Cystic Fibrosis Forum (EXP)

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  1. L

    so confused after clinic appointment

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i> What did the doctor say when you asked about the atypical?? I really don't think there is a good answer. If your kids have genetic CF plus they have GI and Lung issues, then its CF and should be following the...
  2. L

    so confused after clinic appointment

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i> What did the doctor say when you asked about the atypical?? I really don't think there is a good answer. If your kids have genetic CF plus they have GI and Lung issues, then its CF and should be following the...
  3. L

    so confused after clinic appointment

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i> <br /> <br /> <br /> <br /> <br />What did the doctor say when you asked about the atypical?? I really don't think there is a good answer. If your kids have genetic CF plus they have GI and Lung issues, then its...
  4. L

    so confused after clinic appointment

    So both kids were seen at clinic yesterday. They have an atypical dx, and one of my big questions for them were why was it atypical, when they seem like they have more issues than some other kids, and why are we doing nothing? So, my DD did a lung function test. This was her third. Her numbers...
  5. L

    so confused after clinic appointment

    So both kids were seen at clinic yesterday. They have an atypical dx, and one of my big questions for them were why was it atypical, when they seem like they have more issues than some other kids, and why are we doing nothing? So, my DD did a lung function test. This was her third. Her numbers...
  6. L

    so confused after clinic appointment

    So both kids were seen at clinic yesterday. They have an atypical dx, and one of my big questions for them were why was it atypical, when they seem like they have more issues than some other kids, and why are we doing nothing? <br /> <br />So, my DD did a lung function test. This was her third...
  7. L

    When do you call the clinic?

    DS (almost 5) is sick for the first time since getting dx. He has a very slight cough and a sinus infection. He is on antibiotics. According to the ped his lungs sound fine. Is this something you would call the clinic about when they re open on Tuesday, or just wait and let them know when he...
  8. L

    When do you call the clinic?

    DS (almost 5) is sick for the first time since getting dx. He has a very slight cough and a sinus infection. He is on antibiotics. According to the ped his lungs sound fine. Is this something you would call the clinic about when they re open on Tuesday, or just wait and let them know when he...
  9. L

    When do you call the clinic?

    DS (almost 5) is sick for the first time since getting dx. He has a very slight cough and a sinus infection. He is on antibiotics. According to the ped his lungs sound fine. <br /> <br />Is this something you would call the clinic about when they re open on Tuesday, or just wait and let them...
  10. L

    When do you call the clinic?

    DS (almost 5) is sick for the first time since getting dx. He has a very slight cough and a sinus infection. He is on antibiotics. According to the ped his lungs sound fine. Is this something you would call the clinic about when they re open on Tuesday, or just wait and let them know when he...
  11. L

    When do you call the clinic?

    DS (almost 5) is sick for the first time since getting dx. He has a very slight cough and a sinus infection. He is on antibiotics. According to the ped his lungs sound fine. Is this something you would call the clinic about when they re open on Tuesday, or just wait and let them know when he...
  12. L

    When do you call the clinic?

    DS (almost 5) is sick for the first time since getting dx. He has a very slight cough and a sinus infection. He is on antibiotics. According to the ped his lungs sound fine. <br /> <br />Is this something you would call the clinic about when they re open on Tuesday, or just wait and let them...
  13. L

    Carriers Having Babies

    We have 2 who have been dx with atypical cf, although we did not know that was the case when I was pg. he 2nd time. They were dx together when they were 5 and 3. DD was a very sick baby, who spent most of her first year in the hospital, coded numerous times, but we were told, without a doubt she...
  14. L

    Carriers Having Babies

    We have 2 who have been dx with atypical cf, although we did not know that was the case when I was pg. he 2nd time. They were dx together when they were 5 and 3. DD was a very sick baby, who spent most of her first year in the hospital, coded numerous times, but we were told, without a doubt she...
  15. L

    Carriers Having Babies

    We have 2 who have been dx with atypical cf, although we did not know that was the case when I was pg. he 2nd time. They were dx together when they were 5 and 3. DD was a very sick baby, who spent most of her first year in the hospital, coded numerous times, but we were told, without a doubt she...
  16. L

    Carriers Having Babies

    We have 2 who have been dx with atypical cf, although we did not know that was the case when I was pg. he 2nd time. They were dx together when they were 5 and 3. DD was a very sick baby, who spent most of her first year in the hospital, coded numerous times, but we were told, without a doubt she...
  17. L

    Carriers Having Babies

    We have 2 who have been dx with atypical cf, although we did not know that was the case when I was pg. he 2nd time. They were dx together when they were 5 and 3. DD was a very sick baby, who spent most of her first year in the hospital, coded numerous times, but we were told, without a doubt she...
  18. L

    Carriers Having Babies

    We have 2 who have been dx with atypical cf, although we did not know that was the case when I was pg. he 2nd time. They were dx together when they were 5 and 3. DD was a very sick baby, who spent most of her first year in the hospital, coded numerous times, but we were told, without a doubt she...
  19. L

    Hearing loss

    My daughter has hearing loss due to many rounds of vanco while she was on TPN. Her loss is mild. She has been in speech since she was 3 (is 6 now) and is doing great. You actually have a very hard time telling that she has a loss at all.
  20. L

    Hearing loss

    My daughter has hearing loss due to many rounds of vanco while she was on TPN. Her loss is mild. She has been in speech since she was 3 (is 6 now) and is doing great. You actually have a very hard time telling that she has a loss at all.
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