Search results

I am so impressed with how well the post transplant PFTs are!! Good work! Its so wonderful to see you guys are doing so well. Im going to clinic on tuesday and I will do PFTs then so I will post later to give my #.

They list the small airways as FEV 25-75

In general unless you and your partner have both tested positive for being carriers of the CF gene amniotic fluid would not be sent for CF testing with a routine amnio. Carrier screening is usually offered to pregnant women and this involves a blood test. If both partners are positive for being...

When I was younger I used to have severe nosebleeds ALL THE TIME! I would wake up in the morning with my bed covered in blood. I would soak beach towels with blood, it would just pour out of my nose. It was really bad, but definately worse in the winter when the heat was on and the house was...

Thanks for all your hard work. I cant wait to check it out!

one more thing, if you do take clomid please make sure you are closely monitored by your doctor. Because clomid stimulates your ovaries to produce more eggs, if you are taking too high a dose you will produce multiple eggs. This will increase your chances of having twins, triplets, etc...

I have never heard of yeast infection being a sign of a chest infection, just a sucky side effect of anitbiotics. Definately go for the Diflucan, if you have a particuarly bad yeast infection you may need to take it a few days in a row. Also, try taking lactobacillus while on antibiotics...

Cariann, First of all, even if you are not thinking of getting pregnant you should definately see your doctor if you havent had a period for four months, especially if you were regular before. If you are very malnourished your period could stop because of that, or if you have a hormonal...

I was diagnosed when I had meconium ileus surgery, I was two days old, sent to Childrens hospital in Boston. I cant even imagine the thoughts that went thru my moms head when she heard "Your daughter has cystic fibrosis"--or any parents head for that matter. I give all you parents tons of...

Amy, I believe if you already have a bachelors degree you can do a one year program. If you would like you can email me and I will let you know exactly what the schooling was--it was tough but well worth it! My email is jmaki@partners.org.

I am an ultrasound technologist. I work in an OB office and I perform ultrasounds. I tell people if they are having twins, or if the baby is a boy or a girl and look at all the fetal anatomy to make sure all the right "parts" are there and functioning properly. We also perform many prenatal...

I live just nort of Boston and we got 38 inches in my hometown. YIKES, get out the shovel....

I just wanted to mention that when you order the bracelets you may want to order child size. I originally ordered adult size and they came in and were way too big. Just thought I would let you know, child size may be better for women/children. The adult size is probably good for men.

sounds like an excellent idea!

I work 32 hours a week.

Yeah, i actually ordered a few bracelets from them and they took about 5-6 weeks to be delivered.

Hey Julie, thanks for responding. Im glad to hear you take such extra precautionary measures and Im sure it makes a great difference in your husbands health. (I hope you dont think I was questioning you---just interested in how I can be more careful w/ germs too) I have to say, that stinks...

Hi Julie, I know this is a little off topic but I just wanted to ask you a question. You mentioned in your last post that you work on a floor of the hospital where CF pts are treated. Are you ever nervous that you will bring "bugs" home to your husband? I only ask because I too work in a...

I know the Cystic-L website has merchandise. I checked it out for you, here is the link- I hope its what you are looking for. http://www.cystic-l.org/html/cf_shop.htm

I have used Pulmozyme for quite some time too. Sometimes it makes my throat/voice a little hoarse after treatment. The only thing of note is that anytime I have any streaking or hemoptysis the Pulmozyme is stopped for a day or two, or at least until the hemoptysis stops. That is because some...