Cystic Fibrosis Forum (EXP)

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  1. A

    hot tubs?

    I have no idea, but I go into hot tubs all the time.
  2. A

    Ports

    I learned after the port had been placed for only 3 months, and I do myself all the time. Much easier.
  3. A

    psueudomonas and swimming pools

    I don't mind, but I'm curious as to why you're asking me?
  4. A

    Engaged!!!

    THAT'S SO EXCITING!!!! YAAAYYY!!!!!!!! I'm happy for you. Heehee. If my boyfriend ever asks you had better believe I will do the same thing and start a thread about it. That's so exciting. Heeeeee. Congrats! <img src="i/expressions/rose.gif" border="0">
  5. A

    Ports

    I do mine on the first of every month.
  6. A

    Alcohol?

    I've been drinking since I was 15. Not like a drunk, but when I want to I have a drink. Either way, point being I've never had any huge problem with it and I've never felt sicker after a night out. But yes, it is harder on the liver because of our already existing liver problems.
  7. A

    Book Club

    His Bright Light ~ Danielle Steel. This is a biography she wrote about her son, Nick. He was a severe manic depressive his whole life and killed himself when he was 19. The Bell Jar ~ Sylvia Plath. A classic, about Sylvia Plath's life of mental un-health. Breathing For a Living ~ Laura...
  8. A

    Book Club

    I think it's a fun idea, I have a few I'd definitely suggest.
  9. A

    Good CF snacks?

    lol not dumb questions. It's good to learn. As for the salt, CFers sweat 10X as much salt as healthy people, so we need to eat a lot in order to have enough in our systems (yes there is such a thing as not enough salt). lol The fat and calories and such... the natural enzymes in CFers don't work...
  10. A

    CF and adoption

    I have to ask, is that even legal? For them to turn us down because of the CF?
  11. A

    ADEK'S

    I was unaware I was repeating you. You were talking about enzymes. I clarified about the ADEKs themselves. But it doesn't matter.
  12. A

    PHYSIOTHERAPY

    During the schoolyear, I use the gym that is included in tuition price. I use the elliptical machines and usually try to do 20-30 minutes. I try to do every day, if possible. But I probably end up doing about 5-6 days a week. It helps a hell of a lot.
  13. A

    ADEK'S

    The body doesn't absorb A, D, E, and K because they're fat soluble vitamins. The whole point with the ADEK vitamins is that they're the fat soluble vitamins in water-soluble form, so that they're easier to absorb for CFers.
  14. A

    pregnancy and FEV1

    Hey if you think you can do it, power to you! I've said a million times if I still had the parts, almost no matter where my health stood, I'd have my own kids someday. Make sure you keep in close touch with your doctor, and go for it. <img src="i/expressions/rose.gif" border="0">
  15. A

    what do u do when u have lost hope!

    Oh it was totally hokey and extremely dramatic. lol, for some reason I soak up that junk.
  16. A

    what do u do when u have lost hope!

    I loved those books. There's also some good biographies... Though older, there's Alex: The Life of a Child by Frank Deford. And Breathing For a Living (an autobiography) by Laura Rothenberg. Breathing is an absolutely favorite of mine. I've read that book cover to cover a good 5 times at least.
  17. A

    Parents with CF children

    I assume you might be asking me some of these questions? I don't mind being known as the girl with CF. Most of the people in town treat me the same. I haven't been isolated any more based on the CF alone. I would rather people know anyway. *shrug*
  18. A

    Need Advice

    *jumps* Haaahhh.
  19. A

    weight gain and marijuana use

    An even better idea I might suggest... .though it can be more expensive... is solving a few problems with one stone. Make some brownies. Then you're not smoking, and you're eating in the process of boosting your appetite. It's healthier all around to do it that way. Plus it's a better high.
  20. A

    FDA is Requiring Approval of Enzymes by 2008

    Insurance companies are assbites. I've heard many times that the generic enzymes don't work worth a damn.
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