Cystic Fibrosis Forum (EXP)

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  1. C

    For those who are on Oxygen at night...

    I normally use a concentrator when I'm home, but insurance approved a portable concetrator when my family was planning a cruise. My doctor had to write a note about why I needed the portable but I think it went through without much problem. Anyway, it's been useful to have over the years. Def...
  2. C

    For those who are on Oxygen at night...

    I normally use a concentrator when I'm home, but insurance approved a portable concetrator when my family was planning a cruise. My doctor had to write a note about why I needed the portable but I think it went through without much problem. Anyway, it's been useful to have over the years. Def...
  3. C

    home oxygen

    I agree with Pepperkitty, the Ayr gel is great. Just make sure you get the gel from behind the pharmacy counter (not prescription, you just have to ask for it) and not the saline spray, which is useless. I trim my cannula prongs down so air doesn't blow hard on any one spot so much. Also, if...
  4. C

    home oxygen

    I agree with Pepperkitty, the Ayr gel is great. Just make sure you get the gel from behind the pharmacy counter (not prescription, you just have to ask for it) and not the saline spray, which is useless. I trim my cannula prongs down so air doesn't blow hard on any one spot so much. Also, if...
  5. C

    home oxygen

    I agree with Pepperkitty, the Ayr gel is great. Just make sure you get the gel from behind the pharmacy counter (not prescription, you just have to ask for it) and not the saline spray, which is useless. <br /> <br />I trim my cannula prongs down so air doesn't blow hard on any one spot so...
  6. C

    Hypertonic Saline

    I mixed concentrated xopenex with HTS 7% for awhile. They worked really well together and I always felt great after, and saved some time. It actually upped my compliance because I could kill two birds with one stone so I felt really productive. Unfortunately the insurance company told the...
  7. C

    Hypertonic Saline

    I mixed concentrated xopenex with HTS 7% for awhile. They worked really well together and I always felt great after, and saved some time. It actually upped my compliance because I could kill two birds with one stone so I felt really productive. Unfortunately the insurance company told the...
  8. C

    Hypertonic Saline

    I mixed concentrated xopenex with HTS 7% for awhile. They worked really well together and I always felt great after, and saved some time. It actually upped my compliance because I could kill two birds with one stone so I felt really productive. Unfortunately the insurance company told the...
  9. C

    picc question

    I haven't had one "ooze" the whole time, but I have gotten little bits of blood on and off throughout the time, which isn't uncommon I hear. It's probably because I'm not good at sitting still and not using my arm while the picc is in place <img src="i/expressions/face-icon-small-smile.gif"...
  10. C

    picc question

    I haven't had one "ooze" the whole time, but I have gotten little bits of blood on and off throughout the time, which isn't uncommon I hear. It's probably because I'm not good at sitting still and not using my arm while the picc is in place <img src="i/expressions/face-icon-small-smile.gif"...
  11. C

    picc question

    I haven't had one "ooze" the whole time, but I have gotten little bits of blood on and off throughout the time, which isn't uncommon I hear. It's probably because I'm not good at sitting still and not using my arm while the picc is in place <img src="i/expressions/face-icon-small-smile.gif"...
  12. C

    Question about my vest

    I've been having this problem for the past 6 months or so and I don't know what it is. It's definitely annoying to be wheezing after treatments when you weren't before. I started doing xopenex as my last neb instead of my first and that has helped some. Anyone have any better ideas?
  13. C

    Question about my vest

    I've been having this problem for the past 6 months or so and I don't know what it is. It's definitely annoying to be wheezing after treatments when you weren't before. I started doing xopenex as my last neb instead of my first and that has helped some. Anyone have any better ideas?
  14. C

    Question about my vest

    I've been having this problem for the past 6 months or so and I don't know what it is. It's definitely annoying to be wheezing after treatments when you weren't before. I started doing xopenex as my last neb instead of my first and that has helped some. Anyone have any better ideas?
  15. C

    Aspergillus?

    I've cultured aspergillus a few times. I don't have ABPA so they generally don't treat it unless I'm exacerbating, and then it's always along with treatment for staph. When they do treat it, I do a course of Vfend (voriconazole). I've been taking it for the better part of a year now to treat...
  16. C

    Aspergillus?

    I've cultured aspergillus a few times. I don't have ABPA so they generally don't treat it unless I'm exacerbating, and then it's always along with treatment for staph. When they do treat it, I do a course of Vfend (voriconazole). I've been taking it for the better part of a year now to treat...
  17. C

    Aspergillus?

    I've cultured aspergillus a few times. I don't have ABPA so they generally don't treat it unless I'm exacerbating, and then it's always along with treatment for staph. When they do treat it, I do a course of Vfend (voriconazole). I've been taking it for the better part of a year now to treat...
  18. C

    Question for those on Preventative Antibioitics

    As far as I know, the effectiveness of preventative antibiotics depends on what you culture. I'm on zithro 3x/wk and tobi every other month and (knock on wood!) I am not colonized with pseudo (I grow it from time to time, but can kill it off with a course of cipro). My doc says that there are...
  19. C

    Question for those on Preventative Antibioitics

    As far as I know, the effectiveness of preventative antibiotics depends on what you culture. I'm on zithro 3x/wk and tobi every other month and (knock on wood!) I am not colonized with pseudo (I grow it from time to time, but can kill it off with a course of cipro). My doc says that there are...
  20. C

    Question for those on Preventative Antibioitics

    As far as I know, the effectiveness of preventative antibiotics depends on what you culture. I'm on zithro 3x/wk and tobi every other month and (knock on wood!) I am not colonized with pseudo (I grow it from time to time, but can kill it off with a course of cipro). My doc says that there are...
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