Cystic Fibrosis Forum (EXP)

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  1. A

    lung x question

    I haven't been there yet myself. And I haven't a clue. But it couldn't hurt to bring it up and ask.
  2. A

    Woman, CF and yeast infections

    Yeast infections can be very common, especially when on IV meds. The best way it was explained to me was that bacteria and yeast live together in harmony in the vagina, and when on antibiotics, the bacteria gets killed. So then the yeast takes over and has a little party. I've been on Zithromax...
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    Cure for CF??? "The spice of life perhaps"

    Mary, I just wanted to put in my two cents real quick and say I agree with you. None of this will excite me until I see it approved by the FDA and on the market somewhere. Some guy in Iraq or Iran claimed to cure it a while ago, there's something you can inhale once every two weeks that will...
  4. A

    discolored teeth

    I stopped trying. I tried tooth whitening kits, and tooth whitening toothpastes, and just gave up. My teeth are certainly not canary yellow, but they are in no way white either. I just stopped caring. I just ignore it now.
  5. A

    How to broach the subject of lung transplantation?

    It's a hard choice. In the end, you're right, the decision is hers to make, but at the same time, it sounds like she isn't giving you guys any time to voice anything good about it. I've always said that once I get down to a transplant, it'll depend on how much extra time they give me, what kind...
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    I think I got it right now

    Skyleen... Just wanted to say that news is super spiffy... and PS--- I love your name. Very different.
  7. A

    Understanding.

    He's been to one clinic visit so far, and stayed the night in the hospital with me once. This also includes me being on home IV once, and washing my hair for me and stuff when my port was accessed. It's hard for me to explain... he understands all the medical details. He knows what causes it, he...
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    Understanding.

    Yeah he always at least tries to understand. And he's very helpful and supportive. So I'll just keep trying hehe. And as far as the second post is concerned, I will comment on that too. Sarah, I agree with you, if someone called me lazy they'd have to have my shoe surgically removed from their...
  9. A

    I think I got it right now

    So he is getting what he deserved because some guys jumped on him and he had to defend himself? I think that's a pretty asinine thing to say. You don't know anything about what really happened just like we don't. And as far as the criminal justice system does, he should not be treated...
  10. A

    Understanding.

    I have a question for anyone who's involved or ever been involved with a non-CFer. Now, of course, no one who isn't a CFer can fully understand what's going on. That's a given. But the guy I'm with right now doesn't understand much of it. That's not to say that he doesn't understand that I'm...
  11. A

    CF and Piercing

    I got both an eyebrow piercing and a tattoo after my port was placed. I had no one tell me not to, and no problems with it. But that's just me.
  12. A

    24 year old man engaged to a "CF'er"

    I just want to thank all the people who have posted here. That includes whoever it was that posted the question in the first place. I am constantly teetering between two extremes when it comes to my boyfriend. I'm either telling him to leave, before he gets any more attached, and go find someone...
  13. A

    CF and Piercing

    I have 8 in my ears, and an eyebrow ring. I'll probably be getting my belly button sometime before the summer. I also have a tattoo. Never had any real trouble with any of them. My eyebrow was infected for a while, but it gave me no trouble that a normal person's infected eyebrow wouldn't have...
  14. A

    Blood Clot - PICC Line - Now What

    Okay well then I wil reply to both the question-writer, and the the last post. I have a port. I got one placed at... uhm, it was 2 years ago I think? I think I was 18. Either way, I haven't been on IV meds more than 5 or 6 times (started right before I turned 17), but every single time I needed...
  15. A

    24 year old man engaged to a "CF'er"

    You can ask her CF doctors, I'm sure they'll be able to direct you to a support group. And I can only guess how tough it must be as the fiance of a CFer, because in all honesty, I'd rather be in my place than in my boyfriend's... or yours. But if you really love her, I imagine you'll find a way...
  16. A

    Raspy Voice

    PS-- Pulmozyme is not always an antibiotic, I've been on it constantly for 11 years. But yeah those can be a bitch on both breath and voice.
  17. A

    Raspy Voice

    That's very related to CF. I used to have a pretty good singing voice, and now not so much. It's deeper, and usually raspy or not quite right. I don't think I've had my full voice available more than about a week or so in the last 6 months. I'm not usually entirely voice-less, but it's always...
  18. A

    What to do about sick people at work

    I don't currently have a job, but I'm a full-time student. I end up around sick people all the time. I have never had pneumonia, so that's lucky on my part. But as far as getting infections and colds and what have you, I just end up getting them. Colds don't end me up in the hospital. It's the...
  19. A

    Does anyone ever feel rushed??

    Oh Debbie, don't get me wrong. I cannot have children. I know I can't, not naturally anyway. I had a hysterectomy at 18, so if I want kids we have to do surrogacy or adoption or something else. And as far as the health insurance goes... with my parents' insurance, I know that even after I...
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    Does anyone ever feel rushed??

    I am asking this to younger adults, or even older adults if you ever felt this way when you were say.. late teens, early 20s. Did you guys ever feel rushed with life? Twice since I've turned 17 or so, I've had these little episodes where I turn into kind of a spaz. Each time was when I was with...
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