Cystic Fibrosis Forum (EXP)

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  1. C

    Pneumonia

    Ummm like everyone else my knee-jerk reaction is to say stay away. But come on, it's your sister's 40th, you guys planned a trip, so this is obviously a big deal and you will feel like you missed out on memories if you don't go. If it was me, I'd probably find a way to make it work. Some...
  2. C

    Pneumonia

    Ummm like everyone else my knee-jerk reaction is to say stay away. But come on, it's your sister's 40th, you guys planned a trip, so this is obviously a big deal and you will feel like you missed out on memories if you don't go. If it was me, I'd probably find a way to make it work. Some...
  3. C

    Pneumonia

    Ummm like everyone else my knee-jerk reaction is to say stay away. But come on, it's your sister's 40th, you guys planned a trip, so this is obviously a big deal and you will feel like you missed out on memories if you don't go. If it was me, I'd probably find a way to make it work. Some...
  4. C

    Considering a second child...What did you do?

    Here are my 2 cents, not as a parent but as a big sis who has CF... Remember that there is a 75% chance that your second child won't have CF. There is just as good a chance that your second kid won't even be a carrier as there is that they will have CF. In my family, I have CF, my brother...
  5. C

    Considering a second child...What did you do?

    Here are my 2 cents, not as a parent but as a big sis who has CF... Remember that there is a 75% chance that your second child won't have CF. There is just as good a chance that your second kid won't even be a carrier as there is that they will have CF. In my family, I have CF, my brother...
  6. C

    Considering a second child...What did you do?

    Here are my 2 cents, not as a parent but as a big sis who has CF... <br /> <br />Remember that there is a 75% chance that your second child won't have CF. There is just as good a chance that your second kid won't even be a carrier as there is that they will have CF. <br /> <br />In my family...
  7. C

    Question....bruising easy and CF

    Poor kiddo. Have his vitamin levels been checked lately? If someone is low in vit K they often have problems with clotting and, consequently, get lots of bruises. Vit K is fat soluable so it is not unusual for CFers to have low levels.
  8. C

    Question....bruising easy and CF

    Poor kiddo. Have his vitamin levels been checked lately? If someone is low in vit K they often have problems with clotting and, consequently, get lots of bruises. Vit K is fat soluable so it is not unusual for CFers to have low levels.
  9. C

    Question....bruising easy and CF

    Poor kiddo. Have his vitamin levels been checked lately? If someone is low in vit K they often have problems with clotting and, consequently, get lots of bruises. Vit K is fat soluable so it is not unusual for CFers to have low levels.
  10. C

    GENERIC PULMOZYME

    Don't get "generic pulmozyme." It's a totally different drug. If I recall correctly it's more like prescription mucomyst than pulmozyme. It doesn't have the dornase enzyme and can dry out your lungs too much, causing breathing difficulty and making it harder to cough anything up. My doc had...
  11. C

    GENERIC PULMOZYME

    Don't get "generic pulmozyme." It's a totally different drug. If I recall correctly it's more like prescription mucomyst than pulmozyme. It doesn't have the dornase enzyme and can dry out your lungs too much, causing breathing difficulty and making it harder to cough anything up. My doc had...
  12. C

    GENERIC PULMOZYME

    Don't get "generic pulmozyme." It's a totally different drug. If I recall correctly it's more like prescription mucomyst than pulmozyme. It doesn't have the dornase enzyme and can dry out your lungs too much, causing breathing difficulty and making it harder to cough anything up. My doc had...
  13. C

    portable oxygen

    With my company it was a rent-to-own situation so now I own my concentrators (a big one for the house and a portable). I would highly recommend a portable concentrator if you think you will be traveling and will have access to electricity to charge it every few hours. Its hard enough to travel...
  14. C

    portable oxygen

    With my company it was a rent-to-own situation so now I own my concentrators (a big one for the house and a portable). I would highly recommend a portable concentrator if you think you will be traveling and will have access to electricity to charge it every few hours. Its hard enough to travel...
  15. C

    portable oxygen

    With my company it was a rent-to-own situation so now I own my concentrators (a big one for the house and a portable). I would highly recommend a portable concentrator if you think you will be traveling and will have access to electricity to charge it every few hours. Its hard enough to travel...
  16. C

    Cystic Fibrosis and Arthritis

    I don't think that this is the case for everybody, but I grew out of the worst of my arthritic symptoms before I turned 20. I still hobble around sometimes when it flairs up in my hips, but my joints don't swell up and "freeze" anymore. With any luck, your daughter's condition will improve...
  17. C

    Cystic Fibrosis and Arthritis

    I don't think that this is the case for everybody, but I grew out of the worst of my arthritic symptoms before I turned 20. I still hobble around sometimes when it flairs up in my hips, but my joints don't swell up and "freeze" anymore. With any luck, your daughter's condition will improve...
  18. C

    Cystic Fibrosis and Arthritis

    I don't think that this is the case for everybody, but I grew out of the worst of my arthritic symptoms before I turned 20. I still hobble around sometimes when it flairs up in my hips, but my joints don't swell up and "freeze" anymore. With any luck, your daughter's condition will improve...
  19. C

    Can you do hypertonic saline in an eflow?

    I do the same thing as Jaime where I use an old head for saline. Eventually it will get up to around 15 mins when it starts getting really clogged, but before that it is certainly faster than the Pari. If it is too much salt, talk to your doc about trying different concentrations. I initially...
  20. C

    Can you do hypertonic saline in an eflow?

    I do the same thing as Jaime where I use an old head for saline. Eventually it will get up to around 15 mins when it starts getting really clogged, but before that it is certainly faster than the Pari. If it is too much salt, talk to your doc about trying different concentrations. I initially...
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