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OMG, Julie! You read my mind. It is so frustrating to never hear back from the original poster. Even if it's just a "thanks", it's nice to know that your response was at least "heard".
Thinking of a an example here... the recent post about an anon losing their job. There was a lot of good...
Ok, my DH and I are having a disagreement about this. It's my understanding that we can request whatever we want for a 504 but the school doesn't necessarily have to oblige. It's up to them what actually ends up in the plan. DH says that whatever we want, we get. I don't think this is true...
I LOVE the name Declan and using Markus is a great idea. My family has a "thing" about using part of dad's name in the son's name.
So, have you decided which of the boys will get which name? Will the first born be Ryland or Tristan?
Uh oh! Bucks beating Wolverines to this is very bad news. Oh well, I guess we can't kick your booty in football and beat you to this too <img src="i/expressions/face-icon-small-tongue.gif" border="0"> We'll let ya have this one. Good job!
Go Blue!
Ok, does anyone else find this annoying...
Someone starts a thread, people start responding, but is anyone actually reading the previous responses. I really hate it when I post a response then later someone else posts exactly the same response. I'm not talking about prayer requests, B-day...
We're facing a similar situation this year. In our school district all the schools join into one beginning in 5th grade. I'm aware of another CF family whose DD has CF and she'll also be starting 5th grade with Sean. This family may be aware of me as we have a few mutual acquaintances but I...
Well, I wouldn't think that alcohol would make enzymes any less effective. After all, the enzymes CFers take are already present in someone without CF and I'm not aware of alcohol giving me any malabsorption problems.
That said, alcohol definitely affects antibiotics so don't mix those. I'd...
I'm not "using" Alan to support an argument. I'm quoting him as a source. I'm sure you've quoted dead authors to support arguments before.
Whether Alan thought a life with CF was worthwhile or not raises a good point. So far, you've only debated with CFers that have thought their lives were...
Okay, here are some qutoes from our friend Alan. We all knew him and we all "watched" him die from this terrible disease. Here are his thoughts...
<div class="FTQUOTE"><begin quote>I don't see why you should continue trying to "chance" a healthy child. You wouldn't play Russian roulette with...
Let's take my two sons as examples. Born into the same family with all the same control factors. One has CF the other not. Do you not agree that my CF child has suffered more than my non-CF child?
What I am saying is that if you have the knowledge (i.e. both parents are carriers and or one...
Anon @ 3:30,
Let's be clear here. There is a significant difference in a genetic condition like CF, parkinson, etc. versus an inherited condition.
Allergies and asthma can also be triggered by environmental factors and may have nothing to do with inheritance. I'd be interested to see your...
Agnet-X,
Ugh!!!
No one is saying CFers don't live happy lives. No one is saying it's about quantity not quality. No one is saying it's better to die from cancer, heart disease, etc...
What we are saying is that armed with all the knowledge we wouldn't choose to bring a CF child into this...
I agree, Julie.
This is a CF forum and because of the nature of the disease (fatal), there is going to be some ugliness. A lot of parents aren't ready for that and, as has been said before, may be more comfy in the families section. My husband is one of those. He is honest with Sean about CF...
LOL! Amy, that is too funny. See, all those frat parties really paid off.
Uh, I'm assuming that the smell reminds you of urine and that you don't really have any experience with the taste <img src="i/expressions/face-icon-small-wink.gif" border="0">
Hey Julie (and Mark),
GREAT NEWS!!!
That is soooo cool that babies practice their breathing while in the womb. I had no idea. Just what exactly do they do?
Amy,
Although I agree with your sentiment, in general (i.e. yes, Allie has a huge amount of insight into this area). I don't agree that the parent of a child necessarily has any less insight.
<div class="FTQUOTE"><begin quote>Allie speaks from a much more macro view of the disease. She's seen...
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