Cystic Fibrosis Forum (EXP)

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  1. I

    CRAZY MOTHER SUMMER QUESTIONS

    First, the title of your thread made me laugh. I'm glad I'm not the only "CRAZY MOTHER" out there! We have one of those "pop up" pools with the inflatable ring around the top, if that's what you are referring to. Emily has been in it more often than out of it the last few weeks. We do have a...
  2. I

    CRAZY MOTHER SUMMER QUESTIONS

    First, the title of your thread made me laugh. I'm glad I'm not the only "CRAZY MOTHER" out there! We have one of those "pop up" pools with the inflatable ring around the top, if that's what you are referring to. Emily has been in it more often than out of it the last few weeks. We do have a...
  3. I

    CRAZY MOTHER SUMMER QUESTIONS

    First, the title of your thread made me laugh. I'm glad I'm not the only "CRAZY MOTHER" out there! <br /> <br />We have one of those "pop up" pools with the inflatable ring around the top, if that's what you are referring to. Emily has been in it more often than out of it the last few weeks...
  4. I

    Trouble with enzymes?

    <P>Well, first, WELCOME!  It's always hard to have to welcome a new member to this club nobody asked to join, BUT, you've found a great place to come for support and information!</P> <P>There will be some trial and error with enzymes at first.  It takes a while for the body to adjust, and to...
  5. I

    Trouble with enzymes?

    <P>Well, first, WELCOME! It's always hard to have to welcome a new member to this club nobody asked to join, BUT, you've found a great place to come for support and information!</P> <P>There will be some trial and error with enzymes at first. It takes a while for the body to adjust, and to find...
  6. I

    Trouble with enzymes?

    <P><BR>Well, first, WELCOME! It's always hard to have to welcome a new member to this club nobody asked to join, BUT, you've found a great place to come for support and information!</P> <P>There will be some trial and error with enzymes at first. It takes a while for the body to adjust, and to...
  7. I

    CF Auction Ideas

    ooooh! Since it's a beer event, try to get a bottle or two from each of your vendors and and put them together in a "Taste Of (Event)" package. That way the bidder can take home the experience with them! And, just remembered, we had a deliicious looking cake that a bakery provided. We closed...
  8. I

    CF Auction Ideas

    Rounds of golf have been very popular and are easy to get. A round for 4 at a very nice course with a cart has gotten as much as $180 for us. Most courses are more than willing to donate, too. Jewelry goes well. I contact people who sell it through at home parties, like Lia Sophia. They often...
  9. I

    condensation in nebulizer tubes

    Erin - This happens to us, too, particularly when it is humid outside. We were told from the very beginning to let the nebulizer run for a while after disconnecting the cup to clear the tubing. It works pretty well, but in the summer we have to let it run for quite a while.
  10. I

    condensation in nebulizer tubes

    Erin - This happens to us, too, particularly when it is humid outside. We were told from the very beginning to let the nebulizer run for a while after disconnecting the cup to clear the tubing. It works pretty well, but in the summer we have to let it run for quite a while.
  11. I

    condensation in nebulizer tubes

    Erin - This happens to us, too, particularly when it is humid outside. We were told from the very beginning to let the nebulizer run for a while after disconnecting the cup to clear the tubing. It works pretty well, but in the summer we have to let it run for quite a while.
  12. I

    Question....bruising easy and CF

    I am glad you posted this. I have been noticing more and more bruises on Emily lately. Granted, it's getting (Slowly) warmer here, and she is playing more outside, and she is an extremly active child...but this year it seems excessive. I was wondering if there was anything specific I should...
  13. I

    Question....bruising easy and CF

    I am glad you posted this. I have been noticing more and more bruises on Emily lately. Granted, it's getting (Slowly) warmer here, and she is playing more outside, and she is an extremly active child...but this year it seems excessive. I was wondering if there was anything specific I should...
  14. I

    Question....bruising easy and CF

    I am glad you posted this. I have been noticing more and more bruises on Emily lately. Granted, it's getting (Slowly) warmer here, and she is playing more outside, and she is an extremly active child...but this year it seems excessive. I was wondering if there was anything specific I should...
  15. I

    65_RedRoses on OWN

    I've been wondering the same thing. I'm not an Oprah fan either, and yes, it will REALLY annoy me if it never airs. Since she bought the rights, I assume that that prevents anyone else from airing it, too, right? Maybe it's time we launch a letter-writing campaign to ask when it will air...
  16. I

    65_RedRoses on OWN

    I've been wondering the same thing. I'm not an Oprah fan either, and yes, it will REALLY annoy me if it never airs. Since she bought the rights, I assume that that prevents anyone else from airing it, too, right? Maybe it's time we launch a letter-writing campaign to ask when it will air...
  17. I

    65_RedRoses on OWN

    I've been wondering the same thing. I'm not an Oprah fan either, and yes, it will REALLY annoy me if it never airs. Since she bought the rights, I assume that that prevents anyone else from airing it, too, right? Maybe it's time we launch a letter-writing campaign to ask when it will air...
  18. I

    PINK vest

    Funny that this came up again today!!!  We just ordered a BLUE vest for Emily, a bigger size than her pink one had been.  Her old black one that she has used for almost 4 years is wearing very thin in the back because she does a lot of each session lying down.  So, we have no choice but to try...
  19. I

    PINK vest

    Funny that this came up again today!!! We just ordered a BLUE vest for Emily, a bigger size than her pink one had been. Her old black one that she has used for almost 4 years is wearing very thin in the back because she does a lot of each session lying down. So, we have no choice but to try the...
  20. I

    PINK vest

    <p>Funny that this came up again today!!! We just ordered a BLUE vest for Emily, a bigger size than her pink one had been. Her old black one that she has used for almost 4 years is wearing very thin in the back because she does a lot of each session lying down. So, we have no choice but to try...
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