Cystic Fibrosis Forum (EXP)

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  1. C

    Yet another pet peeve

    OMG, Julie! You read my mind. It is so frustrating to never hear back from the original poster. Even if it's just a "thanks", it's nice to know that your response was at least "heard". Thinking of a an example here... the recent post about an anon losing their job. There was a lot of good...
  2. C

    More 504 help

    Ok, my DH and I are having a disagreement about this. It's my understanding that we can request whatever we want for a 504 but the school doesn't necessarily have to oblige. It's up to them what actually ends up in the plan. DH says that whatever we want, we get. I don't think this is true...
  3. C

    I"m so excited!!!!

    I LOVE the name Declan and using Markus is a great idea. My family has a "thing" about using part of dad's name in the son's name. So, have you decided which of the boys will get which name? Will the first born be Ryland or Tristan?
  4. C

    Pet peeve

    Yeah, it's the "word for word" for bugs the crap out of me.
  5. C

    Newborn Screening

    Uh oh! Bucks beating Wolverines to this is very bad news. Oh well, I guess we can't kick your booty in football and beat you to this too <img src="i/expressions/face-icon-small-tongue.gif" border="0"> We'll let ya have this one. Good job! Go Blue!
  6. C

    Pet peeve

    Ok, does anyone else find this annoying... Someone starts a thread, people start responding, but is anyone actually reading the previous responses. I really hate it when I post a response then later someone else posts exactly the same response. I'm not talking about prayer requests, B-day...
  7. C

    School

    We're facing a similar situation this year. In our school district all the schools join into one beginning in 5th grade. I'm aware of another CF family whose DD has CF and she'll also be starting 5th grade with Sean. This family may be aware of me as we have a few mutual acquaintances but I...
  8. C

    Alcohol & Enzymes

    Well, I wouldn't think that alcohol would make enzymes any less effective. After all, the enzymes CFers take are already present in someone without CF and I'm not aware of alcohol giving me any malabsorption problems. That said, alcohol definitely affects antibiotics so don't mix those. I'd...
  9. C

    TOBI~28 on~28 off

    If the Dr. prescribed 28on/28off then I'd just go ahead. However, you can't go wrong by calling and confirming.
  10. C

    Stats on People with CF and Carriers having Children with CF?

    Very well written, Lindsey. Your post says it all. End of story...
  11. C

    Stats on People with CF and Carriers having Children with CF?

    I'm not "using" Alan to support an argument. I'm quoting him as a source. I'm sure you've quoted dead authors to support arguments before. Whether Alan thought a life with CF was worthwhile or not raises a good point. So far, you've only debated with CFers that have thought their lives were...
  12. C

    Stats on People with CF and Carriers having Children with CF?

    Okay, here are some qutoes from our friend Alan. We all knew him and we all "watched" him die from this terrible disease. Here are his thoughts... <div class="FTQUOTE"><begin quote>I don't see why you should continue trying to "chance" a healthy child. You wouldn't play Russian roulette with...
  13. C

    Stats on People with CF and Carriers having Children with CF?

    Let's take my two sons as examples. Born into the same family with all the same control factors. One has CF the other not. Do you not agree that my CF child has suffered more than my non-CF child? What I am saying is that if you have the knowledge (i.e. both parents are carriers and or one...
  14. C

    Stats on People with CF and Carriers having Children with CF?

    Ok, I got this one... Because, no parent wants to see their child suffer. Duh!
  15. C

    Stats on People with CF and Carriers having Children with CF?

    Anon @ 3:30, Let's be clear here. There is a significant difference in a genetic condition like CF, parkinson, etc. versus an inherited condition. Allergies and asthma can also be triggered by environmental factors and may have nothing to do with inheritance. I'd be interested to see your...
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    Stats on People with CF and Carriers having Children with CF?

    Agnet-X, Ugh!!! No one is saying CFers don't live happy lives. No one is saying it's about quantity not quality. No one is saying it's better to die from cancer, heart disease, etc... What we are saying is that armed with all the knowledge we wouldn't choose to bring a CF child into this...
  17. C

    Stats on People with CF and Carriers having Children with CF?

    I agree, Julie. This is a CF forum and because of the nature of the disease (fatal), there is going to be some ugliness. A lot of parents aren't ready for that and, as has been said before, may be more comfy in the families section. My husband is one of those. He is honest with Sean about CF...
  18. C

    Obstruction

    LOL! Amy, that is too funny. See, all those frat parties really paid off. Uh, I'm assuming that the smell reminds you of urine and that you don't really have any experience with the taste <img src="i/expressions/face-icon-small-wink.gif" border="0">
  19. C

    Quick baby update

    Hey Julie (and Mark), GREAT NEWS!!! That is soooo cool that babies practice their breathing while in the womb. I had no idea. Just what exactly do they do?
  20. C

    Stats on People with CF and Carriers having Children with CF?

    Amy, Although I agree with your sentiment, in general (i.e. yes, Allie has a huge amount of insight into this area). I don't agree that the parent of a child necessarily has any less insight. <div class="FTQUOTE"><begin quote>Allie speaks from a much more macro view of the disease. She's seen...
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