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Hey Caitlin, I go to Childrens too (in fact Im here now)! I see Dawn Ericson, who do you see?

My doctor has mixed feelings on the issue. She thinks obviously it would help a little but also it could harm me (post op pneumonia and other complications) Also, she brings up the fact that we can only cut out so many "bad" parts of the lung, you know, the rest is not perfect and is also...

The part that would be removed is the right upper lobe. I had a large abscess there a few years ago and now it just never seems to get better. I'm having a bronchoscopy on monday to see if maybe there is some atypical bugs there that are not being treated with the IV meds im on now. I dont...

Yeah, there are some scholarships out there for CFers. I dont remember exactly now which ones, but the social worker at my CF clinic told me about them when I was applying for college.

Yeah, coll, thats what I was told also that zithromax is not for infections. For pseudomonas I have taken cipro too and it never helps. Recently I did take cipro in a liquid form and that helped a little. My doc suggested it because she thought maybe my liver was not processing the pill well...

Hi everyone, Im in the hospital getting another round of IV meds now. The past few times I have been sick my docs have been tossing around the idea of me having a lobectomy. Some of the docs think that removing this particular lobe of my lung that is more diseased would be of benefit to me...

We do the Great Strides walk too. This year "Team Jaime" raised a ton of money and had over 100 walkers!! And its tons of fun!!

HollyCatheryn, Im not planning on having children anytime soon but I do think this website sounds like a wicked good idea. I would love to read info about CF and pregnancy/parenthood--for the future hopefully! This is kind of a random question.....but I was wondering can you breastfeed your...

I work in a High Risk Obstetrical department at Brigham and Womens hospital in Boston and I do ultrasound. I work 32 hours a week. So far it works well for me. I graduated from college 5 years ago and I have been working in Boston ever since. I love my job, I think it was a great career...

I know for my doc the most important # is the FEV1, thats the one Im always worried about. I just had pfts on tuesday and I think they said that the 25-75% represents your smaller airways, deeper in the lungs and the FEV1 is the larger airways.

My family and friends are my "support team" and I just want to say thanks too!! My father took off before I even came home from the hospital after being born so my mother raised my older brother and I on her own. I know she sacrificed a ton for me and I can only hope she realizes how much I...

My family and friends are my "support team" and I just want to say thanks too!! My father took off before I even came home from the hospital after being born so my mother raised my older brother and I on her own. I know she sacrificed a ton for me and I can only hope she realizes how much I...

I first cultured pseudomonas when I was pretty young too. Since then I have always continued to have it--it just never goes away with any treatment. I am now 26, I work 32 hours a week, I went to college and have an active full life. Sure I do alot of treatments, cough alot and need to take...

I first cultured pseudomonas when I was pretty young too. Since then I have always continued to have it--it just never goes away with any treatment. I am now 26, I work 32 hours a week, I went to college and have an active full life. Sure I do alot of treatments, cough alot and need to take...

<blockquote>Quote <hr><i>Originally posted by: <b>ClashPunk82</b></i> hey Jaime, I go to Children's in Boston too. I really like it there been goin all my llife! I just don't like staying there for a cleanout, BLAH! Who is your doc? If you dont mind me asking, I probably know them. Mine is Dr...

<blockquote>Quote <hr><i>Originally posted by: <b>ClashPunk82</b></i> hey Jaime, I go to Children's in Boston too. I really like it there been goin all my llife! I just don't like staying there for a cleanout, BLAH! Who is your doc? If you dont mind me asking, I probably know them. Mine is Dr...

To the poster asking about Childrens in Boston, thats where I go. Its great, I have gone there all my life and have always been very happy with my experiences in clinic and the hospital. When I go to clinic EVERYONE that comes in contact with CF patients wears a gown and gloves. CF patients...

To the poster asking about Childrens in Boston, thats where I go. Its great, I have gone there all my life and have always been very happy with my experiences in clinic and the hospital. When I go to clinic EVERYONE that comes in contact with CF patients wears a gown and gloves. CF patients...

Hi Im from Boston too! Welcome, I know you will find this site very informative!

Hi Paula, I just read in the paper this morning that Mass is getting another dose of flu shots. The state had ordered 655,000 doses and will recieve 429,000. So, hopefully you and your family will be able to get one in the new batch. I finally got mine today at clinic.