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Bugger bugger bugger. Jeremy's brother (also CF, although I have no idea when he was last at a clinic) is flying in tonight for the wedding. I have no idea what meds/treatments/etc he has.

Ideas for things to do together as a couple while vesting/nebbing... a) Find a TV series you both enjoy watching. Right now Jeremy and I have been watching Babylon 5 on DVD. An hour long tv show goes about 40 minutes or so - enough time for a half hour vest and coughing. We also throw on the...

One one partner has CF and the other does not... there are two possible scenarios. The non-CF parent needs to undergo genetic testing to detemine their carrier status. There are a number of posts about it, with Ambry and Quest having the most extensive tests. These tests aren't perfect...

Yes, mold can be a serious problem. Not just for a CFer - but for everyone. I would be concerned about her culturing molds. Some people have no problem with - and others have nasty allergic reactions. Not a good thing to be allergic to something growing in your lungs (heck, it's not good to...

Sigh, violence in the name of religion is bad and downright foolish. Hopefully you encounter no problems Allie-dear.

"Countries" - which ones? If you're coming to the US - I could be helpful. Otherwise, not so much. I'm sure there are some Europeans who could help you with that. Most of my backpacking knowledge is what US people refer to as backpacking - pack full of stuff and out in the wilderness (aka...

<a target=_blank class=ftalternatingbarlinklarge href="http://www.abouttobi.com/prescribing/TOBI_US_Patient_Instruct(40-1020-G).pdf ">http://www.abouttobi.com/presc...struct(40-1020-G).pdf </a> Tobi can be stored at room temperature (no more than 77ºF) for up to 28 days.

If I recall correctly - Tobi can be without refrigeration for up to 30 days. Can someone verify?

Before I can answer, I need to know a few things... Where are you planning on going? How long will you be gone? Will you have access to electricity? What medications do you do?

Yes, I know of a CFer with bipolar. However, it's much more likely it was a genetic kick in the pants, as it runs in that CFer's family.

The only problem is - there really wasn't a good place to say... Not on Pulmozyme because it did not work well for the patient.

This is why patients must be firm. If you don't want it done, or think it is being done wrong... DON'T LET THEM DO IT ANYWAY.

I would but I'm at work... should be working.

What Emichelly said. See, we really are the same person.

Honestly, I'd like to hear from the forum admins on why exactly he was banned.

Questions... Out of pocket maximum per person and per family? Lifetime Maximum? Deductable? Rx coverage? What is covered (and what is formulary), and what are the copays? Can you use a mail order pharmacy? What is the coverage level for doctor visits, lab work, hospital stays, home health...

I find the bit in the intro about life expect acy a bit harsh - considering the mean life expectancy is now over 35. Otherwise - awesome job.

I'm going to be a bit repetitive here... You and your siblings are, at the very least, carriers. You should ALL be tested to make sure you do not have CF. Your husband and your siblings spouses and children, if any, should be tested. If your father was diagnosed genetically, you should find...

Yes. There are many reasons to get a false negative. Many of the genetically diagnosed CFers on this site have had negative sweat tests.

Currently - the MN CF center has an average life expectancy of 47-48 years.