Cystic Fibrosis Forum (EXP)

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    ANYONE ELSE PREGNANT WITH A BABY THAT HAS CF?

    Okay, anonymous Hitler-wannabe. I know many people view this site, so I will simply say...<b>F You!!</b>I have CF, and I'm damn proud to be me. And if you don't like it, you can kiss my ass. Maybe we should have genetic screening for ASSHOLES, and then we could be rid of people like you. <img...
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    Comments on Real World cast memeber.

    In CF patients, fingers and toes are clubbed. That is to say, they look kind of like spoons. Rounder, and flat. CFers and CF families can usually see clubbed fingers and toes immediately in a CFer. Also, the bridge of her nose is pretty flat, and I noticed that right away too. I don't know why...
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    This is a response which I had to make easier to find.

    Thank you much! This is irrelevant to the topic, but I am their nunber one fan. Saw them live 4 times within the past year. I looovvveee them. And Amy Lee is my Goddess!!! <img src="i/expressions/face-icon-small-happy.gif" border="0">
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    CF Camp

    I went once. I went to the Florida Keys, and the camp was a week long. After a day and a half, my mom arranged to fly me back home. The women who ran it were obese and they smoked like chimneys. They thought because they were nurses, that they automatically knew my health better than I did, at...
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    This is a response which I had to make easier to find.

    I didn't turn from church because people judged me. My mom and dad decided to stop going. But either way, it doesn't matter. Because over the years I have made my own opinions on the religion subject, and based on my own beliefs, I wouldn't go to church anyway. I certainly don't believe in...
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    This is a response which I had to make easier to find.

    I totally agree with, I think, every single thing you said, Amanda. I tell people that are honestly curious, or concerned. When people are rude to me, I'm rude back. I can be very nice, but if you give me a reason to be a bitch, you had better believe I'll take advantage of it. People that make...
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    Comments on Real World cast memeber.

    I agree here with the last two posts. MTV is being irresponsible. I'm sure Frankie mentioned more of the CF in the many hours they taped, but they choose to show what they want. I think part of why they focused more on cutting than on the CF is because it's a problem more people can relate to...
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    This is a response which I had to make easier to find.

    PS--- To the last anonymous response, I had never heard them called uglies before. I love it!!!<img src="i/expressions/face-icon-small-tongue.gif" border="0">
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    This is a response which I had to make easier to find.

    Thank you for the lovely responses. And for bowlingguy, your choices are your own. And I wasn't too specific when I was talking, I guess. I don't just tell every shmo on the street, so much as people that have the curiousity enough to ask. And not rude people that ask, but people that ask out of...
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    Comments on Real World cast memeber.

    That part I agree with. The one point I wanted to make was that they film a whole mess of stuff, and only show what they want. But she does seem to suddenly be sicker when it comes to her job. And for the love of god do I ever agree with you on the problems with her boyfriend. She thinks, for...
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    Help

    I'm glad you put your foot down... the doc who suggested it in the first place sounds like a good idea. And we all (though I guess I shouldn't speak for others, haha), will be wishing you good luck!
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    Help

    If you ever think something should be done that isn't, you have to be pushy with doctors. They like to think they know the child better than the child's own parents. As far as having the test done, it should've been done last year anyway. It's not an invasive procedure, and even if they didn't...
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    Made it another year!

    Rock on!! I turned 20 not long ago, when my parents were told I'd never see 18 when I was born. We rule! <img src="i/expressions/face-icon-small-happy.gif" border="0">
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    Coaches

    I tell anyone who asks. There will be a time in her life where it's apparent, and some people will treat her differently... but if these people do that, do you really want her to be friends with them anyway? It's nothing to be ashamed of. It's part of who she is. Don't feel like you have to hide...
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    Comments on Real World cast memeber.

    Yes everybody dies. But knowing you'll die early does change your life. Yes she does destructive things, and sometimes uses it to her benefit, but you have to remember there's a lot more video shot than they show. They edit it to make it look as they please. And just because she does destructive...
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    TRAVELING ROME

    I went to Barcelona for my graduation gift in 02. The only thing I would comment on is one of the things the last person said. We bought an adaptor for European outlets and the thing still didn't work. We were staying with my dad's Spanish "brother," so he knew where to go and he was fluent in...
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    Fustrating Problems

    As far as your boyfriend quitting... he should never, in any circumstance, being smoking in your vicinity. I will walk to class, and get sick or get into a coughing fit just because I pass someone on campus who's smoking. Not to mention he shouldn't be smoking anyway. Especially if he's also...
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    This is a response which I had to make easier to find.

    I was originally going to put this post as a response to the last message in the "Comments on the Real World Cast Member." But as I kept typing, I decided I wanted it to be easier to see, so I'm posting it as a new topic. Here goes. Some people make it seem as though, because we're different, we...
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    Going off to College

    I would very much indeed go into a pack of lit cigarettes to see Amy Lee!!!!!!!! You know me too well. Amy Lee is my Goddess. Thank you. Have a nice day.
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    Going off to College

    I just thought I'd put in my own experiences. I still eat and don't have trouble with my weight. I always have, but I eat more than 12 people my age, so I'm doing okay. Every once and a while, I'll skip a med or what have you, but then I regret it, so I get into the habit. My freshman year, I...
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