Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. K

    I"m so excited!!!!

    I Wow what beautiful names, Julie and Mark. Special names for Special Babies. It is not much longer now. Good luck. With all the good luck prayers on here you have nothing to worry about. You and mark just get rest till the big day arrives.
  2. K

    Lemonade Stand

    All I can say is that there are some really amazing kids out there. Its nice to here such good stories they are rare.
  3. K

    help

    I know what you are going through. My son just turned 13 and has become very stubborn. Never wanting to do treatments. Thinks because he feels good he doesn't have to do anything. I would like to know what to do my self. Beyond admitting my self to a mental institution.
  4. K

    Question

    Good Luck with trying to have a baby. I personally have 3 kids of my own. Me and my husband have been steadily together for the last 14 years. (I am 31). My oldest who has cf was born form my first marriage. That one lasted long enough for me to get married two months later get pregnant wise up...
  5. K

    TOBI~28 on~28 off

    Just a quick question. What is the longest anyone has been on a routine of tobi 28 on and 28 off. My son has been on it for about 8 to 9 months since testing positive for pseudomonas (?) and msra through a bronchostomy(?) ( can't spell). We go back in Sept for his next apt and was going to ask...
  6. K

    Male infertillity in PWCF

    Thsi is sgoing to sound weird but I am glad I found that out. I have a son with cf and I know I have been told about his chance of not having kids but I was never told this was the reason. I am glad to have found out this information so I can explain it to him when he gets a older...
  7. K

    Quick baby update

    Man Julie I can feel you misery walking around just by looking at those pics. Those little ones are sure growing. Maybe it want take them as long as they are saying to get your computer fixed. You will just have a lot of catching up to do when you return if you have time. We will keep you in...
  8. K

    Quick baby update

    Sorry Julie when I loook at the website I still see pictures dated the 14th or so not from this weekend. Maybe my computer or something going on. But I know no matter what pregnancy agree with you. Not much longer. Like I said before get some rest now in a couple of weeks your lives are going to...
  9. K

    I reached my goal...

    Congratulation Markus. Have you been dipping into Julies midnight snack box. Ha Ha. Glad to here you have meet your goal and with your great determination I know that you will meet your next goal. Congrats to both of you.
  10. K

    Quick baby update

    Hey Julie, I am glad every thing is going good for you and those wonderful bundles of joy. By the way I really think the names you have picked are beautiful. Beautiful names for beautiful babies. Take care get a much rest as you can before they arrive you will need it. I couldn't imagine...
  11. K

    I found this very fitting

    Very emotionally touching with all that we go through as a person with cf and as a mother,son, father, daughter or friend of a love one with cf. IT really makes you stop and think. We need to enjoy the time we have and live every day as though it could be our last so that dash is not filled...
  12. K

    nestle flavor packets

    My son had to have a feeding tube put in place in Jan 06. He has to do feedings at night using 3 cans of Nutren 2.0. He drinks Boost Plus Shakes during the day that I luckily get help with from our Local Childrens Medical Services. You may want to see if you have a service like that around you...
  13. K

    Update on Julie and her babies...

    Sorry to hear that. I will make sure to keep her, the babies and you in our prayers. May everything go well and those precious babies stay put for a little longer, we know you are anxious but just hold on for a little longer. Mark take care of yourself and get plenty of rest you all of it you...
  14. K

    Feeding Tube

    My son Eric had a feeding tube put in place in Jan. He had the mickey put in right away. The first few days were the worst because he was really sore. He had it put in on a Friday and was back in school like the next Tuesday or so. He just had to be careful and kids and teachers helped him out...
  15. K

    Starting school

    Hi There My son with Cf is going to the eighth grade. I am not sure because all states are different but here in Georgia we can set up an IEP (indiviualized education plan). It helps out to make sure my son doesn't get counted against for missing too many days of school. It helps so if he...
  16. K

    what would be different if you were rich?

    I wouldn't even really want a lifetime of riches or money. We have learned to live on very little because we can't Gross more than $3200 (not bring home) in order for my son to stay on disabilty and have medicaid. Lord knows I can't afford his medicine especilly pulmozyne and tobi. I just would...
  17. K

    Cf Foundation

    A family friend who just opened up a daycare here recently was contacted by the cf foundation about doing a fundraiser. At first she denied and then they called back. Long story short she decided to do it and contacted me about doing it in honor of my son Eric. We did a mini walk through our...
  18. K

    CF Centers in Atlanta or Charlotte

    I know that there is a great cf center in Augusta Ga that is where I have been taking my son since Nov 2002. THe number to the telephone there is 7067212635 the contact doctor is Dr Guill. She is an excellent dr. As for as Cf centers in Atlanta their are two. Childrens Healthcare of Atlanta...
  19. K

    my genes

    My son has Delta F-508 and the other is unknown. How do you know what class they fall into.
  20. K

    Question concerning gallbladder problems

    I got the news from the doctor today and they say that everything is all right. I had them fax and send copies to his cf doctors to look over to be sure. Thanks for all the support. Maybe we will find out soon what is causing the pain in his side.
Top