Cystic Fibrosis Forum (EXP)

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  1. K

    join in on the fun

    Craig - if you'll come back, I'll answer yours - Republican! Now I've outed myself...... <img src="i/expressions/face-icon-small-wink.gif" border="0"> Dog Ceasar Salad or House Salad? Dana Mom to Katy (3, cf) and Kyra (6, no cf)
  2. K

    CHoking Cough

    Is it possible this is just plain-ol' drainage? Katy had something similar to what you describe, right after her dx, and I freaked out. Turns out it was kind of an allergy/sinus issue and was VERY well treated with Zyrtec. Sudafed and Benadryl have never worked well for her. Just a thought...
  3. K

    CHoking Cough

    Is it possible this is just plain-ol' drainage? Katy had something similar to what you describe, right after her dx, and I freaked out. Turns out it was kind of an allergy/sinus issue and was VERY well treated with Zyrtec. Sudafed and Benadryl have never worked well for her. Just a thought...
  4. K

    CHoking Cough

    Is it possible this is just plain-ol' drainage? Katy had something similar to what you describe, right after her dx, and I freaked out. Turns out it was kind of an allergy/sinus issue and was VERY well treated with Zyrtec. Sudafed and Benadryl have never worked well for her. Just a thought...
  5. K

    join in on the fun

    black and white Bed all to yourself or snuggled up with someone? Dana Mom to Katy (3, cf) and Kyra (6, no cf)
  6. K

    join in on the fun

    black and white Bed all to yourself or snuggled up with someone? Dana Mom to Katy (3, cf) and Kyra (6, no cf)
  7. K

    join in on the fun

    black and white Bed all to yourself or snuggled up with someone? Dana Mom to Katy (3, cf) and Kyra (6, no cf)
  8. K

    TOBI Question

    When Katy cultured PA she was put on a 3 month solid TOBI regimen; during this, her next culture was clear. But once our 3 months is up I'm told that we will be on a 28 on/28 off cycle; and everytime I even TRY to hint that we might ever be able to quit it, after some number of clear cultures...
  9. K

    TOBI Question

    When Katy cultured PA she was put on a 3 month solid TOBI regimen; during this, her next culture was clear. But once our 3 months is up I'm told that we will be on a 28 on/28 off cycle; and everytime I even TRY to hint that we might ever be able to quit it, after some number of clear cultures...
  10. K

    TOBI Question

    When Katy cultured PA she was put on a 3 month solid TOBI regimen; during this, her next culture was clear. But once our 3 months is up I'm told that we will be on a 28 on/28 off cycle; and everytime I even TRY to hint that we might ever be able to quit it, after some number of clear cultures...
  11. K

    Liver Problems??

    My daughter was diagnosed about 2 1/2 months ago; her initial bloodwork showed a slightly elevated AST liver enzyme count. They put her on Ursodiol 3 ml twice a day (they have to mix it special; she can't swallow pills). I expressed to our doc that I was REALLY worried about the fact that her...
  12. K

    Liver Problems??

    My daughter was diagnosed about 2 1/2 months ago; her initial bloodwork showed a slightly elevated AST liver enzyme count. They put her on Ursodiol 3 ml twice a day (they have to mix it special; she can't swallow pills). I expressed to our doc that I was REALLY worried about the fact that her...
  13. K

    Liver Problems??

    My daughter was diagnosed about 2 1/2 months ago; her initial bloodwork showed a slightly elevated AST liver enzyme count. They put her on Ursodiol 3 ml twice a day (they have to mix it special; she can't swallow pills). I expressed to our doc that I was REALLY worried about the fact that her...
  14. K

    Update on Sean

    Reading this made MY blood pressure go through the roof.....sometimes I don't know where parents draw their strength to advocate for their kids like they must. We have enough to do as parents; I think we should be able to rely on medical professionals to act appropriately, but apparently not...
  15. K

    Update on Sean

    Reading this made MY blood pressure go through the roof.....sometimes I don't know where parents draw their strength to advocate for their kids like they must. We have enough to do as parents; I think we should be able to rely on medical professionals to act appropriately, but apparently not...
  16. K

    Update on Sean

    Reading this made MY blood pressure go through the roof.....sometimes I don't know where parents draw their strength to advocate for their kids like they must. We have enough to do as parents; I think we should be able to rely on medical professionals to act appropriately, but apparently not...
  17. K

    help alleviate my irrational fears!!

    Well we are all pulling for a 'not CF' diagnosis. You should be so proud of yourself for being so tuned in to your child, especially with a family history and your unknown status as a carrier. You were brave to post your concerns here. I agree that you should please let us know, and good...
  18. K

    help alleviate my irrational fears!!

    Well we are all pulling for a 'not CF' diagnosis. You should be so proud of yourself for being so tuned in to your child, especially with a family history and your unknown status as a carrier. You were brave to post your concerns here. I agree that you should please let us know, and good...
  19. K

    help alleviate my irrational fears!!

    Well we are all pulling for a 'not CF' diagnosis. You should be so proud of yourself for being so tuned in to your child, especially with a family history and your unknown status as a carrier. You were brave to post your concerns here. I agree that you should please let us know, and good...
  20. K

    PFT's, O2 Sats and Finger Clubbing - Survey

    Katy, age 3 Too young for any of the lung function tests and has no visible/obvious respiratory symptoms Mild to moderate clubbing on all fingers Dana Mom to Katy (3, cf) and Kyra (6, no cf)
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