Cystic Fibrosis Forum (EXP)

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  1. C

    trouble sleeping at night

    You are not alone!! I have literally gotten three hours of sleep in the past 48 hours. I can't get comfortable and I have that stupid restless leg syndrome. If I am not constantly moving my legs I get the weirdest feeling that makes me go insane. Rolling over is getting more difficult every...
  2. C

    Welcome Ambry Genetics

    Steve, yes it's the same father. Do we tell the doctor that retrieves the cord blood or do we tell Ambry to only test for his known mutation?
  3. C

    baby names

    We just figured out our babies name a few days ago. We are naming him Jackson, but can't think of a middle name. there are so many good names out there, but a lot sound weird when put together. It depends on your last name too, we turned down many names because it sounded weird with our last...
  4. C

    baby names

    We just figured out our babies name a few days ago. We are naming him Jackson, but can't think of a middle name. there are so many good names out there, but a lot sound weird when put together. It depends on your last name too, we turned down many names because it sounded weird with our last...
  5. C

    baby names

    We just figured out our babies name a few days ago. We are naming him Jackson, but can't think of a middle name. there are so many good names out there, but a lot sound weird when put together. It depends on your last name too, we turned down many names because it sounded weird with our last...
  6. C

    Welcome Ambry Genetics

    Steve, My six year old son has CF, he was diagnosed at 18 months after two minor bouts of pneumonia. He has only been in the hospital once and most of his problems are digestive related. I am pregnant again but I don't want an amnio or CVS, because of the risk. My son's CF clinic here in...
  7. C

    Am i? ... ... ...

    Hi Frankie, welcome to our crazy little family! I have a six year old son with CF and another baby on the way, this site has been very helpful and eye-opening. Things can get a little messy and controversial but that's what makes life interesting. I watched all of your seasons episodes and...
  8. C

    Am i? ... ... ...

    Hi Frankie, welcome to our crazy little family! I have a six year old son with CF and another baby on the way, this site has been very helpful and eye-opening. Things can get a little messy and controversial but that's what makes life interesting. I watched all of your seasons episodes and...
  9. C

    Am i? ... ... ...

    Hi Frankie, welcome to our crazy little family! I have a six year old son with CF and another baby on the way, this site has been very helpful and eye-opening. Things can get a little messy and controversial but that's what makes life interesting. I watched all of your seasons episodes and...
  10. C

    Holidays and Dealing with Family Members

    My husband to foot his foot down when it came to his sister and her kids. If they are sick, they don't come over. Their excuse is "it's only allergies", even when green nastiness is pouring out of their noses. We have already decided not to allow certain people to visit this new baby until we...
  11. C

    Holidays and Dealing with Family Members

    My husband to foot his foot down when it came to his sister and her kids. If they are sick, they don't come over. Their excuse is "it's only allergies", even when green nastiness is pouring out of their noses. We have already decided not to allow certain people to visit this new baby until we...
  12. C

    Holidays and Dealing with Family Members

    My husband to foot his foot down when it came to his sister and her kids. If they are sick, they don't come over. Their excuse is "it's only allergies", even when green nastiness is pouring out of their noses. We have already decided not to allow certain people to visit this new baby until we...
  13. C

    It's a boy

    I just found out yesterday that I am having another boy! I really wanted a girl and I thought that I would be upset if I found out it was another boy, but I am thrilled. Harrison is bouncing off the walls with excitement. The ultrasound showed that everything looked great, no problems yet...
  14. C

    It's a boy

    I just found out yesterday that I am having another boy! I really wanted a girl and I thought that I would be upset if I found out it was another boy, but I am thrilled. Harrison is bouncing off the walls with excitement. The ultrasound showed that everything looked great, no problems yet...
  15. C

    It's a boy

    I just found out yesterday that I am having another boy! I really wanted a girl and I thought that I would be upset if I found out it was another boy, but I am thrilled. Harrison is bouncing off the walls with excitement. The ultrasound showed that everything looked great, no problems yet...
  16. C

    To speak of CF or not...

    Megan, we don't know if my baby has CF or not. This one was a surprise, we wanted more kids but were unable to make the descision to have more. We spent almost 5 years torn between our desires for more kids and the possibiltiy of having another CF child. I am so excited, but terrified! As...
  17. C

    To speak of CF or not...

    Megan, we don't know if my baby has CF or not. This one was a surprise, we wanted more kids but were unable to make the descision to have more. We spent almost 5 years torn between our desires for more kids and the possibiltiy of having another CF child. I am so excited, but terrified! As...
  18. C

    To speak of CF or not...

    Megan, we don't know if my baby has CF or not. This one was a surprise, we wanted more kids but were unable to make the descision to have more. We spent almost 5 years torn between our desires for more kids and the possibiltiy of having another CF child. I am so excited, but terrified! As...
  19. C

    To speak of CF or not...

    This is a great thread! I don't have a problem discussing CF with others mainly because I grew up with a crohnic disease also. I have Crohn's and was diagnosed when I was 10. I refused to let anyone talk about it, and was furious with mom for telling my teachers. I hated the looks of pity...
  20. C

    To speak of CF or not...

    This is a great thread! I don't have a problem discussing CF with others mainly because I grew up with a crohnic disease also. I have Crohn's and was diagnosed when I was 10. I refused to let anyone talk about it, and was furious with mom for telling my teachers. I hated the looks of pity...
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