Cystic Fibrosis Forum (EXP)

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  1. K

    DF508 question

    With regard to pancreatic insufficiency vs sufficiency and life expectancy - I think it's fair to say that "one to two decades longer" correlates with better nutrition. Better nutrition = better overall health = greater ability to fight infection = better lung health. I don't think it's fair to...
  2. K

    Need some advice on 6 months old cf daughter

    How many meals is she eating/day? I assume she's primarily on formula or breast milk? Is she seen at an accredited CF center?
  3. K

    Need some advice on 6 months old cf daughter

    How many meals is she eating/day? I assume she's primarily on formula or breast milk? Is she seen at an accredited CF center?
  4. K

    Second Child??

    It's easy to get into the abortion debate when considering this topic...so, I'll repeat something I read recently in defense of the cluster of cells. "If scientists found a single living cell on another planet, they would exclaim that they had found life. Why is a single cell within the womb of...
  5. K

    Second Child??

    It's easy to get into the abortion debate when considering this topic...so, I'll repeat something I read recently in defense of the cluster of cells. "If scientists found a single living cell on another planet, they would exclaim that they had found life. Why is a single cell within the womb of...
  6. K

    Second Child??

    We always planned on having more than one child...found out we were carriers while pregnant with our first child. We didn't do CVS or amnio because our son was our child - CF or not. We met with a genetic counselor (what a waste of time) who proceeded to inform us that we carry "the worst" form...
  7. K

    Second Child??

    We always planned on having more than one child...found out we were carriers while pregnant with our first child. We didn't do CVS or amnio because our son was our child - CF or not. We met with a genetic counselor (what a waste of time) who proceeded to inform us that we carry "the worst" form...
  8. K

    Skin cracking in fingers

    I don't have CF but do have terribly dry/cracking skin at times - yes, to the point of bleeding. I've found that Cetaphil cream (not the lotion) works really well. I wash my hands a lot...but am also prone to drier skin.
  9. K

    Skin cracking in fingers

    I don't have CF but do have terribly dry/cracking skin at times - yes, to the point of bleeding. I've found that Cetaphil cream (not the lotion) works really well. I wash my hands a lot...but am also prone to drier skin.
  10. K

    DDF508

    DD is 3.5 years old...DDF508.
  11. K

    DDF508

    DD is 3.5 years old...DDF508.
  12. K

    I had the baby!!!!

    Yay! Congrats!
  13. K

    my hero

    Thank you for sharing. I'm sorry for your loss.
  14. K

    my hero

    Thank you for sharing. I'm sorry for your loss.
  15. K

    Good bye, my love

    Thinking of you - so grateful he gave you a daughter to remember him by. Prayers for strength and comfort.
  16. K

    Good bye, my love

    Thinking of you - so grateful he gave you a daughter to remember him by. Prayers for strength and comfort.
  17. K

    Abnormal 2nd Baby Screening Result

    Hi there - congrats on the birth of your daughter! I'm sorry that you're going through such worry! I don't actually know the results of our daughter's IRT...all I know is that it was elevated so they sent the sample out for genetic testing. We're in CA - they never asked for a second sample. We...
  18. K

    Abnormal 2nd Baby Screening Result

    Hi there - congrats on the birth of your daughter! I'm sorry that you're going through such worry! I don't actually know the results of our daughter's IRT...all I know is that it was elevated so they sent the sample out for genetic testing. We're in CA - they never asked for a second sample. We...
  19. K

    Reeling tonight

    Prayers of strength, comfort and guidance are being sent. Your commitment and care for Micah has given him a love that he would have otherwise not known. I'm grateful that he has such loving parents to help him through this journey...I will continue to think and pray for all of you.
  20. K

    Reeling tonight

    Prayers of strength, comfort and guidance are being sent. Your commitment and care for Micah has given him a love that he would have otherwise not known. I'm grateful that he has such loving parents to help him through this journey...I will continue to think and pray for all of you.
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