Cystic Fibrosis Forum (EXP)

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  1. I

    Should the Vest make my daughter cough?

    Aaaaaannnnd...I forgot to mention above, Emily also only coughs with her vest when she has something brewing - even with HTS. That's why her huffing is so important. Even with that, she rarely brings stuff up, but I know it's getting stuff moving better than without!
  2. I

    Should the Vest make my daughter cough?

    Sarah - I will see if I can get Emily to make a little video of her huffing technique, too. Maybe your little one would like to see a kid doing it. We also follow Minnesota protocol and huff-cough between the stages. My concern is that your daughter doesn't do the vest with at least a...
  3. I

    Should the Vest make my daughter cough?

    Sarah - I will see if I can get Emily to make a little video of her huffing technique, too. Maybe your little one would like to see a kid doing it. We also follow Minnesota protocol and huff-cough between the stages. My concern is that your daughter doesn't do the vest with at least a...
  4. I

    Should the Vest make my daughter cough?

    Sarah - <br /> <br />I will see if I can get Emily to make a little video of her huffing technique, too. Maybe your little one would like to see a kid doing it. We also follow Minnesota protocol and huff-cough between the stages. <br /> <br />My concern is that your daughter doesn't do the...
  5. I

    CF video 2011

    Very nice! I cried at the blood draw video clip. That's always the worst part of the clinic visit for us. Emily, too, was very interested to see a girl her age doing the vest and nebs. I am so glad we can share these with our kids so they know they are not the only ones... Beautiful family...
  6. I

    CF video 2011

    Very nice! I cried at the blood draw video clip. That's always the worst part of the clinic visit for us. Emily, too, was very interested to see a girl her age doing the vest and nebs. I am so glad we can share these with our kids so they know they are not the only ones... Beautiful family...
  7. I

    CF video 2011

    Very nice! I cried at the blood draw video clip. That's always the worst part of the clinic visit for us. Emily, too, was very interested to see a girl her age doing the vest and nebs. I am so glad we can share these with our kids so they know they are not the only ones... <br /> <br...
  8. I

    Emily's montage

    OK. I am up listenting for a cough or a cry. Emily has strep throat, but now a cough has started, and I suspect I will get little sleep. So, I'm going to attempt to post our montage here. It usually doesn't work for me, so we'll see. Emily and Isabelle picked the songs this year. Not what...
  9. I

    Emily's montage

    OK. I am up listenting for a cough or a cry. Emily has strep throat, but now a cough has started, and I suspect I will get little sleep. So, I'm going to attempt to post our montage here. It usually doesn't work for me, so we'll see. Emily and Isabelle picked the songs this year. Not what...
  10. I

    Emily's montage

    OK. I am up listenting for a cough or a cry. Emily has strep throat, but now a cough has started, and I suspect I will get little sleep. So, I'm going to attempt to post our montage here. It usually doesn't work for me, so we'll see. <br /> <br />Emily and Isabelle picked the songs this...
  11. I

    Those who fake having CF :(

    Well, I say we ALL go to the forums where she is posting and follow up her every comment with "Don't feed the trolls." We can ambush her. It makes me so sad to see people feeding into it, unfortunately, we all know how easy it can be to get fooled. You are absolutely justified in feeling like...
  12. I

    Those who fake having CF :(

    Well, I say we ALL go to the forums where she is posting and follow up her every comment with "Don't feed the trolls." We can ambush her. It makes me so sad to see people feeding into it, unfortunately, we all know how easy it can be to get fooled. You are absolutely justified in feeling like...
  13. I

    Those who fake having CF :(

    Well, I say we ALL go to the forums where she is posting and follow up her every comment with "Don't feed the trolls." We can ambush her. It makes me so sad to see people feeding into it, unfortunately, we all know how easy it can be to get fooled. <br /> <br />You are absolutely justified in...
  14. I

    Can you run a hill-rom 105 Vest empty (without the kid inside)?

    I was going to suggest a big stuffed animal, too. Our big bear, "Blackie" regularly gets a session!
  15. I

    Can you run a hill-rom 105 Vest empty (without the kid inside)?

    I was going to suggest a big stuffed animal, too. Our big bear, "Blackie" regularly gets a session!
  16. I

    Can you run a hill-rom 105 Vest empty (without the kid inside)?

    I was going to suggest a big stuffed animal, too. Our big bear, "Blackie" regularly gets a session!
  17. I

    Papa John's Joins in our Fight for a Cure

    This is fantastic! Thank you for the information. I will be sending an e-mail to inquire about Wisconsin. Thanks, Roy, for ALL you and JDT do to help find a cure for all of our loved ones with CF.
  18. I

    Papa John's Joins in our Fight for a Cure

    This is fantastic! Thank you for the information. I will be sending an e-mail to inquire about Wisconsin. Thanks, Roy, for ALL you and JDT do to help find a cure for all of our loved ones with CF.
  19. I

    Papa John's Joins in our Fight for a Cure

    This is fantastic! Thank you for the information. I will be sending an e-mail to inquire about Wisconsin. Thanks, Roy, for ALL you and JDT do to help find a cure for all of our loved ones with CF.
  20. I

    Books about CF for preschoolers/children?

    Liza - THAT is hilarious! The book looks so sweet...but, ummm, lapbands? Weird. Guess I'm glad I never ordered it, now! <img src="i/expressions/face-icon-small-smile.gif" border="0">
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