Cystic Fibrosis Forum (EXP)

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  1. S

    Anyone go to Penn, Johns Hopkins, Hershey or Hahnemann Hospital?

    I have gone to Hahnemann for my adult care for the last eight years. I love the doctor there (Dr. Jeff Hoag). He is HANDS DOWN the easiest doctor to talk to that I've ever had and is very caring. The nurse coordinator is great also. They do always give CFers private rms. I agree with Becki. When...
  2. S

    Anyone go to Penn, Johns Hopkins, Hershey or Hahnemann Hospital?

    I have gone to Hahnemann for my adult care for the last eight years. I love the doctor there (Dr. Jeff Hoag). He is HANDS DOWN the easiest doctor to talk to that I've ever had and is very caring. The nurse coordinator is great also. They do always give CFers private rms. I agree with Becki. When...
  3. S

    Anyone go to Penn, Johns Hopkins, Hershey or Hahnemann Hospital?

    I have gone to Hahnemann for my adult care for the last eight years. I love the doctor there (Dr. Jeff Hoag). He is HANDS DOWN the easiest doctor to talk to that I've ever had and is very caring. The nurse coordinator is great also. They do always give CFers private rms. I agree with Becki. When...
  4. S

    How long did you try before doing IUI/IVF?

    Blue, Thanks for sharing your story. I will probably give it six months of trying before seeing a fertility specialist. I will be 29 in July and wouldn't want to be much past 30 having a baby.
  5. S

    How long did you try before doing IUI/IVF?

    Blue, Thanks for sharing your story. I will probably give it six months of trying before seeing a fertility specialist. I will be 29 in July and wouldn't want to be much past 30 having a baby.
  6. S

    How long did you try before doing IUI/IVF?

    Blue, <br /> <br />Thanks for sharing your story. I will probably give it six months of trying before seeing a fertility specialist. I will be 29 in July and wouldn't want to be much past 30 having a baby.
  7. S

    How long did you try before doing IUI/IVF?

    Hi all, My husband and I are TTC. About two years ago, we tried for 4-5 mos, then I hit a rough patch healthwise. Now, we are trying again <img src="i/expressions/face-icon-small-happy.gif" border="0"> I suppose I anticipate needing help conceiving and was wondering how long those of you who...
  8. S

    How long did you try before doing IUI/IVF?

    Hi all, My husband and I are TTC. About two years ago, we tried for 4-5 mos, then I hit a rough patch healthwise. Now, we are trying again <img src="i/expressions/face-icon-small-happy.gif" border="0"> I suppose I anticipate needing help conceiving and was wondering how long those of you who...
  9. S

    How long did you try before doing IUI/IVF?

    Hi all, <br /> <br />My husband and I are TTC. About two years ago, we tried for 4-5 mos, then I hit a rough patch healthwise. Now, we are trying again <img src="i/expressions/face-icon-small-happy.gif" border="0"> I suppose I anticipate needing help conceiving and was wondering how long those...
  10. S

    big drop in pft, trouble coping

    Hi, Sorry to hear about your husband's recent downturn. A drop in pft's isn't always permanent by any means. My pft's had dropped by about 15% pts over the last yr or soand recently bounced back 10% pts. Anyway, if you are looking to chat with another CF spouse, my husband would be happy to...
  11. S

    big drop in pft, trouble coping

    Hi, Sorry to hear about your husband's recent downturn. A drop in pft's isn't always permanent by any means. My pft's had dropped by about 15% pts over the last yr or soand recently bounced back 10% pts. Anyway, if you are looking to chat with another CF spouse, my husband would be happy to...
  12. S

    big drop in pft, trouble coping

    Hi, <br /> <br />Sorry to hear about your husband's recent downturn. A drop in pft's isn't always permanent by any means. My pft's had dropped by about 15% pts over the last yr or soand recently bounced back 10% pts. <br /> <br />Anyway, if you are looking to chat with another CF spouse, my...
  13. S

    New Iv Port in chest anyone else got 1?

    Hi! I have had a port for a year and a half, and it was probably the best healthcare decision I've ever made! I had been worried about the scar/cosmetic issues of having one, but the scar is small and it doesn't protrude much. Mine is in my left upper chest. If you have any questions about the...
  14. S

    New Iv Port in chest anyone else got 1?

    Hi! I have had a port for a year and a half, and it was probably the best healthcare decision I've ever made! I had been worried about the scar/cosmetic issues of having one, but the scar is small and it doesn't protrude much. Mine is in my left upper chest. If you have any questions about the...
  15. S

    New Iv Port in chest anyone else got 1?

    Hi! <br /> <br />I have had a port for a year and a half, and it was probably the best healthcare decision I've ever made! I had been worried about the scar/cosmetic issues of having one, but the scar is small and it doesn't protrude much. Mine is in my left upper chest. If you have any...
  16. S

    When did you start to need oxygen?

    Hi all, I was just generally wondering when (FEV1-wise) you started to use oxygen. Currently, my FEV1 is in the high 50%'s, and at rest, my ox sat is usually 96%. Just wondering what other people's experiences have been...
  17. S

    When did you start to need oxygen?

    Hi all, I was just generally wondering when (FEV1-wise) you started to use oxygen. Currently, my FEV1 is in the high 50%'s, and at rest, my ox sat is usually 96%. Just wondering what other people's experiences have been...
  18. S

    When did you start to need oxygen?

    Hi all, <br /> <br />I was just generally wondering when (FEV1-wise) you started to use oxygen. Currently, my FEV1 is in the high 50%'s, and at rest, my ox sat is usually 96%. Just wondering what other people's experiences have been...
  19. S

    Oxygen

    I have only been on oxygen a few times when my FEV1 was in the 40's or lower. I am surprised to hear that docs would put someone on oxygen with a pulse ox of 95 or 96, that really seems like overkill. I was always told that over 90 is okay.
  20. S

    Oxygen

    I have only been on oxygen a few times when my FEV1 was in the 40's or lower. I am surprised to hear that docs would put someone on oxygen with a pulse ox of 95 or 96, that really seems like overkill. I was always told that over 90 is okay.
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