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From what I hear, it's only worked in mice, and only on the GI tract. Doesn't do anything for the lungs.

Yeah I heard you shouldn't self-medicate with it. Check with the CF clinic first.

I got the pictures! And I sent you 3 of me. Hehehe.

To add to what my mom said... "your child loks healthy," never go by that. I've been told dozens of times that until I tell people I have CF, they wouldn't have a clue because I look fine.

First of all... 60 is wrong. That doesn't mean she won't live to see 60, but it's unlikely, and the average is more like 32. As time goes on, lung function decreases. Infections take over, and oxygen is depleted. It gets harder to do simple things. I'm having more trouble with stairs as time...

PS--- I love your name. Piper. Very uncommon and cute.

AbsintheSorrow@yahoo.com

Hi! I just got a letter from Josh. He's so nice. Very intelligent. Anyway, he said he assumed I had seen a picture of him, and I have not. I was wondering if you had one you could send? Thanks!Email: AbsintheSorrow@yahoo.com

Just my guess...A lot of CFers have trouble with heartburn/acid reflux.. and alcohol can irritate that. So when I drink I tend to get a little bit of chest pain via my reflux.

You don't sound harsh. If I were you I'd be worrying about the same things, I imagine. However, just think how your husband most likely feels. He probably feels useless and like he's weighing you down, and being a bother. He knows he's not doing well, and (mind you, this is all an assumption, me...

My hair is brittle, as are my nails. I asked my doctor about it, and she said it could be related to medications and the fact that we're lacking in the fat soluble vitamins (apparently A and E are important to hair and nails). My hair still grows, but it won't grow past a certain point in my...

Last I checked the TOBI came pre-mixed. At least, it did for me. You don't need to do anything but squeeze the stuff into your mouthpiece hardware, and then hook it up to the nebulizer.

A lot of us have this problem. I tend to do that with my boyfriends too. And it's certainly not intended to upset. It's just kind of a warning, or a wall like Tracy said. However, this particular girl sounds very lucky. Chasing her for 8 years? And you seem very dedicated. But anyhow, just keep...

She's right. Make sure your teachers and professors know ahead of time, and you're usually good to go. People are most often very accommodating, as long as you let them in as to why you need this and that.

This last post is a very good example. I never had this problem, because I was diagnosed pretty early. But, I do know how to fight with doctors for things. If you think you need something done, or tested, demand it. If your doctor won't do it, go see another. And another. And another, until...

I say don't put it off, and just bring it up. If she doesn't like to read... open up the webpage and read it outloud to her.

I had nasal polyps removed when I was 5 years old. And since then, I've been on Nasacort. I tried other sprays and they always ran down the back of my throat, and I hated it. I came across Nasacort and didn't get any drip from it. So I've been on that one since. I always have a little bit of...

I just want to say you guys rule. I'm still in pretty good health. In fact, for a CFer, my doctors see me as pretty frickin healthy indeed. But I think you guys rule for putting up with the sudden downward spiral. And even if you have a bad attitude about it, you still rule. Because no one...

Okay first, you need to try and seriously explain CF to this girl. And if she still doesn't understand... in so many words, tell her to screw off.

I've been stared at before, and imitated before, and usually I just stare back. And if it gets too obvious and too rude, I open my mouth and tell them off. Haha.