for? Thanks.
Hi there! DD has been on Pulmozyme since about 9 mos old. Our first CF center didn't want to start any patients until they were over two years old. For various other reasons, we switched clinics and the new center started her on Pulmozyme right away. Her lungs were showing signs of "changes" at...
Hi there! DD has been on Pulmozyme since about 9 mos old. Our first CF center didn't want to start any patients until they were over two years old. For various other reasons, we switched clinics and the new center started her on Pulmozyme right away. Her lungs were showing signs of "changes" at...
I've wondered about this myself as I hope DD will have children of her own one day. I'm assuming (God-willing!) that there will be a treatment for her along the lines of the Vertex drugs by that time. Unfortunately, the data for safety in utero may not available for quite sometime....
Hey there...DD has been an "open-mouth" breather for quite sometime now - she also snores but not as loudly as she used to. However, she can close her mouth and breathe through her nose when asked and seems to do so without issue. For whatever reason, her center wants to start with a sleep...
Hey there...DD has been an "open-mouth" breather for quite sometime now - she also snores but not as loudly as she used to. However, she can close her mouth and breathe through her nose when asked and seems to do so without issue. For whatever reason, her center wants to start with a sleep...
I do have to say that when I pumped for a year with DD, my supply slowly dwindled - even though I pumped at least four times during the day. Pumping doesn't simulate nursing in the sense that the body doesn't respond the same way as when an infant nurses...
I do have to say that when I pumped for a year with DD, my supply slowly dwindled - even though I pumped at least four times during the day. Pumping doesn't simulate nursing in the sense that the body doesn't respond the same way as when an infant nurses...
Kalydeco (VX-770) is working wonderfully on those with the G551D mutation, not delta508. VX-809 for delta508 isn't proving to be as dramatic and they are working on a 770/809 combo to see if they'll achieve better results. There is another drug in the pipeline for delta508 (VX-661)...this tells...
Kalydeco (VX-770) is working wonderfully on those with the G551D mutation, not delta508. VX-809 for delta508 isn't proving to be as dramatic and they are working on a 770/809 combo to see if they'll achieve better results. There is another drug in the pipeline for delta508 (VX-661)...this tells...
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