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Completely irrelevant... but don't get me started on Evanescence and how much I love them!! lol <img src="i/expressions/face-icon-small-happy.gif" border="0">

I didn't think I was condemning TOBI. I thought I was doing exactly what you said, and just giving my personal reasons for hating it. I know it helps a lot of people, and I think it's great for the people it helps. I just personally don't like it. If you want the "complications" with my using...

I'm open with most of the non-CFers (especially those who have/had family member CFers) that come on here looking for personal information or insight. IM me anytime. AbsintheSorrowOr email me if you like. AbsintheSorrow@yahoo.com

I actually would like to thank whoever brought all of this stuff up. I had never been told hearing loss was a problem with the mycins, and it's something I need to watch out for. My major in college is American Sign Language - English interpretation. And granted Deaf people interpret for...

I just want to point out that because it's all natural doesn't mean it's safe. If it has no side effects, that's good. But ephedra was also "natural and completely safe." When now we know that it was basically natural speed. Natural, but not safe.

I don't know anything more than you've been told, but I would definitely suggest getting a second opinion. The test needs to be done again.

If John Hopkins hospital says it's promising, it <i>can</i> mean something.

I also liked IV TOBI, but couldn't stand the inhaled stuff. I've been on Pulmo for 11 years, and have done Coliston inhaled before, but whenever I've tried to use inhaled TOBI, I've started the usual coughing that goes with inhaled drugs. Now because I've coughed for so long, this usually...

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I agree on banning the immature 43 year old. <img src="i/expressions/face-icon-small-happy.gif" border="0">

Kylie, don't let some 43 year old moron get to you. Most of us who post here are pretty spiffy people... I think I've only been pissed off at something on this board twice... that guy, and the guy who said CF babies should all be aborted. It's good to have CFers around when you need to talk, and...

There's such a thing as false hope, which can also kill you. That's why I stick to realistic hope.

Nah Melissa, you don't bother me. It's that guy who started going off and swearing for no good reason.

Because until it's an actual cure that works in people, and not just rodents... I don't tend to believe anything I hear. I've heard quite a few of these before, and they're never true. I just got used to ignoring them.

You swear you're 43? Because you're acting like you're about 10. I would just like to point out a few things. You may be living to 43 which is awesome, and good for you. But there are still many people who die before they reach 20. You may be doing well, but there are people worse off. Just like...

I just want to put in my own two cents as well. Melissa, you have to remember... most people come here because no one healthy relates to us. So we come here specifically to ask questions and get feedback and talk to other CFers in order to have someone to relate to. A lot of the people here that...

I actually gained 50 lbs about 2 years ago after I started on an anti-depressant and the birth control shot. And it's easy to say wouldn't you rather be overweight than underweight? When it comes down to it, I agree. I'd rather be a little overweight, but if you have any control over it, you can...

Yeah don't assume that because they haven't called that it's negative. And I have a sister who doesn't even carry the gene.... and a large extended family. Almost all of my cousins are older, and I'm the first case of CF in our family.

I don't have kids, but I have CF myself and have lived with it my whole life (of course, haha). Feel free to email meAbsintheSorrow@yahoo.comOr IM meAbsintheSorrowanytime you like.

I just wanted to say that I of course was not meaning to burst anyone's bubble. I just know better than to assume anything about all of the "cures" that come through. And as for Rebekah, I'm sorry you haven't had much practice with this yet, but you'll get used to it. Heh. <img...