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Emily had clinic today and everything was great...except our pulmo saw what she thinks MIGHT be nasal polyps.  What she saw, combined with two statements from Emily ("nothing smells like it's supposed to smell" and "I feel like I have to blow my nose but nothing comes out") are leading our Dr...

Emily had clinic today and everything was great...except our pulmo saw what she thinks MIGHT be nasal polyps. What she saw, combined with two statements from Emily ("nothing smells like it's supposed to smell" and "I feel like I have to blow my nose but nothing comes out") are leading our Dr. to...

<p>Emily had clinic today and everything was great...except our pulmo saw what she thinks MIGHT be nasal polyps. What she saw, combined with two statements from Emily ("nothing smells like it's supposed to smell" and "I feel like I have to blow my nose but nothing comes out") are leading our Dr...

I am shocked and very upset to read this. My prayers go out to them.

I am shocked and very upset to read this. My prayers go out to them.

I am shocked and very upset to read this. My prayers go out to them.

My 5 year old is on MWF.

My 5 year old is on MWF.

My 5 year old is on MWF.

OH! I have no advice. We've not done at home IV's. I didnt realize you guys were having such a hard time of it! I'm very sorry to hear it. You will be in my prayers! Feel better, Em!!!!!

OH! I have no advice. We've not done at home IV's. I didnt realize you guys were having such a hard time of it! I'm very sorry to hear it. You will be in my prayers! Feel better, Em!!!!!

OH! I have no advice. We've not done at home IV's. I didnt realize you guys were having such a hard time of it! I'm very sorry to hear it. You will be in my prayers! Feel better, Em!!!!!

Great job! I've been getting pretty frustrated with fundraising lately, so it's good to hear about your success! <img src="i/expressions/face-icon-small-smile.gif" border="0"> One year I made a montage on OneTrueMedia after an event. I included pics of the event along with pics of Emily and...

Great job! I've been getting pretty frustrated with fundraising lately, so it's good to hear about your success! <img src="i/expressions/face-icon-small-smile.gif" border="0"> One year I made a montage on OneTrueMedia after an event. I included pics of the event along with pics of Emily and...

Great job! I've been getting pretty frustrated with fundraising lately, so it's good to hear about your success! <img src="i/expressions/face-icon-small-smile.gif" border="0"> <br /> <br />One year I made a montage on OneTrueMedia after an event. I included pics of the event along with pics...

Interesting. I made a note to ask our CF team about the salt concentration making pulmozyme inactive theory. We do HTS the pulmozyme immediately after in the morning. It's working for us currently, but it's a good thing to research. I have found that when I bring stuff up like this the docs...

Interesting. I made a note to ask our CF team about the salt concentration making pulmozyme inactive theory. We do HTS the pulmozyme immediately after in the morning. It's working for us currently, but it's a good thing to research. I have found that when I bring stuff up like this the docs...

Interesting. I made a note to ask our CF team about the salt concentration making pulmozyme inactive theory. We do HTS the pulmozyme immediately after in the morning. It's working for us currently, but it's a good thing to research. I have found that when I bring stuff up like this the docs...

Aaaaaannnnd...I forgot to mention above, Emily also only coughs with her vest when she has something brewing - even with HTS. That's why her huffing is so important. Even with that, she rarely brings stuff up, but I know it's getting stuff moving better than without!

Aaaaaannnnd...I forgot to mention above, Emily also only coughs with her vest when she has something brewing - even with HTS. That's why her huffing is so important. Even with that, she rarely brings stuff up, but I know it's getting stuff moving better than without!