What's new
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

probiotics....did I post this already?

Foody

New member
We also have our kids (CF and non-CF) on daily probiotics. It makes a huge difference and protects the integrity of the "gut" which is actually responsible for as much as 90% of immune function! Also, energy wise, several aspects of the gut are directly linked to lungs and sinuses...they are related to the same acupuncture point. So if one system is severely out of balance, say the gut, more congestion and issues with lungs and sinuses will be present (this is research on those without CF so you can imagine how it would look for CFers). So, we focus alot on creating and maintaining a healthy gut.

It really is fascinating and worthwhile research to understand how food and proper care of the gut supports us. I know until recently (last 4-5 years) I had no idea how my own issues stemmed from imbalances in the gut. For CF, I believe it is even more important due to the tendencies of being acidic (bad bacteria, candida, and even parasites thrive in this environment), potentially being on antibiotics more frequently than average kids, and inflammation of intestinal lining inherent in CF. I believe probiotics should be standard of care along with much more in-depth nutrition training. You can take all the probiotics in the world but if you ingest tons of sugar and processed foods your gut will still be unable to function properly to protect your body.

This stuff can really change things in my opinion but it is a part of a total approach in my opinion.
 

Foody

New member
We also have our kids (CF and non-CF) on daily probiotics. It makes a huge difference and protects the integrity of the "gut" which is actually responsible for as much as 90% of immune function! Also, energy wise, several aspects of the gut are directly linked to lungs and sinuses...they are related to the same acupuncture point. So if one system is severely out of balance, say the gut, more congestion and issues with lungs and sinuses will be present (this is research on those without CF so you can imagine how it would look for CFers). So, we focus alot on creating and maintaining a healthy gut.

It really is fascinating and worthwhile research to understand how food and proper care of the gut supports us. I know until recently (last 4-5 years) I had no idea how my own issues stemmed from imbalances in the gut. For CF, I believe it is even more important due to the tendencies of being acidic (bad bacteria, candida, and even parasites thrive in this environment), potentially being on antibiotics more frequently than average kids, and inflammation of intestinal lining inherent in CF. I believe probiotics should be standard of care along with much more in-depth nutrition training. You can take all the probiotics in the world but if you ingest tons of sugar and processed foods your gut will still be unable to function properly to protect your body.

This stuff can really change things in my opinion but it is a part of a total approach in my opinion.
 

Foody

New member
We also have our kids (CF and non-CF) on daily probiotics. It makes a huge difference and protects the integrity of the "gut" which is actually responsible for as much as 90% of immune function! Also, energy wise, several aspects of the gut are directly linked to lungs and sinuses...they are related to the same acupuncture point. So if one system is severely out of balance, say the gut, more congestion and issues with lungs and sinuses will be present (this is research on those without CF so you can imagine how it would look for CFers). So, we focus alot on creating and maintaining a healthy gut.

It really is fascinating and worthwhile research to understand how food and proper care of the gut supports us. I know until recently (last 4-5 years) I had no idea how my own issues stemmed from imbalances in the gut. For CF, I believe it is even more important due to the tendencies of being acidic (bad bacteria, candida, and even parasites thrive in this environment), potentially being on antibiotics more frequently than average kids, and inflammation of intestinal lining inherent in CF. I believe probiotics should be standard of care along with much more in-depth nutrition training. You can take all the probiotics in the world but if you ingest tons of sugar and processed foods your gut will still be unable to function properly to protect your body.

This stuff can really change things in my opinion but it is a part of a total approach in my opinion.
 

Foody

New member
We also have our kids (CF and non-CF) on daily probiotics. It makes a huge difference and protects the integrity of the "gut" which is actually responsible for as much as 90% of immune function! Also, energy wise, several aspects of the gut are directly linked to lungs and sinuses...they are related to the same acupuncture point. So if one system is severely out of balance, say the gut, more congestion and issues with lungs and sinuses will be present (this is research on those without CF so you can imagine how it would look for CFers). So, we focus alot on creating and maintaining a healthy gut.

It really is fascinating and worthwhile research to understand how food and proper care of the gut supports us. I know until recently (last 4-5 years) I had no idea how my own issues stemmed from imbalances in the gut. For CF, I believe it is even more important due to the tendencies of being acidic (bad bacteria, candida, and even parasites thrive in this environment), potentially being on antibiotics more frequently than average kids, and inflammation of intestinal lining inherent in CF. I believe probiotics should be standard of care along with much more in-depth nutrition training. You can take all the probiotics in the world but if you ingest tons of sugar and processed foods your gut will still be unable to function properly to protect your body.

This stuff can really change things in my opinion but it is a part of a total approach in my opinion.
 

Foody

New member
We also have our kids (CF and non-CF) on daily probiotics. It makes a huge difference and protects the integrity of the "gut" which is actually responsible for as much as 90% of immune function! Also, energy wise, several aspects of the gut are directly linked to lungs and sinuses...they are related to the same acupuncture point. So if one system is severely out of balance, say the gut, more congestion and issues with lungs and sinuses will be present (this is research on those without CF so you can imagine how it would look for CFers). So, we focus alot on creating and maintaining a healthy gut.

It really is fascinating and worthwhile research to understand how food and proper care of the gut supports us. I know until recently (last 4-5 years) I had no idea how my own issues stemmed from imbalances in the gut. For CF, I believe it is even more important due to the tendencies of being acidic (bad bacteria, candida, and even parasites thrive in this environment), potentially being on antibiotics more frequently than average kids, and inflammation of intestinal lining inherent in CF. I believe probiotics should be standard of care along with much more in-depth nutrition training. You can take all the probiotics in the world but if you ingest tons of sugar and processed foods your gut will still be unable to function properly to protect your body.

This stuff can really change things in my opinion but it is a part of a total approach in my opinion.
 

EnergyGal

New member
EXCELLENT POINT Foody!!!!

I believe if we eat healthy and take probitotics like Foody says, we will stay healhier. On a scale from 1-10 ten being the worst, if you can improve health to a 4 all the power to you. Having a disease and keeping the disease from getting worse is not easy. Taking antibiotics (impact on the gut)keeps us toward the ten but adapting a healthier life style overall, will keep us toward the four and perhaps to a two. Just stay realistic and keep focused on the goal on improving your health. If you take four steps forward and two steps back, do not give up.

Many patients do not have moms and dads who cook us healthy foods so it is even more important for those parents to give their children probiotics and perhaps instill that the child be independent to cook their own meals. That is another subject but there are always ways to better ones health. Everything is a balancing act.
 

EnergyGal

New member
EXCELLENT POINT Foody!!!!

I believe if we eat healthy and take probitotics like Foody says, we will stay healhier. On a scale from 1-10 ten being the worst, if you can improve health to a 4 all the power to you. Having a disease and keeping the disease from getting worse is not easy. Taking antibiotics (impact on the gut)keeps us toward the ten but adapting a healthier life style overall, will keep us toward the four and perhaps to a two. Just stay realistic and keep focused on the goal on improving your health. If you take four steps forward and two steps back, do not give up.

Many patients do not have moms and dads who cook us healthy foods so it is even more important for those parents to give their children probiotics and perhaps instill that the child be independent to cook their own meals. That is another subject but there are always ways to better ones health. Everything is a balancing act.
 

EnergyGal

New member
EXCELLENT POINT Foody!!!!

I believe if we eat healthy and take probitotics like Foody says, we will stay healhier. On a scale from 1-10 ten being the worst, if you can improve health to a 4 all the power to you. Having a disease and keeping the disease from getting worse is not easy. Taking antibiotics (impact on the gut)keeps us toward the ten but adapting a healthier life style overall, will keep us toward the four and perhaps to a two. Just stay realistic and keep focused on the goal on improving your health. If you take four steps forward and two steps back, do not give up.

Many patients do not have moms and dads who cook us healthy foods so it is even more important for those parents to give their children probiotics and perhaps instill that the child be independent to cook their own meals. That is another subject but there are always ways to better ones health. Everything is a balancing act.
 

EnergyGal

New member
EXCELLENT POINT Foody!!!!

I believe if we eat healthy and take probitotics like Foody says, we will stay healhier. On a scale from 1-10 ten being the worst, if you can improve health to a 4 all the power to you. Having a disease and keeping the disease from getting worse is not easy. Taking antibiotics (impact on the gut)keeps us toward the ten but adapting a healthier life style overall, will keep us toward the four and perhaps to a two. Just stay realistic and keep focused on the goal on improving your health. If you take four steps forward and two steps back, do not give up.

Many patients do not have moms and dads who cook us healthy foods so it is even more important for those parents to give their children probiotics and perhaps instill that the child be independent to cook their own meals. That is another subject but there are always ways to better ones health. Everything is a balancing act.
 

EnergyGal

New member
EXCELLENT POINT Foody!!!!

I believe if we eat healthy and take probitotics like Foody says, we will stay healhier. On a scale from 1-10 ten being the worst, if you can improve health to a 4 all the power to you. Having a disease and keeping the disease from getting worse is not easy. Taking antibiotics (impact on the gut)keeps us toward the ten but adapting a healthier life style overall, will keep us toward the four and perhaps to a two. Just stay realistic and keep focused on the goal on improving your health. If you take four steps forward and two steps back, do not give up.

Many patients do not have moms and dads who cook us healthy foods so it is even more important for those parents to give their children probiotics and perhaps instill that the child be independent to cook their own meals. That is another subject but there are always ways to better ones health. Everything is a balancing act.
 
Top