Cystic Fibrosis Forum (EXP)

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  1. B

    CFer Nicole Graziano on Today Show

    awesome! thanks for sharing!!
  2. B

    Help Please!

    1) Did your baby have any symptoms when diagnosed? If not, when did he/she start showing symptoms? I did show symptoms as an infant -- I was losing weight, classified as failure to thrive, and got pnuemonia. HOWEVER, my sweat test was inconclusive and went on for 20+ years thinking I did NOT...
  3. B

    Help Please!

    1) Did your baby have any symptoms when diagnosed? If not, when did he/she start showing symptoms? I did show symptoms as an infant -- I was losing weight, classified as failure to thrive, and got pnuemonia. HOWEVER, my sweat test was inconclusive and went on for 20+ years thinking I did NOT...
  4. B

    Help Please!

    1) Did your baby have any symptoms when diagnosed? If not, when did he/she start showing symptoms? I did show symptoms as an infant -- I was losing weight, classified as failure to thrive, and got pnuemonia. HOWEVER, my sweat test was inconclusive and went on for 20+ years thinking I did NOT...
  5. B

    CFer Nicole Graziano on Today Show

    aw man, I did not see her, but wish I had known so I could DVR it! <img src="i/expressions/face-icon-small-smile.gif" border="0"> Do you know if we can watch a recap online or anything?
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    CFer Nicole Graziano on Today Show

    aw man, I did not see her, but wish I had known so I could DVR it! <img src="i/expressions/face-icon-small-smile.gif" border="0"> Do you know if we can watch a recap online or anything?
  7. B

    CFer Nicole Graziano on Today Show

    aw man, I did not see her, but wish I had known so I could DVR it! <img src="i/expressions/face-icon-small-smile.gif" border="0"> Do you know if we can watch a recap online or anything?
  8. B

    Do you clean the NUK?

    great; thanks guys!
  9. B

    Do you clean the NUK?

    great; thanks guys!
  10. B

    Do you clean the NUK?

    great; thanks guys!
  11. B

    Do you clean the NUK?

    I use the NUK Baby Bottle Sterilizer that was sent to me from CF Service to clean my altera nebs. It has developed a brown/orange residue/deposits on the bottom metal part that you pour the water on. Should I try to clean this off, or just leave it? Also, I know it says to use tap water, but...
  12. B

    Do you clean the NUK?

    I use the NUK Baby Bottle Sterilizer that was sent to me from CF Service to clean my altera nebs. It has developed a brown/orange residue/deposits on the bottom metal part that you pour the water on. Should I try to clean this off, or just leave it? Also, I know it says to use tap water, but...
  13. B

    Do you clean the NUK?

    I use the NUK Baby Bottle Sterilizer that was sent to me from CF Service to clean my altera nebs. It has developed a brown/orange residue/deposits on the bottom metal part that you pour the water on. Should I try to clean this off, or just leave it? <br /> <br />Also, I know it says to use tap...
  14. B

    Undiagnosed, but worried.

    agreed - even if the sweat test is negative, it cannot rule out CF. If he is still having problems, I would really push for the Ambry Amplified genetic test -- it tests for the largest # of mutations and is MUCH more accurate. As for tasting salt, some you can, and others you can't. People on...
  15. B

    Undiagnosed, but worried.

    agreed - even if the sweat test is negative, it cannot rule out CF. If he is still having problems, I would really push for the Ambry Amplified genetic test -- it tests for the largest # of mutations and is MUCH more accurate. As for tasting salt, some you can, and others you can't. People on...
  16. B

    Undiagnosed, but worried.

    agreed - even if the sweat test is negative, it cannot rule out CF. If he is still having problems, I would really push for the Ambry Amplified genetic test -- it tests for the largest # of mutations and is MUCH more accurate. <br /> <br />As for tasting salt, some you can, and others you...
  17. B

    adults

    Let me preface this by saying that I am not at all OCD about germs, etc. Most of my friends w/o CF are more cautious about germs than I am. (just pointing this out, so you can take what I say with a grain of salt) <img src="i/expressions/face-icon-small-smile.gif" border="0"> I have never heard...
  18. B

    adults

    Let me preface this by saying that I am not at all OCD about germs, etc. Most of my friends w/o CF are more cautious about germs than I am. (just pointing this out, so you can take what I say with a grain of salt) <img src="i/expressions/face-icon-small-smile.gif" border="0"> I have never heard...
  19. B

    adults

    Let me preface this by saying that I am not at all OCD about germs, etc. Most of my friends w/o CF are more cautious about germs than I am. (just pointing this out, so you can take what I say with a grain of salt) <img src="i/expressions/face-icon-small-smile.gif" border="0"> <br /> <br />I have...
  20. B

    Head ache and temp on Cipro

    I would always err on the side of caution just to be safe -- call the CF doc and let them know what is going on, your concerns, etc. As far as Cipro causing fevers, I guess it could, esp if it is notated as one of the side effects. Personally it has never caused a fever for me, and has actually...
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