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I'm going to take two seconds to be rude. Disclaimer: I'm not this way unless you deserve it. Angie, you are a cranky *****. You're also most likely lying, because it's hard to believe any CFer would be such an obnoxious twit about what we all deal with. Go enjoy your perfect carefree life, and...

No fun, but did you try an enema?

Mary... I said woohoo before. Now I shall say CONGRATULATIONS!!!!And ignore what Angie says, she's that bitter bitch who won't leave us alone.

WoOoOoOoHoOoOoOo!!!

Oh good god!! Angie was the 43 year old?? Is that right?? AHHHH I'm glad she's gone. Offensive witch.

Read the first post again, last anonymous. She wasn't complaining that Angie had posted, she was complaining, that Angie's post had been deleted. She said Angie had every right to complain and was pissed that people deleted the entry. And I for one, agree. I don't remember Angie's post (if I...

Screw that boo-hoo guy/girl. I just wanted to reply, though I don't have much to say. I only go to school during the school year, and in the summer, I plan on getting some kind of a job, but I don't do too much at once, so I get a dececnt amount of sleep. However, there have been times where I...

It needs awareness raised, because though it's not entirely unknown, it's not nearly as well known as cancer, for instance. And the more people that know, the more fund raising we get done, the better medical research we get done. There are a bunch of CF fund raisers done by the CF Foundation...

Here, last I checked, it was 32.

Try surfing around the website to find out.

That link didn't work. Can you look at it again and see if it's right? I'd love to find a CF chat. Tanx.

Yeah I get those after PFTs or after too much coughing. It ends up feeling like the vein in my forehead is going to burst. I actually got my CF doc to prescribe tylenol w/codeine for these instances that I carry in my purse with me.

Then I guess I must be special! Haha. I have a Delta F508 from my mom, and a rare mutant gene from my dad. It might have a name by now, but when we had genetic testing in 1989, they didn't know a name for the gene my dad gave me.

This can be a common thing. A lot of things could be causing it, so I'd say asking the doctor is a good idea. Just don't think it's too odd, or unusual. I have a regular proctologist that I see when I need to.

I was told a PICC line is a periferally (sp) inserted central catheter. It went into my elbow, up my arm, over my shoulder, and into the very top of my superior vena cava. That's what mine always were.

Exactly! See, I don't like the TOBI, as I said. But I live on Pulmo. I love the stuff (despite it being an obnoxious use of time haha). If I skip it for a day or two, I can immediately tell. And I've been on it for 11 years now. So the same with AB, I guess. S/he doesn't like the TOBI or Pulmo...

Last I checked, Coliston doesn't come pre-mixed at all yet. You have to mix the powder, sterile water, (and saline?) yourself. And it can be a pain because if you do it too fast, it foams up and then you have to wait for it to calm back down. You aren't supposed to try and use it while it's all...

There is always help found in friends and family and other CFers and junk. And the whole religion thing may work for some people, but don't assume it'll help everyone. Just my piece of advice.

The Coliston makes me cough, just like the Pulmozyme (I have been taking that one every day for 11 years)m but didn't make me gag like the TOBI did. The saline was just a little extra, I don't think it's entirely necessary. And no, I did not boil the sterile water. We got it straight from the...

The difference how? I've been on both inhaled drugs each more than once. If we're talking my personal preferences, I like the Coliston better. It's a little more work because you have to take the saline, powder, and sterile water and make the drug without causing too much foam. Plus when I do...