Cystic Fibrosis Forum (EXP)

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  1. A

    ADEK'S

    Liza, that's weird. I've never been told ADEKs had to be chewed. I find them gross, and so I take them, but I always swallow them whole. They're rough and difficult to swallow sometimes, but I do it okay. Who told you they had to be chewed? That's so weird.
  2. A

    ADEK'S

    I think they work, yes. It's a good vitamin to take. But I'd disagree with the last poster and say that I think they taste disgusting. It's like this fake banana flavor. Real gross. But if you can swallow them whole, it's good for you, so it's a good idea.
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    My Thoughts on the Board

    I don't even mean the net abbreviations. It happens. I use ttyl sometimes. I just mean people who can't spell and don't use any grammar and this is soooo off topic it doesn't even matter. Hahaha.
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    My Thoughts on the Board

    Well Oliver68, I might choose to poke fun at your English except it was excellent. lol And I'll be the last to comment because your English is far better than my French would be. I never took a day of French in my life. Hahaha! Just for your own info, I didn't have a bit of trouble...
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    Good CF snacks?

    I registered last year in February. I don't know if it's giving you problems. But if it won't let you use your really old name, try making a new one? I don't know. Hah. I'm computer illiterate.
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    Parents with CF children

    Maybe help him by telling close friends for now. And then he can get more open with it as time goes on. I think being open with it is much more free and helpful. It's up to each individual, but I think it's much easier to be open about it. Anyone who asks me about it or has known me for any...
  7. A

    Parents with CF children

    I say the same things as these last two people. There is NOTHING wrong with people knowing about the CF. And the fact this his parents smoke in the house is really disgusting. I'd tell your boyfriend to speak up if I were you.
  8. A

    new to cf

    My parents used to love freaking people out in public. They'd say something while they were out about having to "go home and beat the baby" lol
  9. A

    Good CF snacks?

    Ahh I'm so glad all of my babbling actually came out with some good ideas. Haha.
  10. A

    quick question

    CF kids are a lot better off if they're bossy and outgoing, because you can learn to control the bossy as you get older. Heheee. I'd love to be am other someday and hopefully will get there, but I'm glad in the meantime I can be of help at all. Hey, I don't know if you've said this before or...
  11. A

    Do you find ?

    I had more digestive problems when I was in elementary school and less lung. Now that I'm older I have about the same for digestive, and the lung problems are starting to kick in. But I've always had a good deal of both.
  12. A

    Good CF snacks?

    PS-- This is random, but Carey, why not register with the board now that you're on all the time? It'd be easier to recognize your posts if you had a user name.
  13. A

    Good CF snacks?

    A favorite of mine used to be cheese. Good in fat and calcium and junk, I used to just sit and eat slices of cheese. Hmm, I ate a lot of stuff. Used to eat cheetos and chips and ice cream, and peanuts (good in fat and salt), cashews, pistachios, any nuts are pretty good. Though I don't know...
  14. A

    quick question

    Though it may seem like I was questioning your parenting skills, it's not what I was purposely doing. Even being smothered (not saying you do this, just making one of my many points) must be better than not being loved at all. And I can tell from your posts that you love your child(ren?). I was...
  15. A

    Need Advice

    And PS--- knowing CF will kill me doesn't mean I don't live life to the fullest. You ask my mother sometime, my friend Katie, my "little brother" Mini, my boyfriend (Mike). They'll all tell you. Mike has told me many times one thing he loves about me is that I get a kick out of small things that...
  16. A

    Need Advice

    It's a very realistic attitude. I could also be hit by a bus, but I prefer CF thank you. And I didn't say WHEN, just said that I knew it would. You can be optimistic without having too much false hope, which I try to avoid. Will CF kill me? More than likely. Do I expect to see past "average"...
  17. A

    quick question

    I never meant to be rude. Trust me, it wasn't the intention. I just have to make sure I'm heard when talking about letting CF kids grow up 'normal." And the thing I have to wonder is... you weren't irked by what I said, but how I said it... let me ask, how can you tell how I said it online? It...
  18. A

    Need Advice

    To Katrina, of course you choose to tell your child whenever you like, but let me just tell you..... the "life threatening illness" thing you said. I can honestly say I knew CF would kill me since before I can remember. I don't know exactly what my parents said to me or when, but I know enough...
  19. A

    DO PEOPLE STARE

    This is mostly to the last anonymous. My friends have made comments like that before, and usually it's to get a rise out of other people. I don't know what's up with Sami's friends... but my boyfriend likes to tell this one story... We were at my hospital he was sitting reading a book while I...
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    Single gene CF carriers

    When they did my genetic testing at age 5 (that was the year they discovered which chromosome caused CF), I had one Delta F508 from my mother... and the gene my father gave me didn't even have a name. It may by now, I don't know. All I know is that I do have two mutations and last we checked...
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