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hmm, I have no idea??? I have windows messenger. sorry, Im not much help.

Hey Courtney, I dont know how to start an IM conversation but Im on windows IM my username is jmak78 if you want to chat.

Hi Becky, I also have double DF 508 mutations. I was diagnosed at birth with meconium ileus. Im 27 years old. Now that Im an adult of course CF gets in the way sometimes and there are always new health issues to deal with, but Im still working full time and living my life to the fullest...

Hi Everyone, I just came across this in a CF newsletter I recieved. I thought maybe the parents and/or highschool kids would like to know that there is a website for scholarship for kids with CF. I remember when I went to college my social worker from the hospital was very helpful in finding...

Hi--- I was wondering Amy if you could email me again, I seem to have lost your adress and I want to write to you! Thanks.

Shavonica, If you go to the CF foundation website (cff.org) the have a place under "Great Strides" where they give you lots of tips on organizing teams for the walk and getting sponsors and general info. Or maybe you could just call your local CF foundation chapter and ask them for some tips...

Luke you are right, the bracelets run really big. I got an adult size one from one of the nurses at my hospital and it just fell of my hand. When I ordered them from the Milan foundation I actually ordered child size ones and they fit perfectly.

I cant figure out how to post pics here so I will try to give a link to my pic on snapfish. (If this works its a pic of myself and my friend Anna, Im the one on the right in the black shirt) http://www.snapfish.com/slideshow/AlbumID=16813252/PictureID=371986689/t_=12734834

How exactly do you go into the chat room? I see the "chat" in the right upper part of my screen but I cant get into it? Any help please? thanks.

RE:my own cf anology Jamey, Thank you for a wonderful piece to read....even those of us who have never actually been in a boxing ring can relate to that one!

The website for TOBI is abouttobi.com and they have a patient education section. Under FAQs they tell you how to store it and that it does not need to be refrigerated. I suppose it doesnt hurt to keep it cool but its not really necessary. Here is the link to the TOBI site...

We are the boring "Jaimes (Jameys)".............

Erin is correct, you can store TOBI at room temperature for up to 28 days. Sometimes it gets kind of yellowish when it is out of refrigeration for a while but as long as the solution does not look cloudy or have any particles floating in it its still safe to use. No need to get a fridge at...

Clearly my name is Jaime and I was not feeling very creative the night I joined the forum....so here I am...Jaime

Thats wonderful. I was just thinking about you and hoping you would post an update. Im glad everything went well!

Nicole, I go to the same hospital as you and I agree with you about the cleaning lady on weekends---REDICULOUS!!! She is out of control. There is no need for my trash and linen to be emptied at 7am!!!! It makes me crazy! Who is the nurse that treated you so badly? just give me...

One time years ago I had just gotten out of the hospital and I saw someone I knew, she asked me why I was in the hospital and I told her I had CF and was sick. She thought I meant Chronic Fatigue. She was really embarassed when I told her what CF really meant. It is really irritating when...

I agree with what everyone else has posted about going beyond just hanging meds and taking vitals. Try to remember that we are interesting and unique people beyond our CF and get to know us. For me, that is a huge point. Whenever I have a new nurse I really appreciate it when she takes a...

Yeah Coll, you are very well spoken for a 15 year old!

I just went to clinic on tuesday, here are my latest #s FEV1 = 66% FEF 25-75 = 35%