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My daughter also had the electrode sweat test. That way she didn't have to produce any sweat naturally. THey just put this little velcro sleeve with electrodes on her arm. The electrodes make the arm muscle contract over a 10 minute time period and therefore you end up with sweat that can be...

Hi there, Boy, I remember how it felt when my daughter was first diagnosed. Well, the good thing is that CF is so much easier to deal with today than it was many years ago. Every couple of years the life expectancy goes up and more medicines are introduced to help them stay healthy. Please...

My husband and I are greatly involved in the Great Strides Walk. Last year we raised almost $10000 in my daughters name for the CFF. Unfortunately it was mostly his friends who were involved. Mine seem to just not be interested in our struggles. I do agree w/ Great Strides bringing people...

The chance that your husband also has the gene is very low. I think it is 1/25 or 1/30, but either way it is very unlikely. Good Luck! Let us know what you find out.

Atleast once a day I think into my daughters future (mainly teen years) and worry! As a two year old she is incredibly strong willed and a real spit fire! She knows what she wants and when she wants it more than any child I have ever seen before. However, the next thing you know she will...

I have also wondered whether my friends (due to their ignorance about CF) are afraid my daughter will make their kids sick? And that is why they hang out in the wings since her diagnoses?

Well, I guess no matter whether you have the same insurance co. they treat each client differently. I am glad some of you have also had success with your insurance co. For the others, hope you get some good news soon, we used to have all kinds of problems but recently nothing but miracles! I...

To the above poster. How do you know their brothers story? Do you think you know him better than they did? Just keep the negative stuff to yourself please!!?? To anyone who is surfing this forum and in a bad mood....Come Back Later!!!!! Sheesh! I am sick of the few people who are intent on...

United Healthcare paid 100% of our daughters Vest!!! I could not believe it, after all the horror stories you hear about insurance and CFers! I just thought I would share this with everyone, so if by chance you get a chance to change to United Healthcare you would know it has been wonderful to...

All these posts made me laugh this morning! I have been home from work with my 9mo. old son whose been vomiting, so I needed some humor! It's comforting to see I am not the only one going through this, and that we can all find ways to make light of our issues! Thanks for all of your reply's!

Does anyone else have a problem with you friends not taking your child's CF seriously? I get so aggrevated when people close to me act like I am too worried or dramatic about my daughters CF. A few of my friends act like her diagnoses never happened, they never ask questions and blow me off...

My daughter showed no signs until 12 months of age. This is common. Not to let you down but not showing symptoms at the age of 2wks. probably doesn't mean much. You can do one of three things to find out if your son has CF 1. Wait until your son is atleast 6 months and redo the sweat test...

Is your son showing any of the common symptons of CF? What type of test did he have? What did the test say? We might be able to help you if you give us some more info.

My daughter had recurring ear infections before she was diagnosed. She had tubes put in her ears at 18mos. Her ENT doctor told us that in general CFers do not have problems with their ears. I guess your childs eardrum rupture is odd or my doctor could be wrong.

Hi, My daughter did not start showing pacreatic insufficiency problems until she started eating table food, at about 12 months she all of a sudden quit growing, had a large bloated belly 24 hrs. a day, and had numerous large fowl smelling stools every day. So she is an example of someone who...

I agree with the above poster. They did a b-scopy on my daughter to get a baseline on how she is now. My daughters docs are very aggresive they do b-scopys on all of their patients who are willing once a year. Many people on this site do not agree with doing b-scopy's regularly. They...

Emily you made me laugh this early in the moring wich is really hard to do!!! To everyone else thanks for all you ideas and support. You gave me some things to consider. I appreciate it!

Hi, I am Lynsey, Chucks wife (the awesome father from one of the earlier posts). I have to say the right things here or I am going to be in major trouble when I get home. My husband is a wonderful father and absolutely does half the work when it comes to the kids and medicine/treatments...

Avery was really angry when she came out of her b-scopy, because they would not take the needle out of her hand (from the IV during surgery) until she drank some juice. Of course she didn't drink the juice until I made the take the needle out. She was even trying to bite the needle off of her...

Thank you Melissa I will keep that in mind!