Cystic Fibrosis Forum (EXP)

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  1. L

    Atypical cf?

    Thank you to both of you. Heather, I think we did speak on P2P a year or so ago. How reliable are the sweat tests? I keep coming back to the fact that they both had a negative one. Lillian's were 56, 59, and 39. Jack's were 36 and 59. We do go back to the CF clinic in Boston on June 2nd. He...
  2. L

    Atypical cf?

    Thank you to both of you. <br /> <br />Heather, I think we did speak on P2P a year or so ago. <br /> <br />How reliable are the sweat tests? I keep coming back to the fact that they both had a negative one. Lillian's were 56, 59, and 39. Jack's were 36 and 59. <br /> <br />We do go back to the...
  3. L

    Atypical cf?

    Hi, I am new here. My DD is 6, and my DS is 4. They have both been followed at children's hospital boston since they were little. I also have a 7 year old an another 4 year old, both of whom seem very healthy. Both kids have severe pancreatic insufficiency. Lillian was on TPN for a year and a...
  4. L

    Atypical cf?

    Hi, I am new here. My DD is 6, and my DS is 4. They have both been followed at children's hospital boston since they were little. I also have a 7 year old an another 4 year old, both of whom seem very healthy. Both kids have severe pancreatic insufficiency. Lillian was on TPN for a year and a...
  5. L

    Atypical cf?

    Hi, I am new here. My DD is 6, and my DS is 4. They have both been followed at children's hospital boston since they were little. I also have a 7 year old an another 4 year old, both of whom seem very healthy. <br /> <br />Both kids have severe pancreatic insufficiency. Lillian was on TPN for a...
  6. L

    Wondering if someone could help me out?

    I hope I am doing this right/posting in the right place. I was wondering if anyone had any insight into 2 of my kids. I have 4 - they are 7, 6, 4, and 4. My 6 year old was born 3 weeks early. She started losing weight right away, and always had very mucosy stools. She had 2 borderline and 1...
  7. L

    Wondering if someone could help me out?

    I hope I am doing this right/posting in the right place. I was wondering if anyone had any insight into 2 of my kids. I have 4 - they are 7, 6, 4, and 4. My 6 year old was born 3 weeks early. She started losing weight right away, and always had very mucosy stools. She had 2 borderline and 1...
  8. L

    Wondering if someone could help me out?

    I hope I am doing this right/posting in the right place. I was wondering if anyone had any insight into 2 of my kids. I have 4 - they are 7, 6, 4, and 4. My 6 year old was born 3 weeks early. She started losing weight right away, and always had very mucosy stools. She had 2 borderline and 1...
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