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Kelli, Yes she was also tested for Celiac disease, it came back negatvie as well. So, now it will just be a waiting game to see if her problems go away. Thanks for your concern. I love having this forum to come to for support....don't you?!

Oh, I didn't know I wasn't logged in. Bet yall were wondering who Avery was??!!

I am so glad to hear that! If anyone deserves the scholarship you all do! It is wonderful that programs like that exist! Good luck and I will keep you two in my thoughts and prayers.

Hi Jesse, I am not a CF spouse but a CF mother. We live in Knoxville, TN! (How about them VOLS!?) I hope everything goes well with your wife and family! This forum has many wonderfuly people who can help from anywhere to emotional support, a good laugh, financial and legal advice. So please...

Our CF clinic waiting room does not have any toys....thankfully! However, when we go back to see the doctor they give my daughter toys to play with that she can keep. Like bubbles, bouncing balls or balloons. Everything they give her we take home with us. This is a great idea and all CF...

Jessica, Wow, this little guy could surely use you on his side! It is very caring and kind of you to look after his health like you are. If you regularly read this forum you will gain a wealth of knowledge about CF. He is blessed to have you on his side. Congrats on being the first to go to...

We have had mail-order pharmacy issues lately as well. You want to know what I think??? They don't care one bit whether they do things right when it comes to customer service because the only thing they want is MONEY and as much of it as possible. Why should they care where it comes from...

Our daughter is having some tests ran because the Gastro doc. noticed her liver was enlarged. He wouldn't tell me why he is having the tests ran and what he is looking for. But doing research I found out that enlarged liver and constant bloating are signs of liver disease, my daughter has both...

Thanks to all of you for your responses. I was beginning to worry no one else had this problem. It's good to know that it is common and can be treated a couple of different ways. I feel much better about it now.

Hi! Sunday my daughter went to go use the bathroom and was in some pain. When I looked I noticed she had a pretty bad case of Rectal Prolapse. I already knew what rectal prolapse was because of this forum. It is the reason some babies w/CF are diagnosed during ultrasounds or at birth. But...

Avery had just turned two when she got her Vest. I think she was around 27lbs and 30inches long. I am not sure how they judged it, but I do remember they told us she was just barely big enough.

Hi everyone! I am beginning a campaign at the High School where I teach to raise CF awareness. My school has shown interest in raising money for CF research. I want to get a list of symptoms and medical conditions that are related to CF in order to use during my campaign to help them...

Thank you to everyone who posted answers to my questions! I guess I am trying to figure out a disease that isn't easy to figure out. I hope some day I will quit trying to figure out what the future holds for my daughter and live day to day. All of you are so strong and I hope Avery is just as...

On one of the earlier posts there was a discussion about whether people who lived the longest with CF were the people who were diagnosed at older ages. I was just wondering if those of you who are adults with CF were diagnosed later in life or didn't present the symptoms until later in life. So...

On one of the earlier posts there was a discussion about whether people who lived the longest with CF were the people who were diagnosed at older ages. I was just wondering if those of you who are adults with CF were diagnosed later in life or didn't present the symptoms until later in life...

Thank you Miesl. The info is a little confusing yet helpful. My daughter is a double F508, so it may turn out she has this issue. Will just have to wait for the test results.

My daughter may be enzyme deficient even after taking her enzymes regularly. We have a test scheduled next week to check it out. My husband was told by someone that this can lead to CFRD. Is this true? If so any other info would help. If not what are the causes of CFRD?

To CFgurl, Please don't think their divorce is your fault! The thought of you thinking that breaks my heart!!! No matter what the situation is in a family it is NEVER the child's fault! You must focus on your own happiness right now. You are responsible for YOU and THEY are responsible for...

Hi my daughter has been on enzymes since her diagnoses last January. She is still having problems with diarhea and bloating. Even with her bowl movements floating in the potty. We went to the doc yesterday and he said she may have Celiac disease as well. She was tested for Celiac disease last...

My daughter went to the Gastroenterologist yesterday and we were told she had an enlarged liver by about 2 to 3 cm. The doc asked us to schedule a liver ultrasound next week. He wouldn't say if the enlarged liver was a sign for anything or could cause problems. But then why do an ultrasound...